- | Congenital anomalies cluster |
|
| |
- | Classification edition number | Number
[3]
| N[N]{.N}
A code set representing the version numbers of publications. | DSS specific information: In the Congenital anomalies cluster this data element is used to record the edition number of the International Statistical Classification of Diseases and Related Health Problems, Tenth Revision, Australian Modification (ICD-10-AM) used to classify (code) the congenital anomaly the baby (product of conception) has as reported in data element Person—congenital anomaly, code (ICD-10-AM) ANN{.N[N]}. |
- | Diagnosis number | Number
[2]
| N[N]
A number which uniquely identifies an entity. | DSS specific information: In the Congenital anomalies cluster this data element is used to identify a specific congenital anomaly the baby (product of conception) has. A baby may have multiple congenital anomalies. |
- | Timing of congenital anomaly diagnosis | Number
[1]
| 0 | Before birth (prenatal diagnosis) | 1 | At birth to 1 week (inclusive) | 2 | Over 1 week to 4 weeks | 3 | Over 4 weeks to 52 weeks (12 months) | 4 | Over 52 weeks (greater than 12 months) | 5 | Postmortem | 9 | Not stated/inadequately described |
| |
- | Congenital anomaly BPA code | String
[6]
| ANN.N[N]
The BPA (1979) code set representing diagnoses. | Conditional obligation: This data element is collected on a Conditional basis with the data elements Person—congenital anomaly, diagnosis code (ICD-10-AM) ANN{.N[N]} and Person—congenital anomaly, text X[X(49)]. Data must be reported for at least one of these data elements. However, Person—congenital anomaly, diagnosis code (ICD-10-AM) ANN{.N[N]} is the preferred data element to use for the reporting of a baby's congenital anomaly. |
- | Congenital anomaly code | String
[6]
| ANN{.N[N]}
The ICD-10-AM code set representing diagnoses. | Conditional obligation: This data element is collected on a Conditional basis with the data elements Person—congenital anomaly, diagnosis code (BPA 1979) ANN.N[N] and Person—congenital anomaly, text X[X(49)]. Data must be reported for at least one of these data elements. This data element is the preferred data element to use for the reporting of a baby's congenital anomaly. DSS specific information: In the Congenital anomalies cluster the ICD-10-AM edition used for the diagnosis code should be recorded in the data element Classification system—edition, number code N[N]{.N}. |
- | Congenital anomaly text | String
[50]
| X[X(49)]
A combination of alphanumeric characters. | Conditional obligation: This data element is collected on a Conditional basis with the data elements Person—congenital anomaly, diagnosis code (ICD-10-AM) ANN{.N[N]} and Person—congenital anomaly, diagnosis code (BPA 1979) ANN.N[N]. Data must be reported for at least one of these data elements. However, Person—congenital anomaly, diagnosis code (ICD-10-AM) ANN{.N[N]} is the preferred data element to use for the reporting of a baby's congenital anomaly. |
- | Person diagnosis date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | DSS specific information: In the Congenital Anomalies cluster this data element is used to report the date a congenital anomaly was diagnosed. |
- | Person identifier | String
[20]
| XXXXXX[X(14)]
A logical combination of valid alphanumeric characters that identify an entity. | |
- | Congenital anomaly record source | Number
[1]
| 1 | Congenital anomaly register | 2 | Perinatal data collection | 3 | Admitted patients collection | 4 | Death registration data | 5 | Other source |
| |
- | Record source text | String
[50]
| X[X(49)]
A combination of alphanumeric characters. | Conditional obligation: In the Congenital Anomalies cluster this data element is reported only when CODE 5 'Other source' has been reported for Record—record source, congenital anomaly source code N. |
- | Adult BMI code | Number
[1]
| 1 | Underweight (below 18.5) | 2 | Healthy weight (18.5-24.9) | 3 | Overweight (25-29.9) | 4 | Obese (30 and above) | 9 | Not stated/inadequately described |
| DSS specific information: In the National Congenital Anomalies Data Collection this data element is a derived data element and is recorded for the mother only. It is derived from the data elements Person—weight (measured), total kilograms N[NN].N, Person—weight (self-reported), total kilograms NN[N], Person—height (measured), total centimetres NN[N].N and Person—height (self-reported), total centimetres NN[N] collected in the National Perinatal Data Collection (NPDC). |
- | State/territory of birth | Number
[1]
