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Palliative care outcomes collection

Identifying and definitional attributes

Item type:Help on this termData Source
Description:Help on this term

The Palliative Care Outcomes Collaboration (PCOC) collects data on palliative care patient outcomes from participating services in both inpatient (hospital) and community settings. Data are obtained from clinical assessments conducted during routine clinical practice.

Standardised clinical assessment tools are used by clinicians to identify and manage symptoms and problems in palliative care. The dataset includes the following clinical assessment tools: 

  • Palliative Care Phase
  • Symptom Assessment Scale (SAS)
  • Palliative Care Problem Severity Score (PCPSS)
  • Australia-modified Karnofsky Performance Status (AKPS) Scale
  • Resource Utilisation Group—Activities of Daily Living (RUG-ADL). 

Data using Version 1 of the PCOC data set were collected between January 2006 and January 2007. Version 2 of the data set was enacted from July 2007, and Version 3 was implemented in July 2012.

Link to data source:Help on this term

Available through application process from : https://www.uow.edu.au/ahsri/pcoc/

Collection and usage attributes

Frequency:Help on this termSemiannual
Comments:Help on this term

The PCOC is a national program using standardised validated clinical assessment tools to benchmark and measure outcomes in palliative care. Participation in the PCOC is open to all palliative care service providers across Australia and is voluntary.
A Manual is available: PCOC Version 3.0 Data set: data dictionary and technical guidelines.

Source and reference attributes

Data custodian:Help on this term

Australian Health Services Research Institute.