1 | Main language other than English spoken at home | Number
[4]
| NN{NN} The Australian Standard Classification of Languages (ASCL 2011) code set representing languages. | |
2 | Setting of death | Number
[2]
| 1 | Private home | 2 | Hospice | 3 | Treating hospital | 4 | Other hospital | 88 | Other setting | 98 | Not applicable - patient alive | 99 | Not stated/inadequately described - patient has died but location inadequately stated |
| Conditional obligation: Recorded for persons who have died. |
3 | First degree relative cancer history indicator | Number
[1]
| 1 | Yes | 2 | No | 7 | Not applicable | 8 | Unknown | 9 | Not stated/inadequately described |
| |
4 | Second degree relative cancer history indicator | Number
[1]
| 1 | Yes | 2 | No | 7 | Not applicable | 8 | Unknown | 9 | Not stated/inadequately described |
| |
5 | Hereditary genetic events family history indicator | Number
[1]
| 1 | Yes | 2 | No | 8 | Unknown | 9 | Not stated/inadequately described |
| |
6 | Hereditary genetic events type code | Number
[2]
| 1 | Peutz-Jehgers syndrome | 2 | B-Raf mutation | 3 | Undescended testes | 4 | Von Recklinghausen syndrome | 5 | Xeroderma pigmentosa | 6 | Bloom syndrome | 7 | Ataxia telangiectasia | 8 | Beckwith-Wiedemann syndrome | 9 | Down syndrome | 10 | Klinefelter syndrome | 11 | Neurofibromatosis type I (NF-1) | 12 | Von Hippel–Lindau disease (VHL) | 13 | RET proto-oncogene | 14 | Adenomatous polyposis coli (APC) | 15 | Hereditary nonpolyposis colorectal cancer (HNPCC or Lynch syndrome) | 16 | Breast cancer gene 1 (BRCA1) | 17 | Breast cancer gene 2 (BRCA2) | 18 | Neurofibromatosis | 19 | Li-Fraumeni syndrome | 20 | Fanconi anaemia | 88 | Other genetic events or syndromes | 97 | No genetic events or syndromes | 98 | Unknown | 99 | Genetic event or syndrome recorded but type inadequately described |
| Conditional obligation: Complete if Person with cancer—family history of hereditary genetic events indicator, yes/no/unknown/not stated/inadequately described code N equals 'yes'. |
7 | Hereditary genetic events type description | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | Conditional obligation: Complete if Person with cancer—family history of hereditary genetic events indicator, yes/no/unknown/not stated/inadequately described, code N equals 'yes' and Person with cancer—hereditary genetic events type, code N[N] equals 'other'. |
8 | Personal genetic syndrome indicator | Number
[1]
| 1 | Yes | 2 | No | 8 | Unknown | 9 | Not stated/inadequately described |
| |
9 | Personal genetic syndrome type | Number
[2]
| 1 | Peutz-Jehgers syndrome | 2 | B-Raf mutation | 3 | Undescended testes | 4 | Von Recklinghausen syndrome | 5 | Xeroderma pigmentosa | 6 | Bloom syndrome | 7 | Ataxia telangiectasia | 8 | Beckwith-Wiedemann syndrome | 9 | Down syndrome | 10 | Klinefelter syndrome | 11 | Neurofibromatosis type I (NF-1) | 12 | Von Hippel–Lindau disease (VHL) | 13 | RET proto-oncogene | 14 | Adenomatous polyposis coli (APC) | 15 | Hereditary nonpolyposis colorectal cancer (HNPCC or Lynch syndrome) | 16 | Breast cancer gene 1 (BRCA1) | 17 | Breast cancer gene 2 (BRCA2) | 18 | Neurofibromatosis | 19 | Li-Fraumeni syndrome | 20 | Fanconi anaemia | 88 | Other genetic events or syndromes | 97 | No genetic events or syndromes | 98 | Unknown | 99 | Genetic event or syndrome recorded but type inadequately described |
| Conditional obligation: Complete if Person with cancer—personal genetic syndrome indicator, yes/no/unknown/not stated/inadequately described, code N equals 'yes'. |
10 | Personal genetic syndrome type description | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | Conditional obligation: Complete if Person with cancer—personal genetic syndrome indicator, yes/no/unknown/not stated/inadequately described code N equals 'yes' and Person with cancer—personal genetic syndrome type, code N[N] equals 'other genetic events or syndromes'. |
11 | Date of cancer symptom onset | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
12 | Date of initial primary health care consultation | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
13 | Date of initial medical specialist consultation | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
14 | AYA cancer treatment provider type | Number
[2]
| 1 | Specialist adolescent or young adult with cancer centre or team | 2 | Cancer centre | 3 | Paediatric cancer centre | 4 | General hospital | 5 | General paediatric hospital | 88 | Other | 99 | Unknown |