| 1 | New South Wales | 2 | Victoria | 3 | Queensland | 4 | South Australia | 5 | Western Australia | 6 | Tasmania | 7 | Northern Territory | 8 | Australian Capital Territory | 9 | Other Territories (Jervis Bay Territory, Territory of Christmas Island, Territory of the Cocos (Keeling) Islands and Norfolk Island) |
| DSS specific information: This data element is recorded for the mother only. |
- | Establishment sector | Number
[1]
| | DSS specific information: In the National Congenital Anomalies Data Collection this data element is used to report whether the baby diagnosed with the congenital anomaly was born in a hospital in the public or private sector. The following supplementary codes are also used to report data for this data element. A response of CODE 8' Not applicable' is recorded where the baby diagnosed with the congenital anomaly was not born in a hospital. Value | Meaning | 8 | Not applicable | 9 | Not stated |
|
- | Age at time of childbirth | Number
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: In the National Congenital Anomalies Data Collection this data element is used to record the mother’s age at the time of the baby’s birth. |
- | Diabetes during pregnancy indicator | Boolean
[1]
| 1 | Yes | 2 | No | 9 | Not stated/inadequately described |
| DSS specific information: It is acceptable for jurisdictions to report only CODE 1 'Yes' and CODE 9 'Not stated/inadequately described' against this item. This data element is recorded for the mother only. |
- | Hypertension during pregnancy indicator | Boolean
[1]
| 1 | Yes | 2 | No | 9 | Not stated/inadequately described |
| DSS specific information: It is acceptable for jurisdictions to report only CODE 1 'Yes' and CODE 9 'Not stated/inadequately described' against this item. This data element is recorded for the mother only. |
- | Parity | Number
[2]
| | DSS specific information: This data element is recorded for the mother only. |
- | Tobacco smoking during pregnancy flag | Boolean
[1]
| 1 | Yes | 2 | No | 9 | Not stated/inadequately described |
| DSS specific information: In the National Congenital Anomalies Data Collection this is a derived data element. It is derived from the data elements Female—tobacco smoking in the first 20 weeks of pregnancy indicator, yes/no/not stated/inadequately described code N and Female—tobacco smoking after 20 weeks of pregnancy indicator, yes/no/not stated/inadequately described code N collected in the National Perinatal Data Collection (NPDC). |
- | Tobacco smoking in the first 20 weeks of pregnancy indicator | Boolean
[1]
| 1 | Yes | 2 | No | 9 | Not stated/inadequately described |
| |
- | Diabetes mellitus type during pregnancy | Number
[1]
| 1 | Pre-existing Type 1 diabetes | 2 | Pre-existing Type 2 diabetes | 3 | Gestational diabetes mellitus (GDM) | 8 | Other type of diabetes mellitus | 9 | Not stated/inadequately described |
| Conditional obligation: In the Congenital Anomalies Data Collection this data element is reported only when CODE 1 'Yes' has been reported for Female—diabetes mellitus during pregnancy indicator, yes/no/not stated/inadequately described code N. |
- | Hypertensive disorder type during pregnancy | Number
[1]
| 1 | Eclampsia | 2 | Preeclampsia | 3 | Gestational hypertension | 4 | Chronic hypertension | 9 | Not stated/inadequately described |
| Conditional obligation: In the National Congenital Anomalies Data Collection this data element is reported only when CODE 1 'Yes' has been reported for Female—hypertensive disorder during pregnancy indicator, yes/no/not stated/inadequately described code N. DSS specific information: This is a multiple response data element and is therefore operationalised for data collection across 3 individual data items (one data item per permissible value, excluding Code 9 (Not stated/inadequately described)). |
- | Person's usual residence, Australian state/territory | Number
[2]
| 1 | New South Wales | 2 | Victoria | 3 | Queensland | 4 | South Australia | 5 | Western Australia | 6 | Tasmania | 7 | Northern Territory | 8 | Australian Capital Territory | 9 | Other Territories (Jervis Bay Territory, Territory of Christmas Island, Territory of the Cocos (Keeling) Islands and Norfolk Island) | 97 | Not applicable | 99 | Not stated/inadequately described |
| DSS specific information: In the National Congenital Anomalies Data Collection this data element is a derived data element and is recorded for the mother only. It is derived from the data element Person—area of usual residence, statistical area level 2 (SA2) code (ASGS Edition 3) N(9) collected in the National Perinatal Data Collection (NPDC) In the National Congenital Anomalies Data Collection non-standard supplementary values for this data element are used as follows: - CODE 0 = 'Non-Australian resident'. This value can be mapped to CODE 97 'Not applicable'.
