1 Person—person identifier, X[X(19)] Mandatory 1 2 Correspondence—correspondence identifier, N[N(8)] DSS specific information:
People can have multiple interactions with the National Bowel Cancer Screening Program (NBCSP) system and will have a different correspondence number for each interaction. For example, a person will have a correspondence identifier for a screening invitation, a faecal occult blood test (FOBT), a general practitioner consultation and a colonoscopy.
Mandatory 99 3 Person (name)—given name, text X[X(39)] Mandatory 1 4 Person (name)—given name sequence number, code N Mandatory 1 5 Person (name)—family name, text X[X(39)] Mandatory 1 6 Person—sex, code N Mandatory 1 7 Person—date of birth, DDMMYYYY Mandatory 1 8 Person—age, total years N[NN] Mandatory 1 9 Person—Indigenous status, code N Mandatory 1 10 Person—main language other than English spoken at home, code (ASCL 2011) NN{NN} Mandatory 1 11 Person—disability status, code N Mandatory 1 12 Person—Australian state/territory identifier, code N DSS specific information:
This is the state in which the person lives.
Mandatory 1 13 Address—Australian postcode, Australian postcode code (Postcode datafile) {NNNN} Mandatory 1 14 Person—geographic remoteness, classification (ASGS-RA) N Mandatory 1 15
Cluster Socio-Economic Indexes for Areas (SEIFA) (2011 Census, ASGS 2011) cluster DSS specific information:
To accurately report SEIFA information, sufficient geographic information needs to be reported. For the NBCSP, the data element Address—statistical area, level 1 (SA1) code (ASGS 2011) N(11) needs to be provided.
Currently, the NBCSP does not collect information on either the Person—area of usual residence, geographical location code (ASGC 2011) NNNNN data element or the Person—area of usual residence, statistical area level 2 (SA2) code (ASGS 2011) N(9) data element.
Mandatory 1 -
Cluster Collection of locality, postcode and state/territory for SEIFA cluster Optional 1 - Address—Australian postcode, Australian postcode code (Postcode datafile) {NNNN} Mandatory 1 - Address—Australian state/territory identifier, code AA[A] Mandatory 1 - Address—suburb/town/locality name, text X[X(45)] Mandatory 1 - Address—statistical area, level 1 (SA1) code (ASGS 2011) N(11) Optional 1 - Person—area of usual residence, geographical location code (ASGC 2011) NNNNN Optional 1 - Person—area of usual residence, statistical area level 1 (SA1) code (ASGS 2011) N(11) Optional 1 - Person—area of usual residence, statistical area level 2 (SA2) code (ASGS 2011) N(9) Optional 1 16 Person—disease screening program invitation date, DDMMYYYY Mandatory 1 17 Person—disease screening invitation round count, total number N[N] Mandatory 1 18 Person—first disease screening program participation indicator, yes/no code N Mandatory 1 19 Person—participation in previous biennial screening program indicator, yes/no code N Conditional obligation:
Reporting of this data element is conditional upon answering 'No' to the Person—first disease screening program participation indicator, yes/no code N data element.
Conditional 1 20 Person—opted off from a disease screening program indicator, yes/no code N DSS specific information:
Invitees who do not wish to participate in the National Bowel Cancer Screening Program now or in the future may opt off the Program. Invitees will not be contacted again. Invitees may elect to opt back on at a later date.
Mandatory 1 21 Person—reason for opting off a disease screening program, code N Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Person—opted off from a disease screening program indicator, yes/no code N data element.
Conditional 1 22 Person—opted off from a disease screening program date, DDMMYYYY Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Person—opted off from a disease screening program indicator, yes/no code N data element.
Conditional 1 23 Person—suspended participation from a disease screening program indicator, yes/no code N DSS specific information:
Invitees who would like to participate in the National Bowel Cancer Screening Program but are unable to do so at this time. Invitees will be contacted once the nominated suspension period has elapsed.
Mandatory 1 24 Person—reason for suspending disease screening participation, code N Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Person—suspended participation from a disease screening program indicator, yes/no code N data element.
Conditional 1 25 Person—suspended participation from a disease screening program date, DDMMYYYY Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Person—suspended participation from a disease screening program indicator, yes/no code N data element.
Conditional 1 26 Person—cancer screening test indicator, yes/no code N Mandatory 1 27
Cluster Bowel cancer screening test cluster Conditional obligation:
Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer screening test indicator, yes/no code N data element.
Conditional 1 1 Person—cancer screening test type, bowel cancer code N Mandatory 1 2 Person—disease screening test completion status, bowel screening code N Mandatory 1 3 Person—disease screening test analysis date, DDMMYYYY Mandatory 1 4 Person—disease screening test results sent date, DDMMYYYY Mandatory 1 5 Person—cancer screening test result, bowel cancer code N[A] DSS specific information:
A faecal occult blood test
positive if blood was detected in either sample negative if blood was not detected in either sample inconclusive if only one sample was taken and it was negative no result if screening test could not be analysed. Other screening tests, when they become available, may have different indications for positive results. However, a positive result with any screening test is one that means further investigations are required.
Participants with a positive result are encouraged to visit their primary health care professional to follow up this finding. Those with an inconclusive result are requested to complete another FOBT kit, while those with a negative result are reminded that it is recommended they rescreen every two years.
At this stage, the screening pathway does not account for false negatives or positives.
Mandatory 1 28 Person—cancer diagnostic assessment indicator, yes/no code N DSS specific information:
Participants with a positive faecal occult blood test (FOBT) result, indicating blood in their bowel motion, are advised to consult their primary health care practitioner to discuss further testing.
Mandatory 1 29
Cluster Bowel cancer diagnostic assessment cluster Conditional obligation:
Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer diagnostic assessment indicator, yes/no code N data element.