| |
15 | Shared care arrangement indicator | Number
[1]
| | |
16 | Treatment funding source | Number
[1]
| 1 | Public | 2 | Private | 3 | Compensable | 4 | Private and compensable | 8 | Unknown |
| DSS specific information: Record this data element for the initial course of treatment for cancer. |
17 | Multidisciplinary team review indicator | Number
[1]
| | |
18 | Specialist support services indicator | Number
[1]
| | |
19 | Specialist support services type | Number
[2]
| 1 | Educational support | 2 | Community service | 3 | Psychiatrist | 4 | Psychologist | 5 | Specialist nurse/nurse counsellor | 6 | Professional or volunteer support group | 7 | Individual peer support | 8 | Counsellor/bereavement counsellor | 9 | Pastoral care | 88 | Other | 97 | Not applicable-no specialist support services received | 98 | Unknown whether specialist support services were received | 99 | Support services received but type not stated/inadequately described |
| Conditional obligation: Complete if Cancer treatment— specialist support services indicator, yes/no/unknown code N equals 'yes'. |
20 | Specialist support services description | String
[100]
| X[X(99)]
A combination of alphanumeric characters. | Conditional obligation: Complete if Cancer treatment— specialist support services indicator, yes/no/unknown code N equals 'yes' and Cancer treatment— specialist support services type, code N[N] equals 'other'. |
21 | Care coordinator assignment indicator | Number
[1]
| | |
22 | Variation from planned treatment indicator | Number
[1]
| | Conditional obligation: This is to be collected for the intial course of treatment.DSS specific information: Record this data element for the initial course of treatment for cancer. |
23 | Treatment plan modification description | String
[150]
| X[X(149)] A combination of alphanumeric characters. | Conditional obligation: Complete if Cancer treatment—variation from planned treatment indicator, yes/no/unknown code N equals 'yes'. |
24 | Fertility counselling offered indicator | Number
[1]
| | |
25 | Fertility counselling provided indicator | Number
[1]
| | Conditional obligation: Complete if Person with cancer—fertility counselling offered indicator, yes/no/unknown code N equals 'yes'. |
26 | Fertility preservation procedure indicator | Number
[1]
| | |
27 | Fertility preservation procedure type | Number
[2]
| 1 | Preservation of embryo | 2 | Preservation of sperm | 3 | Preservation of oocyte | 4 | Ovarian tissue cryopreservation | 5 | Ovarian transposition | 6 | Hormonal ovarian suppression | 7 | Gonadotropin releasing hormone (GnRH) analogue | 88 | Other | 99 | Fertility preservation procedure used but type not specified/inadequately described |
| Conditional obligation: Complete if Person with cancer—fertility preservation procedure indicator, yes/no/unknown code N equals 'yes'. |
28 | Fertility preservation procedure type description | String
[100]
| X[X(99)]
A combination of alphanumeric characters. | Conditional obligation: Complete if Person with cancer—fertility preservation procedure indicator, yes/no/unknown code N equals 'yes' and Person with cancer—fertility preservation procedure type, code N[N] equals 'other'. |
29 | Fertility preservation utilised indicator | Number
[1]
| | Conditional obligation: Complete if Person with cancer—fertility preservation procedure indicator, yes/no/unknown code N equals 'yes'. |
30 | Pregnancy outcome indicator | Number
[1]
| | |
31 | ECOG score | Number
[1]
| 0 | Fully active, able to carry on all pre-disease performance without restriction. | 1 | Restricted in physically strenuous activity but ambulatory and able to carry out work of a light or sedentary nature, e.g., light house work, office work. | 2 | Ambulatory and capable of all selfcare but unable to carry out any work activities. Up and about more than 50% of waking hours. | 3 | Capable of only limited selfcare, confined to bed or chair more than 50% of working hours. | 4 | Completely disabled. Cannot carry on any selfcare. Totally confined to bed or chair. | 8 | Unknown | 9 | Not stated |
| |
32 | Date of cancer staging | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
33 | Distant metastatic site(s) at diagnosis (ICD-O-3 code) | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | |
34 | Colinet comorbidities | Number
[2]