- NULL = 'Not stated'. This value can be mapped to CODE 99 'Not stated/inadequately described.'
|
- | Country of birth | Number
[4]
| NNNN
The Standard Australian Classification of Countries (SACC 2016) code set representing a country. | DSS specific information: This data element is recorded for the mother only. |
- | Date of birth | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | DSS specific information: This data element is recorded once for the mother and once for the baby with a congenital anomaly. In the case of multiple births, this data element should be recorded for each baby with a congenital anomaly. |
- | Date of birth year | Date/Time
[4]
| YYYY
The calendar year, beginning on the 1st of January and ending on the 31st of December. | DSS specific information: In the National Congenital Anomalies Data Collection this data element is used to record the baby's year of birth. |
- | Geographic remoteness | Number
[1]
| 1 | Major cities of Australia | 2 | Inner regional Australia | 3 | Outer regional Australia | 4 | Remote Australia | 5 | Very remote Australia | 6 | Migratory | 9 | Not stated/inadequately described |
| DSS specific information: In the National Congenital Anomalies Data Collection this data element is a derived data element and is recorded for the mother only. It is derived from the data element Person—area of usual residence, statistical area level 2 (SA2) code (ASGS Edition 3) N(9) collected in the National Perinatal Data Collection (NPDC). |
- | Indigenous status | Number
[1]
| 1 | Aboriginal but not Torres Strait Islander origin | 2 | Torres Strait Islander but not Aboriginal origin | 3 | Both Aboriginal and Torres Strait Islander origin | 4 | Neither Aboriginal nor Torres Strait Islander origin | 9 | Not stated/inadequately described |
| DSS specific information: In the National Congenital Anomalies Data Collection this data element is recorded only for the mother. |
- | Person identifier | String
[20]
| XXXXXX[X(14)]
A logical combination of valid alphanumeric characters that identify an entity. | DSS specific information: This data element is recorded once for the mother and once for the baby with a congenital anomaly. In the case of multiple births, this data element should be recorded for each baby with a congenital anomaly. |
- | Sex of a person | String
[1]
| 1 | Male | 2 | Female | 3 | Another term | 9 | Not stated/inadequately described |
| DSS specific information: This data element is recorded once for the baby with the congenital anomaly. In the case of multiple births, this data element should be recorded for each baby born with a congenital anomaly. |
- | Birth plurality | Number
[1]
| 1 | Singleton | 2 | Twins | 3 | Triplets | 4 | Quadruplets | 5 | Quintuplets | 6 | Sextuplets | 8 | Other | 9 | Not stated/inadequately described |
| DSS specific information: This data element is recorded for the mother only. |
- | Birth order | Number
[1]
| 1 | Singleton or first of a multiple birth | 2 | Second of a multiple birth | 3 | Third of a multiple birth | 4 | Fourth of a multiple birth | 5 | Fifth of a multiple birth | 6 | Sixth of a multiple birth | 8 | Other | 9 | Not stated/inadequately described |
| DSS specific information: This data element is recorded once for the baby with the congenital anomaly. In the case of multiple births, this data element should be recorded for each baby born with a congenital anomaly. Birth order is only assigned to births that are in scope for the Perinatal NMDS (i.e. births of at least 20 weeks gestation or 400 grams birthweight). In the case of multiple pregnancies, if one or more fetuses were removed from the mother's uterus before 20 weeks gestation, for example, by abortion (spontaneous, induced or fetal reduction), they are not considered in the assignment of birth order for any remaining fetuses that are born. For example, in a twin pregnancy, where one fetus is aborted before 20 weeks gestation, no birth order would be recorded for that twin. If the remaining twin is born and is in scope for the Perinatal NMDS, then their birth order would be recorded as CODE 1 'Singleton or first of a multiple birth.' If both twins are born and are in scope for the Perinatal NMDS, the first twin would be assigned a birth order of CODE 1 'Singleton or first of a multiple birth' and the second twin would be assigned a birth order of CODE 2 'Second of a multiple birth'. In the case of multiple births, this data element should be recorded for each baby born. |
