1 | Erectile dysfunction extent | Number
[2]
| N[N] The total Sexual Health Inventory for Men score (SHIM), represented by a number. | DSS specific information: Collect this item at diagnosis of a person with prostate cancer (prior to the initiation of treatment). |
2 | Erectile dysfunction assessment date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
3 | Faecal incontinence indicator | Number
[1]
| | DSS specific information: Collect this item at diagnosis of a person with prostate cancer (prior to the initiation of treatment). |
4 | Urinary incontinence indicator | Number
[1]
| | DSS specific information: Collect this item at diagnosis of a person with prostate cancer (prior to the initiation of treatment). |
5 | Urinary incontinence pad use indicator | Number
[1]
| | DSS specific information: Collect this item at diagnosis of a person with prostate cancer (prior to the initiation of treatment). |
6 | Urine voiding problem severity | Number
[1]
| 1 | None | 2 | Mild | 3 | Moderate | 4 | Severe | 9 | Not stated/inadequately described |
| DSS specific information: Collect this item at the point of diagnosis of a man with prostate cancer (prior to the initiation of treatment). |
7 | PSA test level | Number
[5]
| NN.NN The number of nanograms per millilitre. | DSS specific information: It is recommended that this item should be recorded at: - diagnosis
- pre-treatment
- post treatment
- all subsequent follow-ups
|
8 | PSA test date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | DSS specific information: Collect in conjunction with Person—Prostate-Specific Antigen Test level, nanograms per millilitre. |
9 | Prostate cancer diagnostic imaging | String
[2]
| 01 | Ultrasound (US) | 02 | Magnetic resonance imaging (MRI) | 03 | Computed tomography (CT) | 04 | Positron emission tomography (PET) | 05 | Bone scan | 06 | Other | 98 | Unknown | 99 | Not stated/inadequately described |
| |
10 | Prostate cancer diagnostic imaging (other) | String
[100]
| X[X(99)]
A combination of alphanumeric characters. | Conditional obligation: Collect this item when Person—diagnostic imaging, prostate cancer diagnostic imaging code NN equals other. |
11 | Diagnostic histology indicator | Number
[1]
| | |
12 | Prostate tissue collection method | Boolean
[1]
| 1 | Transrectal ultrasound (TRUS) guided | 2 | Transperineal | 3 | Incidental | 8 | Unknown | 9 | Biopsy taken but technique not stated/inadequately specified |
| Conditional obligation: Collect this item if Person with cancer-diagnostic histology, yes/no/unknown code N equals yes. |
13 | Biopsy core number | Number
[3]
| N[NN] The total, sum, count, or aggregate of a collection of units. | Conditional obligation: Collect this item if Person with cancer—diagnostic histology indicator, yes/no/unknown code N equals yes. |
14 | Positive biopsy core number | Number
[3]
| N[NN] The total, sum, count, or aggregate of a collection of units. | Conditional obligation: Collect this item if Person with cancer-diagnostic histology, yes/no/unknown code N equals yes. |
15 | Core biopsy length | Number
[3]
| NN.N The numeric measurement of a defined object/article in millimetres to one decimal point. | |
16 | Biopsy tumour extent | Number
[4]
| 8888 | Not measured | 9999 | Not stated/inadequately described |
| |
17 | Core biopsy tumour length | Number
[3]
| NN.N The numeric measurement of a defined object/article in millimetres to one decimal point. | |
18 | Gleason score | Number
[2]
| 2 | Grade 2 | 3 | Grade 3 | 4 | Grade 4 | 5 | Grade 5 | 6 | Grade 6 | 7 | Grade 7 | 8 | Grade 8 | 9 | Grade 9 | 10 | Grade 10 |
| |
19 | Primary Gleason grade | Number | 1 | Grade 1 | 2 | Grade 2 | 3 | Grade 3 | 4 | Grade 4 | 5 | Grade 5 |
| |
20 | Secondary Gleason Grade | Number | 1 | Grade 1 | 2 | Grade 2 | 3 | Grade 3 | 4 | Grade 4 | 5 | Grade 5 |