Conditional 1 1 Patient—cancer diagnostic assessment date, DDMMYYYY Mandatory 2 2 Patient—cancer diagnostic assessment type, bowel cancer code N Mandatory 1 3 Establishment—Australian state/territory identifier, code N DSS specific information:
This is the state in which a bowel cancer diagnostic assessment occurs. This can be different to the person's state or territory of usual residence, e.g. a person living in Queanbeyan (in NSW) may undergo a diagnostic assessment in Canberra, i.e. in the ACT.
Mandatory 1 4 Patient—colonoscope withdrawal time, total minutes NNN Conditional obligation:
Reporting of this data element is conditional upon answering 'Colonoscopy' to the Person—cancer diagnostic assessment type, bowel cancer code N data element.Conditional 1 5 Patient—colonoscope depth, anatomical site within the bowel code XX[XX] Conditional obligation:
Reporting of this data element is conditional upon answering 'Colonoscopy' to the Person—cancer diagnostic assessment type, bowel cancer code N data element.Conditional 1 6 Patient—election status, code N Mandatory 1 7 Patient—sedation received indicator, yes/no code N DSS specific information:
The level of sedation used should comply with ANZCA standards (ANZCA 2010). The level of sedation used should generally be related to the risk of complications for each individual patient as documented in the pre-procedure patient assessment. Further, deep sedation and general anaesthesia may only be used in the presence of an anaesthetist or other appropriately trained and credentialed medical specialist within his/her scope of practice. Non‑anaesthetist medical staff require adequate training in the safe and correct usage of sedation equipment and drugs, and in the management and monitoring of sedated patients in accordance with the guidelines.
Reference:
ANZCA (Australian and New Zealand College of Anaesthetists) 2010. Guidelines on Sedation and/or Analgesia for Diagnostic and Interventional Medical, Dental or Surgical Procedures. Viewed 23 March 2012,
www.anzca.edu.au/resources/professional-documents/documents/
Mandatory 1 8 Patient—sedation type, code N Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Patient—sedation received indicator, yes/no code N data element.Conditional 1 9 Patient—type of health professional who administers sedation, bowel cancer diagnostic assessment code N Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Patient—sedation recieved indicator, yes/no code N data element.Conditional 1 10 Patient—colorectal polyps found in colon indicator, yes/no code N Mandatory 1 11 Patient—number of colorectal polyps found, number N[NN] Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Patient—colorectal polyps found in colon indicator, yes/no code N data element.
DSS specific information:
There could be multiple polyps listed if multiple polyps are found during an assessment. Conditional 1 12 Patient—colorectal polyps greater than or equal to 10 mm indicator, Yes/no code N Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Patient—colorectal polyps found in colon indicator, yes/no code N data element.DSS specific information:
There could be multiple polyps listed if multiple polyps are found during an assessment. Conditional 5 13 Patient—anatomical site of colorectal polyps, code XX[XX] Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Patient—colorectal polyps found in colon indicator, yes/no code N data element.DSS specific information:
There could be multiple polyps listed if multiple polyps are found during an assessment. Conditional 5 14 Patient—colorectal polyp type, code N[N] Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Patient—colorectal polyps found in colon indicator, yes/no code N data element.DSS specific information:
There could be multiple polyps listed if multiple polyps are found during an assessment. Conditional 5 15 Patient—grade of colorectal polyps found, code N Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Person—colorectal polyps found in colon, yes/no code N data element.DSS specific information:
There could be multiple polyps listed if multiple polyps are found during an assessment. Conditional 5 16 Patient—adverse event indicator, yes/no code N DSS specific information:
There is the risk of an adverse event occurring during a cancer diagnostic assessment. Monitoring of adverse events through the NBCSP is important to ensure participant safety in the Program.
Mandatory 1 17 Patient—type of adverse event, bowel cancer diagnostic assessment adverse event code N[N] Conditional obligation:
Reporting of this data element is conditional upon answering 'Yes' to the Person—adverse event indicator, yes/no code N data element.DSS specific information:
In this data element cluster, Code 32 is used to represent Code 88, Other.Conditional 1 18 Patient—cancer status, code N DSS specific information:
Codes 8 and 9 are not used in the Bowel cancer diagnostic assessment cluster.Mandatory 1 30
Cluster Bowel cancer diagnosed cluster Conditional obligation:
Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer diagnosed indicator, yes/no code N data element.
DSS specific information:
People who have or will be participating in Bowel cancer screening programs and who have answered yes in relation to having a cancer diagnosis.
Conditional 1 1 Person with cancer—primary site of cancer, topography code (ICD-O-3.1) ANN.N Mandatory 1 2 Patient—diagnosis date of cancer, DDMMYYYY Mandatory 1 3 Cancer staging—cancer staging scheme source, code N[N] DSS specific information:
The data element is used to derive a value describing the patient's colorectal cancer clinico-pathological stage
Mandatory 1 4 Cancer staging—staging basis of cancer, code A DSS specific information:
The data element is used to derive a value describing the patient's colorectal cancer clinico-pathological stage
Mandatory 1 5 Person with cancer—extent of primary cancer, TNM stage (UICC TNM Classification of Malignant Tumours, 7th ed) code X[XX] DSS specific information:
The data element is used to derive a value describing the patient's colorectal cancer clinico-pathological stage
Mandatory 1 6 Episode of admitted patient care—admission date, DDMMYYYY Mandatory 1 31 Person—date of death, DDMMYYYY Conditional obligation:
Only to be answered if the person has died.
Conditional 1 32 Person—underlying cause of death, code (ICD-10 2nd edn) ANN-ANN Conditional obligation:
Only to be answered if the person has died.
Conditional 1 