- | Birthweight of baby | Number
[4]
| 9999 | Not stated/inadequately described |
| DSS specific information: This data element is recorded once for the baby with the congenital anomaly. In the case of multiple births, this data element should be recorded for each baby born with a congenital anomaly. Weight is an important indicator of pregnancy outcome, is a major risk factor for neonatal morbidity and mortality and is required to analyse perinatal services for high-risk infants. |
- | Gestational age | Number
[1]
| 1 | <20 weeks' gestation | 2 | ≥20 weeks' gestation | 9 | Not stated/inadequately described |
| Conditional obligation: In the National Congenital Anomalies Data Collection this data element is reported only when CODE 4 'Termination of pregnancy' has been reported for Product of conception—pregnancy outcome code N. DSS specific information: In the National Congenital Anomalies Data Collection this data element is used to report the gestational age of the product of conception when the termination of pregnancy occurred. |
- | Gestational age | Number
[2]
| | DSS specific information: This data element is recorded once for the baby with the congenital anomaly. In the case of multiple births, this data element should be recorded for each baby born with a congenital anomaly. The first day of the last menstrual period (LMP) is required to estimate gestational age, which is a key marker in pregnancy and an important risk factor for neonatal outcomes. Although the date of the LMP may not be known, or may sometimes be erroneous, estimation of gestational age based on clinical assessment may also be inaccurate. Gestational age is usually estimated based on available information on LMP and clinical assessment. The following code has been agreed by the National Perinatal Data Development Committee (NPDDC) as a supplementary code for use in the Perinatal NMDS: Value | Meaning |
---|
99 | Not stated/inadequately described |
|
- | Product of conception pregnancy outcome | Number
[1]
| 0 | Stillbirth | 1 | Live birth/survived | 2 | Live birth/neonatal death | 3 | Post neonatal death | 4 | Termination of pregnancy | 9 | Not stated/inadequately described |
| |
- | Linkage key flag | Boolean
[1]
| | DSS specific information: In the National Congenital Anomalies Data Collection this data element is used to report records in the National Congenital Anomalies Data Collection that cannot be linked to records in the National Perinatal Data Collection (NPDC). |
- | Linkage key absence reason | Number
[1]
| 1 | Interstate birth | 2 | Outside scope of NPDC | 3 | Other | 9 | Not stated/inadequately described |
| Conditional obligation: In the National Congenital Anomalies Data Collection this data element is reported only when CODE 2 'No' has been reported for Record—linkage key flag, yes/no code N. DSS specific information: In the National Congenital Anomalies Data Collection this data element is used to report why records in the National Congenital Anomalies Data Collection cannot be linked to records in the National Perinatal Data Collection (NPDC). |
- | Linkage key absence reason text | String
[50]
| X[X(49)]
A combination of alphanumeric characters. | Conditional obligation: In the National Congenital Anomalies Data Collection this data element is reported only when CODE 3 'Other' has been reported for Record—reason for linkage key absence, code N. DSS specific information: In the National Congenital Anomalies Data Collection this data element is used to report the 'other reason' why records in the National Congenital Anomalies Data Collection cannot be linked to records in the National Perinatal Data Collection (NPDC). |