| 1 | Cardiovascular | 2 | Respiratory | 3 | Neoplastic | 4 | Renal insufficiency | 5 | Diabetes | 6 | Alcoholism | 7 | Tobacco consumption | 97 | Not applicable-no comorbidities present | 98 | Unknown whether comorbidities are present | 99 | Comorbidities are present but type not stated/inadequately described |
| |
35 | Cancer comorbidities description | String
[100]
| X[X(99)]
A combination of alphanumeric characters. | Conditional obligation: Complete when Person with cancer—comorbidities, Colinet defined comorbidities code N[N] equals 'other'. |
36 | Research trial type | Number
[1]
| 1 | Clinical trial | 2 | Supportive care trial | 3 | Other research | 7 | Not applicable - Not enrolled in any research trial/study | 8 | Unknown - Research enrolment unknown | 9 | Not stated/inadequately described - Enrolled in research, but type not stated/ inadequately described |
| DSS specific information: This item should be recorded for clinical trials relating to the initial course of treatment and clinical trials relating to the first recurrence of cancer where applicable. |
37 | Clinical trial name and number | String
[400]
| X[X(399)] A combination of alphanumeric characters. | Conditional obligation: Complete when Person with cancer—research trial type, code N equals 'clinical trial'.DSS specific information: This item should be recorded for clinical trials relating to the initial course of treatment and clinical trials relating to the first recurrence of cancer where applicable. |
38 | Clinical trial phase | Number
[1]
| 1 | Phase I | 2 | Phase II | 3 | Phase III | 4 | Phase IV | 9 | Unknown |
| Conditional obligation: Complete when Person with cancer—research trial type, code N equals 'clinical trial'.DSS specific information: This item should be recorded for clinical trials relating to the initial course of treatment and clinical trials relating to the first recurrence of cancer where applicable. |
39 | Clinical trial funding basis | Number
[1]
| 1 | Academic | 2 | Industry | 3 | Both academic and industry | 7 | Not applicable, no clinical trial entered | 8 | Unknown | 9 | Clinical trial entered but funding not stated/inadequately described |
| Conditional obligation: Complete when Person with cancer—research trial type, code N equals 'clinical trial'.DSS specific information: This item should be recorded for applicable trials relating to the initial course of treatment or the first recurrence of cancer. |
40 | Supportive care trial name | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | Conditional obligation: Complete when Person with cancer—research trial type, code N equals 'supportive care trial'.DSS specific information: This item should be recorded for applicable trials relating to the initial course of treatment or the first recurrence of cancer. |
41 | Research enrolment name | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | Conditional obligation: Complete when Person with cancer—research trial type, code N equals 'other research'.DSS specific information: This item should be recorded for research studies that relate to the initial course or first recurrence of cancer. |
42 | Intention of treatment | Number
[1]
| 1 | Prophylactic | 2 | Curative | 3 | Palliative | 9 | Not stated/inadequately described |
| |
43 | Referral to palliative care services indicator | Number
[1]
| | |
44 | Date of referral to palliative care services | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Complete if Person with cancer—referral to palliative care services indicator, yes/no/unknown code N equals 'yes'. |
45 | External beam radiotherapy type | Number
[2]
| 1 | 2 dimensional (2D) | 2 | 2.5 dimensional (2.5D) | 3 | 3 dimensional conformal radiation therapy (3DCRT) | 4 | Intensity-modulated radiation therapy (IMRT) | 5 | Image-guided radiation therapy (IGRT) | 97 | Not applicable-radiotherapy was not administered | 98 | Unknown whether radiotherapy was administered | 99 | Radiotherapy was administered but planning technique not stated/inadequately described |
| Conditional obligation: Collect this data element if Cancer treatment—radiotherapy treatment type, code N[N] indicates the use of external beam radiotherapy. |
46 | Brachytherapy dose rate | Number
[1]
| 1 | Low dose rate (LDR) | 2 | Medium dose rate (MDR) | 3 | High dose rate (HDR) | 4 | Pulsed dose rate (PDR) | 7 | Not applicable, no brachytherapy administered | 8 | Unknown whether brachytherapy administered | 9 | Brachytherapy administered but dose not available/inadequately specified |