| |
21 | Tertiary Gleason Grade | Number | 1 | Grade 1 | 2 | Grade 2 | 3 | Grade 3 | 4 | Grade 4 | 5 | Grade 5 |
| |
22 | Lymphovascular invasion type | Number
[1]
| 1 | Involvement of artery | 2 | Involvement of vein | 3 | Involvement of lymphatics | 4 | Present but unable to distinguish type of vessel involved | 7 | Not applicable-pathology specimen not obtained or no lymphovascular invasion present | 8 | Unknown whether pathology specimen obtained | 9 | Pathology specimen obtained but lymphovascular invasion not stated/inadequately described |
| DSS specific information: Collect this item both after diagnostic testing/imaging is completed and after surgery. |
23 | Perineural invasion indicator | Number
[1]
| 1 | Yes | 2 | No | 7 | Not applicable | 9 | Not stated/inadequately described |
| DSS specific information: Collect this item both after diagnostic testing/imaging is completed and after surgery. |
24 | EPE focality | Number
[1]
| 1 | Focal | 2 | Extensive | 9 | Not stated/inadequately described |
| Conditional obligation: Collect this item if Person with cancer—extraprostatic extension, yes/no/unknown/not stated/inadequately described code N equals yes and has been collected as part of the surgical removal of cancer. Do not collect this item if this relates to diagnostic assessment. |
25 | Extraprostatic extension presence | Number
[1]
| 1 | Present | 2 | Indeterminate | 3 | Not identified |
| |
26 | Extraprostatic extension location | Number
[2]
| 1 | Left anterior - base | 2 | Left anterior - mid | 3 | Left anterior - apex | 4 | Right anterior - base | 5 | Right anterior - mid | 6 | Right anterior - apex | 7 | Left posterior - base | 8 | Left posterior - mid | 9 | Left posterior - apex | 10 | Right posterior - base | 11 | Right posterior - mid | 12 | Right posterior - apex | 98 | Unknown | 99 | Inadequately described |
| Conditional obligation: Collect this item if Person with cancer—extraprostatic extension, yes/no/unknown/not stated/inadequately described code N equals yes based on surgical pathology. |
27 | Distant metastatic site(s) at diagnosis | Number
[2]
| 1 | Lung | 2 | Liver | 3 | Bowel | 4 | Bone | 5 | Brain | 88 | Other | 99 | Metastatic spread indicated but site not stated/inadequately described |
| Conditional obligation: Record when cancer has metastasised to other sites. |
28 | Distant metastatic site(s) at diagnosis (ICD-O-3 code) | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | Conditional obligation: Collect this item when Person with cancer—distant metastatic site(s) at diagnosis, code N[N] equals other. |
29 | Clinical trial entry status | Number
[1]
| 1 | Clinical trial entry not offered | 2 | Clinical trial entry offered and accepted | 3 | Clinical trial entry offered and declined | 4 | Clinical trial not available | 8 | Unknown whether clinical trial entry offered | 9 | Clinical trial entry offered but patient response not stated/inadequately described |
| |
30 | Clinical trial name and number | String
[400]
| X[X(399)] A combination of alphanumeric characters. | Conditional obligation: Collect this item when Person with cancer—clinical trial entry status, code N equals 2. |
31 | Date clinical trial entered | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Collect this item when Person with cancer—clinical trial entry status, code N equals 2. |
32 | Date clinical trial completed | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Collect this item when Person with cancer—clinical trial entry status, code N equals 2. |
33 | Clinical trial experimental agent or intervention | String
[400]
| X[X(399)] A combination of alphanumeric characters. | Conditional obligation: Collect this item when Person with cancer—clinical trial entry status, code N equals 2. |
