Perinatal NBEDS 2019–20

Identifying and definitional attributes
Metadata item type:	Data Set Specification
METEOR identifier:	694991
Registration status:	Health, Superseded 20/11/2019
DSS type:	Data Set Specification (DSS)
Scope:	The scope of the Perinatal National Best Endeavours Data Set (NBEDS) is all births in Australia in hospitals, birth centres and the community. The data set includes information on all births, both live births and stillbirths, of at least 20 weeks gestation or 400 grams birthweight. These data have two dimensions, which are the baby and the mother. All data relevant to the birth are conveyed in relation to one of these.

Collection and usage attributes
Statistical unit:	As there are two dimensions to the data, there are two statistical units: 1. Mother (Female) 2. Baby (Product of birth)
Guide for use:	This NBEDS is intended as an interim standard only. If jurisdictions are able to report the data elements then they should do so. It is expected that the data elements will be included as mandatory data elements in future Perinatal national minimum data sets (NMDS).
Collection methods:	National reporting arrangements: State and territory health authorities provide the data to the Australian Institute of Health and Welfare for national collation, on an annual basis. Periods for which data are collected: Financial year ending 30 June each year.
Implementation start date:	01/07/2019
Implementation end date:	30/06/2020
Comments:	The terms 'product of birth' and 'baby,' and 'mother' and 'female' are used interchangeably throughout the NBEDS. Glossary terms that are relevant to this NBEDS include: Anaesthesia Analgesia Antenatal care visit Birthweight Born before arrival Gestational diabetes mellitus Hospital-in-the-home care Hypertensive disorder during pregnancy Live birth Primary postpartum haemorrhage Registered nurse Separation Stillbirth (fetal death)
Source and reference attributes
Submitting organisation:	National Perinatal Data Development Committee Australian Institute of Health and Welfare
Relational attributes
Related metadata references:	Supersedes Perinatal NBEDS 2018-19 Health, Superseded 12/12/2018 Has been superseded by Perinatal NBEDS 2020–21 Health, Superseded 03/12/2020

