1 | Closest surgical margin | 430295 | Number
[2]
| 97 | Not applicable | 98 | Unknown | 99 | Not stated/inadequately described |
| Conditional obligation: Collect when a person with cancer has undergone surgery during their initial course of cancer treatment for the purpose of removing cancer (either invasive or in situ). |
2 | Surgical margin qualifier (lung cancer) | 433052 | Number
[2]
| 1 | Bronchial | 2 | Mediastinal | 3 | Vascular | 4 | Parenchymal | 5 | Parietal pleural | 6 | Chest wall | 88 | Other | 97 | Not applicable-surgery was not performed | 98 | Unknown whether margin involvement was present | 99 | Margin involvement present but not qualified |
| Conditional obligation: Collect when a person with cancer has undergone surgery during their initial course of cancer treatment for the purpose of removing lung cancer (either invasive or in situ). |
3 | Multidisciplinary team review indicator | 428137 | Number
[1]
| | DSS specific information: This item is to be collected in relation to the initial course of treatment for cancer. |
4 | Radiotherapy target site (lung cancer) | 433274 | Number
[1]
| 1 | Thoracic site | 2 | Non-thoracic site | 3 | Thoracic and non-thoracic sites | 7 | Not applicable-radiotherapy was not administered | 8 | Unknown whether radiotherapy was administered | 9 | Radiotherapy was administered but the site not stated/inadequately described |
| Conditional obligation: Collect when a person with cancer has undergone radiotherapy as part of their initial course of cancer treatment. |
5 | Residual tumour indicator | 430267 | Boolean
[1]
| | Conditional obligation: Collect when a person with cancer has completed their initial course of cancer treatment. |
6 | Residual tumour type | 521153 | String
[2]
| R0 | No residual tumour | R1 | Microscopic residual tumour | R2 | Macroscopic residual tumour | RX | Presence of residual tumour cannot be assessed | R7 | Not applicable-surgery was not performed |
| Conditional obligation: Collect when a person with cancer has completed their initial course of cancer treatment. |
7 | First health service contact date | 447930 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | DSS specific information: Use this data element to record the date a patient presents for the first time to a lung or cancer specialist. This consultation may occur prior to diagnosis so the specialist is involved in the diagnostic process or after the diagnosis of lung cancer has been made so the specialist is involved in the treatment of cancer. A lung or cancer specialist is defined as a consultant in any of the following specialties: respiratory medicine, cardio-thoracic surgery, clinical oncology, medical oncology and radiation oncology. |
8 | Intention of treatment | 448134 | Number
[1]
| 1 | Prophylactic | 2 | Curative | 3 | Palliative | 9 | Not stated/inadequately described | | | | |
| DSS specific information: This item should be collected in relation to the initial course of treatment for cancer. |
9 | Country identifier (person) | 459971 | Number
[4]
| NNNN
The Standard Australian Classification of Countries (SACC 2011) code set representing a country. | |
10 | Basis of diagnostic investigation | 431369 | Number
[1]
| 1 | Symptomatic | 2 | Asymptomatic - diagnosis incidental | 3 | Asymptomatic - diagnosis via opportunistic screening | 4 | Asymptomatic - diagnosis via organised screening | 5 | Asymptomatic - investigations leading to diagnosis not stated/inadequately described | 8 | Unknown whether patient symptomatic or asymptomatic |
| |
11 | Clinical trial entry status | 430028 | Number
[1]
| 1 | Clinical trial entry not offered | 2 | Clinical trial entry offered and accepted | 3 | Clinical trial entry offered and declined | 4 | Clinical trial not available | 8 | Unknown whether clinical trial entry offered | 9 | Clinical trial entry offered but patient response not stated/inadequately described |
| |
12 | Clinical trial name and number | 430953 | String
[400]
| X[X(399)] A combination of alphanumeric characters. | Conditional obligation: Conditional on a person with cancer being accepted into a clinical trial. |
13 | Colinet comorbidities | 432994 | Number
[2]
| 1 | Cardiovascular | 2 | Respiratory | 3 | Neoplastic | 4 | Renal insufficiency | 5 | Diabetes | 6 | Alcoholism | 7 | Tobacco consumption | 97 | Not applicable-no comorbidities present | 98 | Unknown whether comorbidities are present | 99 | Comorbidities are present but type not stated/inadequately described |