34 | Surgical procedure for cancer | String
[2]
| 01 | Open retropubic radical prostatectomy | 02 | Open perineal radical prostatectomy | 03 | Robot assisted laparoscopic radical prostatectomy | 04 | Robot assisted laparoscopic radical prostatectomy converted to open | 05 | Laparoscopic radical prostatectomy | 06 | Laparoscopic radical prostatectomy converted to open | 07 | TURP (Transurethral resection of the prostate) | 08 | Focal prostatectomy | 09 | Other | 97 | Not applicable | 99 | Not stated/inadequately described |
| |
35 | Pelvic lymph node dissection indicator | Number
[1]
| 1 | Yes | 2 | No | 97 | Not applicable | 98 | Unknown/unable to be determined | 99 | Not stated/inadequately described |
| |
36 | Pelvic lymph node dissection laterality | String
[1]
| R | Right | L | Left | B | Bilateral | N | Not applicable | U | Unknown |
| |
37 | Tumour focality indicator | Number
[1]
| 1 | Unifocal | 2 | Multifocal | 9 | Unknown/inadequately described |
| DSS specific information: Record this item in relation to surgical pathology only. |
38 | Surgical margin status | Boolean
[1]
| 1 | Positive | 2 | Negative | 8 | Unknown |
| |
39 | External beam radiotherapy type | Number
[2]
| 1 | 2 dimensional (2D) | 2 | 2.5 dimensional (2.5D) | 3 | 3 dimensional conformal radiation therapy (3DCRT) | 4 | Intensity-modulated radiation therapy (IMRT) | 5 | Image-guided radiation therapy (IGRT) | 97 | Not applicable-radiotherapy was not administered | 98 | Unknown whether radiotherapy was administered | 99 | Radiotherapy was administered but planning technique not stated/inadequately described |
| Conditional obligation: Collect if the patient has undergone external beam radiotherapy. |
40 | Brachytherapy indicator | Boolean
[1]
| | |
41 | Brachytherapy dose rate | Number
[1]
| 1 | Low dose rate (LDR) | 2 | Medium dose rate (MDR) | 3 | High dose rate (HDR) | 4 | Pulsed dose rate (PDR) | 7 | Not applicable, no brachytherapy administered | 8 | Unknown whether brachytherapy administered | 9 | Brachytherapy administered but dose not available/inadequately specified |
| Conditional obligation: Collect if Cancer treatment—brachytherapy, yes/no code N equals yes. |
42 | Androgen deprivation therapy indicator | Number
[1]
| | |
43 | Androgen deprivation therapy purpose | Number
[1]
| 1 | Neo-adjuvant | 2 | Adjuvant | 3 | Salvage | 4 | Palliative | 8 | Unknown |
| Conditional obligation: Collect this item when Cancer treatment—androgen deprivation therapy, yes/no/not applicable code N equals yes. |
44 | Specialist support services type | Number
[2]
| 1 | Educational support | 2 | Community service | 3 | Psychiatrist | 4 | Psychologist | 5 | Specialist nurse/nurse counsellor | 6 | Professional or volunteer support group | 7 | Individual peer support | 8 | Counsellor/bereavement counsellor | 9 | Pastoral care | 88 | Other | 97 | Not applicable-no specialist support services received | 98 | Unknown whether specialist support services were received | 99 | Support services received but type not stated/inadequately described |
| |
45 | Specialist support services description | String
[100]
| X[X(99)]
A combination of alphanumeric characters. | Conditional obligation: Collect this item when Cancer treatment—specialist support services type, code N[N] equals other. |
46 | Specialist support services date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Collect this item when Cancer treatment—specialist support services indicator, yes/no/unknown code N equals yes. |
47 | Castrate resistance indicator | Boolean
[1]
| | |
48 | Castrate resistance date | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Collect this item when Person with cancer—castrate resistance, yes/no code N equals yes. |