Metadata items in this Data Set Specification

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Seq No.	Metadata item	Obligation	Max occurs
-	Perinatal NMDS 2019–20	Mandatory	1
-	Birth event—additional indication for caesarean section, code N[N] *Conditional obligation:* This data element is only to be recorded if the response to the Birth event—birth method, code N data element is Code 4 (Caesarean section). This data element is also conditional on the Birth event—main indication for caesarean section, code N[N] data element being completed and on there being more than one reason for which a caesarean was performed.	Conditional	2
-	Birth event—additional indication for induction of labour, code N[N] *Conditional obligation:* This data element is only to be recorded if the response to the Birth event—labour onset type, code N data element is Code 2 (Induced). This data element is also conditional on the Birth event—main indication for induction of labour, code N[N] data element being completed and on there being more than one reason for which an induction was performed.	Conditional	2
-	Birth event—main indication for caesarean section, code N[N] *Conditional obligation:* This data element is only to be recorded if the response to the Birth event—birth method, code N data element is Code 4 (Caesarean section).	Conditional	1
-	Birth event—main indication for induction of labour, code N[N] *Conditional obligation:* This data element is only to be recorded if the response to the Birth event—labour onset type, code N data element is Code 2 (Induced).	Conditional	1
-	Female—alcohol consumption after 20 weeks of pregnancy indicator, yes/no/not stated/inadequately described code N	Mandatory	1
-	Female—alcohol consumption frequency after 20 weeks of pregnancy, code N *Conditional obligation:* This data element is only to be recorded if the response to the Female—alcohol consumption after 20 weeks of pregnancy indicator, yes/no/not stated/inadequately described code N data element is Code 1 (Yes).	Conditional	1
-	Female—alcohol consumption frequency in the first 20 weeks of pregnancy, code N *Conditional obligation:* This data element is only to be recorded if the response to the Female—alcohol consumption in the first 20 weeks of pregnancy indicator, yes/no/not stated/inadequately described code N data element is Code 1 (Yes).	Conditional	1
-	Female—alcohol consumption in the first 20 weeks of pregnancy indicator, yes/no/not stated/inadequately described code N	Mandatory	1
-	Female—blood transfusion due to primary postpartum haemorrhage indicator, yes/no/not stated/inadequately described code N *Conditional obligation:* This data element is conditional on Female—primary postpartum haemorrhage indicator, yes/no/not stated/inadequately described code N being coded to Yes.	Conditional	1
-	Female—diabetes mellitus during pregnancy indicator, yes/no/not stated/inadequately described code N *DSS specific information:* It is acceptable for jurisdictions to report only Code 1, Yes and Code 9, Not stated/inadequately described against this item.	Mandatory	1
-	Female—estimated blood loss indicating primary postpartum haemorrhage, estimated blood loss volume category code N *Conditional obligation:* This data element is conditional on Female—primary postpartum haemorrhage indicator, yes/no/not stated/inadequately described code N being coded to Yes.	Conditional	1
-	Female—hypertensive disorder during pregnancy indicator, yes/no/not stated/inadequately described code N *DSS specific information:* It is acceptable for jurisdictions to report only Code 1, Yes and Code 9, Not stated/inadequately described against this item.	Mandatory	1
-	Female—number of standard drinks consumed when drinking alcohol after 20 weeks of pregnancy, total N[NN] *Conditional obligation:* This data element is only to be recorded if the response to the Female—alcohol consumption after 20 weeks of pregnancy indicator, yes/no/not stated/inadequately described code N data element is Code 1 (Yes).	Conditional	1
-	Female—number of standard drinks consumed when drinking alcohol in the first 20 weeks of pregnancy, total N[NN] *Conditional obligation:* This data element is only to be recorded if the response to the Female—alcohol consumption in the first 20 weeks of pregnancy indicator, yes/no/not stated/inadequately described code N data element is Code 1 (Yes).	Conditional	1
-	Female—primary postpartum haemorrhage indicator, yes/no/not stated/inadequately described code N	Mandatory	1
-	Female—type of diabetes mellitus during pregnancy, code N *Conditional obligation:* This data element is conditional on Female—diabetes mellitus during pregnancy indicator, yes/no/not stated/inadequately described code N being coded to Yes. *DSS specific information:*	Conditional	1
-	Female—type of diabetes mellitus therapy during pregnancy, code N *Conditional obligation:* *DSS specific information:* This is a multiple response data element and is therefore operationalised for data collection across 3 individual data items (one data item per permissible value, excluding Code 99 (Not stated/inadequately described)).	Conditional	3
-	Female—type of hypertensive disorder during pregnancy, code N *Conditional obligation:* This data element is only to be recorded if the response to the Female—hypertensive disorder during pregnancy indicator, yes/no/not stated/inadequately described code N data element is Code 1 (Yes). *DSS specific information:* This is a multiple response data element and is therefore operationalised for data collection across 3 individual data items (one data item per permissible value, excluding Code 99 (Not stated/inadequately described)).	Conditional	3
-	Person—height (measured), total centimetres NN[N].N *DSS specific information:* It is acceptable for measured height to be rounded to the nearest centimetre. It is preferable to collect and record a pregnant female's height as a measured height. Where a measured height has not been provided or it is not possible to ascertain whether the height has been measured or self-reported, the value 999.9 should be recorded against this data element. Data should then be recorded against the Person—height (self-reported), total centimetres NN[N] data element.	Mandatory	1
-	Person—height (self-reported), total centimetres NN[N] *Conditional obligation:* It is preferable to collect and record a pregnant female's height as a measured height. Where a measured height has not been provided or it is not possible to ascertain whether the height has been measured or self-reported, the value 999.9 should be recorded against the Person—height (measured), total centimetres NN[N].N data element. Data should then be recorded against this conditional self-reported height data element. *DSS specific information:* It is acceptable for a self-reported height to be rounded to the nearest whole centimetre.	Conditional	1
-	Person—weight (measured), total kilograms N[NN].N *DSS specific information:* Weight rounded to the nearest whole kilogram is acceptable. Weight should be recorded in the first trimester, preferably as a measured weight. However, the female's self-reported weight around the time of conception is acceptable if a measured weight is not available. It is preferable to collect and record a pregnant female's weight as a measured weight. Where a measured weight has not been provided or it is not possible to ascertain whether the weight has been measured or self-reported, the value 999.9 should be recorded against this data element. Data should then be recorded against the Person—weight (self-reported), total kilograms NN[N] data element.	Mandatory	1
-	Person—weight (self-reported), total kilograms NN[N] *Conditional obligation:* It is preferable to collect and record a pregnant female's weight as a measured weight. Where a measured weight has not been provided or it is not possible to ascertain whether the weight has been measured or self-reported, the value 999.9 should be recorded against the Person—weight (measured), total kilograms N[NN].N data element. Data should then be recorded against this conditional self-reported weight data element. *DSS specific information:* Weight rounded to the nearest whole kilogram is acceptable. Weight should be recorded in the first trimester, preferably as a measured weight. However, the female's self-reported weight around the time of conception is acceptable if a measured weight is not available.	Conditional	1
-	Product of birth—head circumference, total centimetres NN[N].N *DSS specific information:* Baby head circumference can be recorded as measured e.g. 35.1 cm or can be rounded to the nearest 0.5 cm, e.g. 35.0 cm, but in any case measurement should be recorded at least to the nearest 0.5 cm. If rounding, round up or down to the nearest 0.5 cm, e.g. 35.2 cm would be rounded down to 35.0 cm; 35.3 cm would be rounded up to 35.5 cm. Example: A baby has two head circumference measurements taken at birth of 34.2 cm and 34.6 cm. These are within 0.5 cm of each other so the higher measurement of 34.6 cm is the correct one to record. It can be recorded as 34.6 cm or rounded to the nearest 0.5 cm, that is, 34.5 cm.	Mandatory	1

Perinatal NBEDS 2019–20

Data Set Specification Attributes

Identifying and definitional attributes

Collection and usage attributes

Source and reference attributes

Relational attributes

Metadata items in this Data Set Specification

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