National Bowel Cancer Screening Program NBEDS 2019–20

Identifying and definitional attributes
Metadata item type:	Data Set Specification
METEOR identifier:	707481
Registration status:	Health, Superseded 16/01/2020
DSS type:	Data Set Specification (DSS)
Scope:	The National Bowel Cancer Screening Program National Best Endeavours Data Set (NBCSP NBEDS) comprises a set of standardised data definitions used for monitoring the National Bowel Cancer Screening Program. This NBEDS includes information on people who have or will be participating in the National Bowel Cancer Screening Program. This metadata set is not mandated for collection, i.e. it reflects best practice when collecting data in relation to bowel screening rather than a nationally mandated set of data that must be provided. It is intended to be used by the National Bowel Cancer Screening Register. It can also be used by a wider range of health and health-related professionals who collect and/or use the data in relation to the National Bowel Cancer Screening Program. It provides concise, unambiguous definitions for items related to the Program and aims to ensure the standardised methodology of data collection. The data set covers data in the following areas: Demographic data of participants Bowel cancer screening tests (such as the faecal occult blood test) Bowel cancer diagnostic assessments (such as colonoscopy examinations and histopathological analyses on colorectal cancers and colorectal polyps). General Practitioner consultations are not included at this stage.

Collection and usage attributes

Statistical unit:

People who have or will be participating in Bowel cancer screening programs.

Collection methods:

Data are collected by participants of the National Bowel Cancer Screening Program, pathologists who analyse participants' samples for the faecal occult blood test (FOBT), general practitioners (GPs) with whom participants consult for the screening related reasons, colonoscopists who conduct colonoscopies on the participants, histopathologists who analyse specimens of abnormal growths such as suspected colorectal cancer or colorectal polyps from the participants. The data are then forwarded to the National Bowel Cancer Screening Program Register.

The Register also collects data on its routine operation.

The Register provides data to the Australian Institute of Health and Welfare for data analyses and reporting purposes.

Implementation start date:

01/07/2019

Implementation end date:

30/06/2020

Comments:

Glossary items

Glossary terms that are relevant to this data set are included here:

Adoption

Adverse event

Bowel cancer

Cancer diagnostic assessment

Cancer screening

Colorectal cancer clinico-pathological stage

Colorectal polyps

Disability

Disease screening

Faecal occult blood test (FOBT)

Family

Geographic indicator

Hospital-in-the-home care

Record linkage

Separation

Urban Centre and Locality

Source and reference attributes

Submitting organisation:

Australian Institute of Health and Welfare

Relational attributes

Related metadata references:

Metadata items in this Data Set Specification

Show more detail

Seq No.	Metadata item	Obligation	Max occurs
1	Person—person identifier, X[X(19)]	Mandatory	1
2	Correspondence—correspondence identifier, N[N(8)] *DSS specific information:* People can have multiple interactions with the National Bowel Cancer Screening Program (NBCSP) system and will have a different correspondence number for each interaction. For example, a person will have a correspondence identifier for a screening invitation, a faecal occult blood test (FOBT), a general practitioner consultation and a colonoscopy.	Mandatory	99
3	Person—given name, text X[X(39)]	Mandatory	1
4	Person—given name sequence number, code N[N]	Mandatory	1
5	Person—family name, text X[X(39)]	Mandatory	1
6	Person—sex, code X	Mandatory	1
7	Person—date of birth, DDMMYYYY	Mandatory	1
8	Person—age, total years N[NN]	Mandatory	1
9	Person—Indigenous status, code N	Mandatory	1
10	Person—main language other than English spoken at home, code (ASCL 2016) N[NNN]	Mandatory	1
11	Person—disability status, yes/no/not stated/inadequately described code N	Mandatory	1
12	Person—Australian state/territory identifier, code N *DSS specific information:* This is the state in which the person lives.	Mandatory	1
13	Address—Australian postcode, code (Postcode datafile) NNNN	Mandatory	1
14	Person—geographic remoteness, classification (ASGS-RA) N	Mandatory	1
15	Person—area of usual residence, statistical area level 1 (SA1) code (ASGS 2016) N(11) *DSS specific information:* To accurately report SEIFA information, sufficient geographic information needs to be reported. For the NBCSP, the data element Person—area of usual residence, statistical area level 1 (SA1) code (ASGS 2011) N(11) needs to be provided.	Mandatory	1
16	Person—disease screening program invitation date, DDMMYYYY	Mandatory	1
17	Person—disease screening invitation round count, total number N[N]	Mandatory	1
18	Person—first disease screening program participation indicator, yes/no code N	Mandatory	1
19	Person—participation in previous biennial screening program indicator, yes/no code N *Conditional obligation:* Reporting of this data element is conditional upon answering 'No' to the Person—first disease screening program participation indicator, yes/no code N data element.	Conditional	1
20	Person—opted off from a disease screening program indicator, yes/no code N *DSS specific information:* Invitees who do not wish to participate in the National Bowel Cancer Screening Program now or in the future may opt off the Program. Invitees will not be contacted again. Invitees may elect to opt back on at a later date.	Mandatory	1
21	Person—reason for opting off a disease screening program, code N *Conditional obligation:* Reporting of this data element is conditional upon answering 'Yes' to the Person—opted off from a disease screening program indicator, yes/no code N data element.	Conditional	1
22	Person—opted off from a disease screening program date, DDMMYYYY *Conditional obligation:* Reporting of this data element is conditional upon answering 'Yes' to the Person—opted off from a disease screening program indicator, yes/no code N data element.	Conditional	1
23	Person—suspended participation from a disease screening program indicator, yes/no code N *DSS specific information:* Invitees who would like to participate in the National Bowel Cancer Screening Program but are unable to do so at this time. Invitees will be contacted once the nominated suspension period has elapsed.	Mandatory	1
24	Person—reason for suspending disease screening participation, code N *Conditional obligation:* Reporting of this data element is conditional upon answering 'Yes' to the Person—suspended participation from a disease screening program indicator, yes/no code N data element.	Conditional	1
25	Person—suspended participation from a disease screening program date, DDMMYYYY *Conditional obligation:* Reporting of this data element is conditional upon answering 'Yes' to the Person—suspended participation from a disease screening program indicator, yes/no code N data element.	Conditional	1
26	Person—cancer screening test indicator, yes/no code N	Mandatory	1
27	Bowel cancer screening test cluster *Conditional obligation:* Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer screening test indicator, yes/no code N data element.	Conditional	1
28	Person—cancer diagnostic assessment indicator, yes/no code N *DSS specific information:* Participants with a positive faecal occult blood test (FOBT) result, indicating blood in their bowel motion, are advised to consult their primary health care practitioner to discuss further testing.	Mandatory	1
29	Bowel cancer diagnostic assessment cluster *Conditional obligation:* Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer diagnostic assessment indicator, yes/no code N data element.	Conditional	1
30	Bowel cancer diagnosed cluster *Conditional obligation:* Reporting of the data elements in this cluster is conditional upon people who have or will be participating in Bowel cancer screening programs answering 'Yes' to the Person—cancer diagnosed indicator, yes/no code N data element.	Conditional	1
31	Person—date of death, DDMMYYYY *Conditional obligation:* Only to be answered if the person has died.	Conditional	1
32	Person—underlying cause of death, code (ICD-10 2nd edn) ANN-ANN *Conditional obligation:* Only to be answered if the person has died.	Conditional	1

National Bowel Cancer Screening Program NBEDS 2019–20

Identifying and definitional attributes

Collection and usage attributes

Source and reference attributes

Relational attributes

Metadata items in this Data Set Specification

<Title>