| Conditional obligation: Complete this item if Cancer treatment—radiotherapy treatment type, code N[N] indicates the use of brachytherapy.DSS specific information: This is to be collected for the intial course of treatment. |
47 | Date of treatment outcome | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | DSS specific information: Collect this item for outcome of treatment relating to the initial cancer primary and the outcome of treatment relating to the first recurrence of cancer. |
48 | Immediate/short-term treatment complication indicator | Number
[1]
| 1 | Yes | 2 | No | 7 | Not applicable | 8 | Unknown | 9 | Not stated/inadequately described |
| Conditional obligation: Record this data element in relation to any immediate or short-term treatment complications that were experienced by the patient during medical treatment. This includes adverse events taking place within 30 days of treatment. |
49 | Treatment complication date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Complete if Patient—treatment complication indicator, yes/no/not applicable/unknown/not stated/inadequately described code N equals 'yes'.DSS specific information: Record this data element for any immediate or short-term treatment complications that were experienced by the patient during medical treatment. This includes any adverse events taking place within 30 days of treatment. |
50 | Treatment complication outcome | Number
[1]
| 1 | Adverse events/toxicities that limited the treatment dose | 2 | Adverse events/toxicities that delayed treatment | 3 | Adverse events/toxicities that adversely affected performance status post treatment | 8 | Unknown | 9 | Adverse events/toxicities but they are inadequately described |
| Conditional obligation: Complete if Patient—treatment complication indicator, yes/no/not applicable/unknown/not stated/inadequately described code N equals 'yes'.DSS specific information: Record this data element for any immediate or short-term treatment complications that were experienced by the patient during medical treatment. This includes any adverse events taking place within 30 days of treatment. |
51 | Treatment complication description | String
[150]
| X[X(149)] A combination of alphanumeric characters. | Conditional obligation: Complete if Patient—treatment complication indicator, yes/no/not applicable/unknown/not stated/inadequately described code N equals 'yes'. |
52 | Adverse event indicator | Boolean
[1]
| | |
53 | Date of adverse event | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Collect this item if Patient—adverse event indicator, yes/no code N equals 'yes'. |
54 | Adverse event grade | Number
[1]
| 1 | Grade 1 | 2 | Grade 2 | 3 | Grade 3 | 4 | Grade 4 | 5 | Grade 5 | 7 | Not applicable, no adverse events | 8 | Unknown | 9 | Adverse event, but grade inadequately specified |
| Conditional obligation: Complete if Patient—adverse event indicator, yes/no code N equals 'yes'. |
55 | Cancer treatment type | Number
[2]
| 1 | Surgery only | 2 | Radiotherapy only | 3 | Systemic agent therapy only | 4 | Surgery and radiotherapy | 5 | Surgery and systemic agent therapy | 6 | Radiotherapy and systemic agent therapy | 7 | Surgery, radiotherapy and systemic agent therapy | 97 | Not applicable—treatment was not administered | 98 | Unknown whether treatment was administered | 99 | Treatment was administered but the type was not stated/inadequately described |
| Conditional obligation: Complete when there is a first recurrence of cancer.DSS specific information: Complete this in relation to treatment for a first recurrence of cancer. |
56 | Other cancer treatment description | String
[150]
| X[X(149)] The cancer-directed treatment administered to the patient that cannot be defined as surgery, radiotherapy or systemic therapy. | Conditional obligation: Complete when there is a first recurrence of cancer.DSS specific information: Complete this in relation to treatment for a first recurrence of cancer. |
57 | Late effect indicator | Number
[1]
| 1 | Yes | 2 | No | 8 | Unknown | 9 | Not stated/inadequately described |
| |
58 | Date of late effect | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Complete when Person with cancer—late effects indicator, yes/no/unknown/not stated/inadequately described code N equals 'yes'. |
59 | Late effect type text | String
[400]
| X[X(399)] A combination of alphanumeric characters. | Conditional obligation: Complete when Person with cancer—late effects indicator, yes/no/unknown/not stated/inadequately described code N equals 'yes'. |
