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National Disability Agreement: h-Proportion of carers of people with disability accessing support services to assist in their caring role (h-interim), 2011

Identifying and definitional attributes

Metadata item type:Help on this termIndicator
Indicator type:Help on this termIndicator
Short name:Help on this termProportion of carers of people with disability accessing support services to assist in their caring role (h-interim), 2011
METeOR identifier:Help on this term428757
Registration status:Help on this termCommunity Services (retired), Superseded 05/03/2012
Description:Help on this term

Support services for carers.

Indicator set:Help on this termNational Disability Agreement (2011) Community Services (retired), Superseded 05/03/2012
Outcome area:Help on this termFamilies and carers are well supported Disability, Standard 13/08/2015
Community Services (retired), Standard 23/07/2010
Quality statement:Help on this termProportion of carers of people with disability accessing support services to assist in their caring role, 2011 QS Community Services (retired), Superseded 05/03/2012

Collection and usage attributes

Population group age to:Help on this term64 years.
Computation description:Help on this term

(Interim) Performance indicator is restricted to DS NMDS service users aged 0– 64 years with an informal carer.

Support services to assist in the caring role are defined in ‘Reported disaggregation’ below.

Specialist psychiatric disability services in Victoria, Queensland and Western Australia are not included.

Computation:Help on this term

R/N x 100

(Interim) where R = number of DS NMDS service users aged 0–64 years with an informal carer, where the service user accessed services to assist the carer in their caring role in the reporting period and N = number of DS NMDS service users aged 0–64 years with an informal carer in the reporting period.

Numerator:Help on this term

(Interim) Number of disability support service users aged 0–64 years with an informal carer, where the service user accessed services to assist the carer in their caring role, in the reporting period.

Numerator data elements:Help on this term
Data Element / Data SetPerson—age, total years N[NN]
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetPerson—informal carer existence indicator, code N
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetService provider organisation—service activity type, CSTDA support service type code N.NN
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetData Element
Data item 'Specialist psychiatric disability service user' to be created.
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetService event—last service provision date, DDMMYYYY
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetService episode—episode end date, DDMMYYYY
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Denominator:Help on this term

(Interim) Number of disability support service usersaged 0–64 years with an informal carer in the reporting period.

Denominator data elements:Help on this term
Data Element / Data SetPerson—age, total years N[NN]
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetService provider organisation—service activity type, CSTDA support service type code N.NN
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetData Element
Data element 'Specialist psychiatric disability service user' to be created.
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetService event—last service provision date, DDMMYYYY
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetService episode—episode end date, DDMMYYYY
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Disaggregation:Help on this term

The following disaggregations will be presented:

State/territory by

Carer sex (male, female, total) by carer age group (under 45 years, 45–64, 65 years and above, total)
Carer relationship to care recipient/service user (wife/husband/partner, mother, father, son/son-in-law/daughter/daughter-in-law, other, total)
Age of care recipient/service user (0-4, 5-14, 15-24, 25-34, 35-44, 45-54, 55-64 years, total)
Carer primary status (primary carer, non-primary carer, total)
Carer residency status (co-resident, non-resident, total)
Disaggregations will be presented for each of the following categories of services:

1. In-home accommodation support (service types 1.05 and 1.06)

2. Community access (service types 3.01, 3.02 and 3.03)

3. Respite (service types 4.01, 4.02, 4.03, 4.04 and 4.05).

Where possible, respite services will be further disaggregated as follows:

i. Own home respite (service type 4.01)

ii. Centre-based respite/respite homes (service type 4.02)

iii. Host family respite/peer support respite (service type 4.03)

iv. Flexible respite (service type 4.04)

v. Other respite (service type 4.05)

Disaggregation data elements:Help on this term
Data Element / Data SetPerson—Australian state/territory identifier, code N
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetService provider organisation—service activity type, CSTDA support service type code N.NN
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetInformal carer—co-residency status, code N
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetInformal carer—primary status, code N
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetInformal carer—relationship to care recipient, CSTDA code N[N]
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetData Element
Data element 'Informal carer - age group' to be created.
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)
Data Element / Data SetPerson—age, total years N[NN]
NMDS / DSS
Commonwealth State/Territory Disability Agreement NMDS (July 2008)

Representational attributes

Representation class:Help on this termPercentage
Data type:Help on this termReal
Unit of measure:Help on this termPerson

Accountability attributes

Organisation responsible for providing data:Help on this termAustralian Institute of Health and Welfare.
Further data development / collection required:Help on this term

There is no existing data source for this indicator, only data for approximations of the indicator.

The 2003 SDAC does not provide information about formal assistance to carers other than respite care. Support services that assist carers in the caring role are broader in scope than respite.

The existing NMDS contains limited data about carers of people who use disability support services. The interim indicator to be reported for the 2011 report is sourced from the 2008-09 NMDS and provides information about the informal carers of people who use specialist disability services. This is a subset of the entire population of carers of people with disability and the NMDS carer count may not be an accurate measure of the number of individual carers.

The NDIMG has committed to further work to develop a more broadly based (population) measure of support services for carers. Data development may involve data linkage across administrative data sets.

(Interim) Classifications proposed above are appropriate for the current CSTDA/DS NMDS. Classifications will need to be reviewed in line with any future changes to the NMDS.

Note that the existing DS NMDS counts people with informal carers; it does not count carers. The National Disability Data Network has identified improved carer data as a priority area for NMDS redevelopment. Use of DS NMDS data in the interim only provides a proxy measure for this indicator.

Other issues caveats:Help on this term

Available disaggregation depends on sampling errors, confidentiality and other caveats. Cells with numerator counts less than 5 will be suppressed. Numerator and denominator cells will be suppressed, where disaggregated by state/territory (excluding totals).

Information about the Indigenous status of the carer, the country of birth of the carer and the remoteness of the carer is not available from the DS NMDS.

Service users with age in the range 0 to 64 years and service users with ‘not stated’ age are included in calculations for this indicator. Service users with age reported to be 65 years or older are not included.

Treatment of ‘not stated’ values within disaggregations:

Carer age group (years): Total includes carers with ‘not stated’ age.

Carer sex: Total includes carers for whom sex could not be derived (from carer relationship to service user).

Carer relationship to care recipient/service user: Total includes carers with 'not stated' relationship to care recipient/service user.

Age of care recipient/service user: Total includes care recipient/service user with 'not stated' age.

Carer primary status: Total includes carers with ‘not stated’ carer primary status.

Carer residency status: Total includes carers with ‘not stated’ carer residency status.

Caution is recommended in the use or interpretation of performance at service type level. There is a risk when the service type level data is interpreted in isolation as various service types are complementary and the emphasis on different services reflects jurisdictional policy directions. Potential population estimates in these tables are not necessarily specific to the individual service type.

Relational attributes

Related metadata references:Help on this term

Supersedes National Disability Agreement: h-Proportion of carers of people with disability accessing support services to assist in their caring role (h-interim), 2010 Community Services (retired), Superseded 15/12/2011

Has been superseded by National Disability Agreement: h-Proportion of carers of people with disability accessing support services to assist in their caring role (h-interim), 2012 Community Services (retired), Superseded 23/05/2013

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