60 | Distress status in past week | Number
[2]
| N[N] A code set representing the values on the distress thermometer. | DSS specific information: It is recommended that this item is collected within 2 weeks of diagnosis, 6-8 weeks post diagnosis, and 6 months post diagnosis. Any further screening should take place at the clinician’s discretion or the patient’s request. At a minimum, this should occur at remission, recurrence, or progression. For more information regarding the use of the distress thermometer with Adolescent and Young Adults with cancer, please consult the Psychosocial Management of AYAs diagnosed with cancer: Guidance for health professionals (http://wiki.cancer.org.au/australia/ COSA:Psychosocial_management_of_AYA_cancer_patients/ Information_and_resources). |
999 | Cancer (clinical) DSS |
|
| |
- | Chemotherapy for cancer cluster |
|
| Conditional obligation: Conditional on patient receiving chemotherapy. |
- | Chemotherapy completion date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Chemotherapy cycles administered | Number
[3]
| 997 | Not applicable-no chemotherapy was administered | 998 | Unknown whether chemotherapy was administered | 999 | Chemotherapy was administered but the number of cycles was not stated/inadequately described |
| |
- | Chemotherapy start date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Systemic therapy agent or protocol, eviQ | String
[6]
| NNNNNN The eviQ protocol identifier for the systemic therapy agent protocol. | Conditional obligation: Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website. |
- | Systemic therapy agent or protocol | String
[150]
| X[X(149)] A combination of alphanumeric characters. | |
- | Hormone therapy for cancer cluster |
|
| Conditional obligation: Conditional on patient receiving hormone therapy. |
- | Hormone therapy completion date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Hormone therapy start date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Systemic therapy agent or protocol, eviQ | String
[6]
| NNNNNN The eviQ protocol identifier for the systemic therapy agent protocol. | Conditional obligation: Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website. |
- | Systemic therapy agent or protocol | String
[150]
| X[X(149)] A combination of alphanumeric characters. | |
- | Immunotherapy for cancer cluster |
|
| Conditional obligation: Conditional on patient receiving immunotherapy. |
- | Immunotherapy completion date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Immunotherapy start date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Systemic therapy agent or protocol, eviQ | String
[6]
| NNNNNN The eviQ protocol identifier for the systemic therapy agent protocol. | Conditional obligation: Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website. |
- | Systemic therapy agent or protocol | String
[150]
| X[X(149)] A combination of alphanumeric characters. | |
- | Radiotherapy for cancer cluster |
|
| Conditional obligation: Conditional on the patient receiving radiotherapy. |
- | Radiation dose administered | Number
[5]
| 999.97 | Not applicable-radiotherapy was not administered | 999.98 | Unknown whether radiotherapy was administered | 999.99 | Radiotherapy was administered but the dose is not stated/inadequately described |
| |
- | Radiotherapy completion date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Radiotherapy fractions administered | Number
[2]
| 97 | Not applicable-no radiotherapy was administered | 98 | Unknown whether radiotherapy was administered | 99 | Radiotherapy administered but the number of fractions not stated/inadequately described |
| |
- | Radiotherapy start date—cancer treatment | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Radiotherapy target site | Number
[2]
| 1 | Primary site only | 2 | Regional nodes only | 3 | Distant metastases only | 4 | Primary site and regional nodes | 5 | Primary site and distant metastases | 6 | Primary site, regional nodes and distant metastases | 7 | Regional nodes and distant metastases | 97 | Not applicable-radiotherapy was not administered | 98 | Unknown whether radiotherapy was administered | 99 | Radiotherapy was administered but the site not stated/inadequately described |
| |
- | Radiotherapy treatment type | Number
[2]
| 1 | External beam radiotherapy only | 2 | Brachytherapy only | 3 | Unsealed radioisotopes only | 4 | External beam radiotherapy and brachytherapy | 5 | External beam radiotherapy and unsealed radioisotopes | 6 | Brachytherapy and unsealed radioisotopes | 7 | External beam radiotherapy, brachytherapy and unsealed radioisotopes | 97 | Not applicable-radiotherapy was not administered | 98 | Unknown whether radiotherapy was administered | 99 | Radiotherapy was administered but the treatment type not stated/inadequately described |
| |
- | Surgery for cancer cluster |
|
| Conditional obligation: Conditional on the patient receiving cancer-directed surgery. |
- | Surgery target site | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | |
- | Surgical procedure date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Surgical procedure for cancer | Number
[7]
| NNNNN-NN The Australian Classification of Health Intervention (8th edition) code set representing procedures. | |
- | Systemic therapy procedure for cancer cluster |
|
| Conditional obligation: Conditional on the patient receiving a systemic therapy procedure. |
- | Systemic therapy procedure date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Systemic therapy procedure | Number
[2]
| 1 | A bone marrow transplant procedure was administered but the type was not specified | 2 | Bone marrow transplant—autologous only | 3 | Bone marrow transplant—allogeneic only | 4 | Stem cell harvest and infusion only | 5 | Endocrine surgery and/or endocrine radiation therapy only | 6 | Combination of endocrine surgery and/or radiation with a transplant procedure | 96 | Other systemic therapy procedure | 97 | Not applicable-no systemic therapy procedures were administered | 98 | Unknown whether systemic therapy procedures were administered | 99 | Systemic therapy procedures were administered but were not stated/inadequately described |
| |
- | Cancer staging scheme source edition number | Number
[2]
| 97 | Not applicable | 98 | Unknown | 99 | Not stated/inadequately described |
| |
- | Staging scheme source | Number
[2]
| 1 | TNM Classification of Malignant Tumours (UICC) | 2 | Durie & Salmon for multiple myeloma staging | 3 | French-American-British (FAB) for leukaemia classification | 4 | Australian Clinico-Pathological Staging (ACPS) System for colorectal cancer | 5 | International Federation of Gynecologists & Obstetricians (FIGO) for gynaecological cancers | 6 | Dukes/Modified Dukes for colorectal cancer | 7 | Ann Arbor staging system for lymphomas | 8 | Binet Staging Classification for chronic lymphocytic leukaemia | 9 | Rai staging system for chronic lymphocytic leukaemia | 10 | Chronic Myeloid Leukaemia (CML) staging system | 11 | International Staging System (ISS) for myeloma | 12 | American Joint Committee on Cancer (AJCC) Cancer Staging Manual | 96 | Other reference | 97 | Not applicable | 98 | Unknown | 99 | Not stated/inadequately described |
| |
- | Staging basis of cancer | String
[1]
| | |
- | Cancer treatment type | Number
[2]
| 1 | Surgery only | 2 | Radiotherapy only | 3 | Systemic agent therapy only | 4 | Surgery and radiotherapy | 5 | Surgery and systemic agent therapy | 6 | Radiotherapy and systemic agent therapy | 7 | Surgery, radiotherapy and systemic agent therapy | 97 | Not applicable—treatment was not administered | 98 | Unknown whether treatment was administered | 99 | Treatment was administered but the type was not stated/inadequately described |
| |
- | Other cancer treatment description | String
[150]
| X[X(149)] The cancer-directed treatment administered to the patient that cannot be defined as surgery, radiotherapy or systemic therapy. | Conditional obligation: Conditional on the patient having treatment that cannot be defined as surgery, radiotherapy or systemic therapy according to the definitions of those data items in this data set specification. |
- | Outcome of treatment | Number
[2]
| 1.0 | Complete response/no evidence of disease | 2.1 | Partial response | 2.2 | Stable or static disease | 2.3 | Progressive disease | 7.0 | Not assessed or unable to be assessed | 8.0 | Unknown | 9.0 | Not stated/inadequately described |
| |
- | Date accuracy indicator | String
[3]
| AAA | Day, month and year are accurate | AAE | Day and month are accurate, year is estimated | AAU | Day and month are accurate, year is unknown | AEA | Day is accurate, month is estimated, year is accurate | AEE | Day is accurate, month and year are estimated | AEU | Day is accurate, month is estimated, year is unknown | AUA | Day is accurate, month is unknown, year is accurate | AUE | Day is accurate, month is unknown, year is estimated | AUU | Day is accurate, month and year are unknown | EAA | Day is estimated, month and year are accurate | EAE | Day is estimated, month is accurate, year is estimated | EAU | Day is estimated, month is accurate, year is unknown | EEA | Day and month are estimated, year is accurate | EEE | Day, month and year are estimated | EEU | Day and month are estimated, year is unknown | EUA | Day is estimated, month is unknown, year is accurate | EUE | Day is estimated, month is unknown, year is estimated | EUU | Day is estimated, month and year are unknown | UAA | Day is unknown, month and year are accurate | UAE | Day is unknown, month is accurate, year is estimated | UAU | Day is unknown, month is accurate, year is unknown | UEA | Day is unknown, month is estimated, year is accurate | UEE | Day is unknown, month and year are estimated | UEU | Day is unknown, month is estimated, year is unknown | UUA | Day and month are unknown, year is accurate | UUE | Day and month are unknown, year is estimated | UUU | Day, month and year are unknown |
| |
- | Establishment number | Number
[5]
| NNNNN A combination of numeric characters that identify an entity. | |
- | HPI-O | Number
[16]
| N(16) A unique combination of numbers that identifies an individual or organisation where healthcare is provided within Australia. | |
- | Cancer status | Number
[1]
| 1 | No evidence of cancer | 2 | Evidence of cancer | 8 | Unknown whether there is evidence of cancer | 9 | Not stated/inadequately described |
| |
- | Date of last contact—cancer patient | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Date of diagnosis of cancer | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Date of diagnosis of first recurrence as distant metastasis | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Conditional on the patient being diagnosed with recurrence involving a distant metastasis. |
- | Date of diagnosis of first recurrence as locoregional cancer | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Conditional on the patient being diagnosed with recurrence of locoregional cancer. |
- | Address line (person) | String
[180]
| X[X(179)]
A combination of alphanumeric characters. | |
- | Family name | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | |
- | Given name(s) | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | |
- | Cancer staging—M stage code | String
[3]
| 997 | Not applicable | 998 | Unknown | 999 | Not stated/inadequately described |
| |
- | Cancer staging—stage grouping other | String
[6]
| 999997 | Not applicable | 999998 | Unknown | 999999 | Not stated/inadequately described |
| |
- | Cancer staging—TNM stage grouping code | String
[3]
| 997 | Not applicable | 998 | Unknown | 999 | Not stated/inadequately described |
| |
- | Histopathological grade | Number
[1]
| 1 | Grade 1: Low grade; well differentiated, differentiated, NOS | 2 | Grade 2: Intermediate grade, moderately differentiated, moderately well differentiated, intermediate differentiation | 3 | Grade 3: High grade, poorly differentiated | 4 | Grade 4: Undifferentiated, anaplastic | 9 | Grade or differentiation not determined, not stated or not applicable |
| |
- | Laterality of primary cancer | String
[1]
| R | Right | L | Left | B | Bilateral | N | Not applicable | U | Unknown |
| |
- | Morphology of cancer | Number
[5]
| NNNN/N The ICD-O (3rd edition) code set representing the histology and behaviour of cancer tissue. | |
- | Most valid basis of diagnosis of cancer | Number
[1]
| 0 | Death certificate only: Information provided is from a death certificate | 1 | Clinical: Diagnosis made before death, but without any of the following (codes 2-7) | 2 | Clinical investigation: All diagnostic techniques, including x-ray, endoscopy, imaging, ultrasound, exploratory surgery (e.g. laparotomy), and autopsy, without a tissue diagnosis | 4 | Specific tumour markers: Including biochemical and/or immunological markers that are specific for a tumour site | 5 | Cytology: Examination of cells from a primary or secondary site, including fluids aspirated by endoscopy or needle; also includes the microscopic examination of peripheral blood and bone marrow aspirates | 6 | Histology of metastasis: Histological examination of tissue from a metastasis, including autopsy specimens | 7 | Histology of a primary tumour: Histological examination of tissue from primary tumour, however obtained, including all cutting techniques and bone marrow biopsies; also includes autopsy specimens of primary tumour | 8 | Histology: either unknown whether of primary or metastatic site, or not otherwise specified | 9 | Unknown. |
| |
- | Most valid basis of diagnosis of recurrence | Number
[1]
| 0 | Death certificate only: Information provided is from a death certificate | 1 | Clinical: Diagnosis made before death, but without any of the following (codes 2-7) | 2 | Clinical investigation: All diagnostic techniques, including x-ray, endoscopy, imaging, ultrasound, exploratory surgery (e.g. laparotomy), and autopsy, without a tissue diagnosis | 4 | Specific tumour markers: Including biochemical and/or immunological markers that are specific for a tumour site | 5 | Cytology: Examination of cells from a primary or secondary site, including fluids aspirated by endoscopy or needle; also includes the microscopic examination of peripheral blood and bone marrow aspirates | 6 | Histology of metastasis: Histological examination of tissue from a metastasis, including autopsy specimens | 7 | Histology of a primary tumour: Histological examination of tissue from primary tumour, however obtained, including all cutting techniques and bone marrow biopsies; also includes autopsy specimens of primary tumour | 8 | Histology: either unknown whether of primary or metastatic site, or not otherwise specified | 9 | Unknown. |
| Conditional obligation: Conditional on the return, reappearance or metastasis of cancer of the same histology after a disease-free intermission or remission. |
- | Regional lymph nodes positive | Number
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: Conditional on the regional lymph nodes being excised and examined by a pathologist and demonstrated to be positive for malignancy. |
- | Number of regional lymph nodes examined | Number
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: Conditional on the regional lymph nodes being excised and examined by a pathologist. |
- | Primary site of cancer (ICD-O-3 code) | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | |
- | Cancer staging—T stage code | String
[4]
| 9997 | Not applicable | 9998 | Unknown | 9999 | Not stated/inadequately described |
| |
- | Region of first recurrence as distant metastasis | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | Conditional obligation: Conditional on the patient being diagnosed with recurrence of distant metastasis. |
- | Region of first recurrence as locoregional cancer | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | Conditional obligation: Conditional on the patient being diagnosed with recurrence of locoregional cancer. |
- | Cancer staging—N stage code | String
[3]
| 997 | Not applicable | 998 | Unknown | 999 | Not stated/inadequately described |
| |
- | Tumour size at diagnosis (solid tumours) | String
[3]
| | Conditional obligation: Conditional on the histopathological examination of the tumour, and excludes Phyllodes tumours, sarcomas or lymphomas. |
- | Date of birth | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Date of death | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Recorded when the patient has died.DSS specific information: This field must be greater than or equal to Date of diagnosis of primary cancer. |
- | Medicare card number | Number
[11]
| N(11) A combination of numeric characters that uniquely identify a Medicare customer. | |
- | Indigenous status | Number
[1]
| 1 | Aboriginal but not Torres Strait Islander origin | 2 | Torres Strait Islander but not Aboriginal origin | 3 | Both Aboriginal and Torres Strait Islander origin | 4 | Neither Aboriginal nor Torres Strait Islander origin | 9 | Not stated/inadequately described |
| |
- | Person identifier | String
[20]
| XXXXXX[X(14)]
A logical combination of valid alphanumeric characters that identify an entity. | |
- | Sex | Number
[1]
| 1 | Male | 2 | Female | 3 | Intersex or indeterminate | 9 | Not stated/inadequately described |
| |
- | Underlying cause of death | String
[7]
| ANN-ANN
The ICD-10 code set representing the disease or injury which initiated the train of morbid events leading directly to death or the circumstances of the accident or violence which produced the fatal injury (WHO 2004). | Conditional obligation: Recorded when the patient has died. |