| |
14 | Date clinical trial entered | 447247 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
15 | Date of referral to palliative care services | 447391 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Conditional on patient referral to palliative care services. |
16 | Date of referral to psychosocial services | 448664 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Conditional on patient referral to psychosocial services. |
17 | Distant metastatic site(s) at diagnosis (ICD-O-3 code) | 433232 | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | Conditional obligation: Conditional on the identification of distant metastasis at the time of diagnosis of cancer. |
18 | Immunohistochemistry type description | 447300 | String
[50]
| X[X(49)]
A combination of alphanumeric characters. | Conditional obligation: Conditional on immunohistochemistry type being coded as Other (88). |
19 | Lung cancer immunohistochemistry | 433027 | Number
[2]
| 1 | Thyroid transcription factor-1 (TTF-1) | 2 | Cytokeratin 5 (CK5) | 3 | Cytokeratin 6 (CK6) | 4 | Cytokeratin 7 (CK7) | 5 | Cytokeratin 20 (CK20) | 6 | p53-related transcription factor p63 (p63) | 7 | Napsin | 88 | Other | 97 | Not applicable-immunohistochemical staining not performed | 98 | Unknown if imunohistochemistry performed | 99 | Immunohistochemistry performed but stains not stated/inadequately described |
| Conditional obligation: Conditional on immunohistochemistry testing being completed. |
20 | Molecular test results (lung cancer) | 434682 | Number
[2]
| 1 | APC - adenomatous polyposis coli | 2 | ATM - ataxia telangiectasia mutated | 3 | EGFR - epidermal growth factor receptor | 4 | ERBB4 - v-erb-a erythroblastic leukaemia viral oncogene homolog 4 | 5 | ERCC1 - excision repair cross-complementing rodent repair deficiency, complementation group 1 | 6 | KDR - kinase insert domain receptor | 7 | KRAS - v-Ki-ras2 Kirsten rat sarcoma viral oncogene homolog | 8 | NF1 - neurofibromin 1 | 9 | PTEN - phosphatase and tensin homolog | 10 | RB1 - retinoblastoma 1 | 11 | RRM1 - ribonucleotide reductase M1 | 12 | STK11 - serine/threonine kinase 11 | 13 | TYMS - thymidylate synthetase | 14 | P53 - tumour protein p53 | 15 | ERBB2 - v-erb-a erythroblastic leukaemia viral oncogene homolog 2 | 16 | EML4-ALK - echinoderm microtubule-associated protein-like 4 – anaplastic lymphoma kinase | 17 | B-RAF - v-Raf murine sarcoma viral oncogene homolog B1 | 18 | ROS - C-Ros Oncogene 1, Receptor Tyrosine Kinase | 19 | MET - Met Proto-Oncogene (Hepatocyte Growth Factor Receptor) | 88 | Other | 97 | Not applicable-no abnormalities detected | 98 | Unknown whether abnormalities detected | 99 | Abnormalities detected but type not stated/inadequately described |
| Conditional obligation: Conditional on molecular profiling being performed for cancer. |
21 | Lymphovascular invasion indicator | 519212 | Boolean
[1]
| | |
22 | Lymphovascular invasion type | 430045 | Number
[1]
| 1 | Involvement of artery | 2 | Involvement of vein | 3 | Involvement of lymphatics | 4 | Present but unable to distinguish type of vessel involved | 7 | Not applicable-pathology specimen not obtained or no lymphovascular invasion present | 8 | Unknown whether pathology specimen obtained | 9 | Pathology specimen obtained but lymphovascular invasion not stated/inadequately described |
| Conditional obligation: Conditional on lymphovascular invasion having occurred. |
23 | Molecular pathology indicator | 435150 | Number
[1]
| | |
24 | Molecular pathology test date | 506791 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Conditional on molecular profiling being performed for cancer. |
25 | Molecular test results description | 450360 | String
[20]
| X[X(19)] The gene symbol representing the genetic or molecular abnormalities detected in a person, other than those already specified. | Conditional obligation: Conditional on molecular pathology test results being coded as CODE 88 Other. |
26 | Multiple primary tumours descriptor | 429482 | Number
[1]
| 1 | Synchronous | 2 | Metachronous | 7 | Not applicable, i.e. single primary tumour only | 8 | Number of primary tumours unknown | 9 | Multiple primary tumours present, but synchronicity not stated/inadequately described |
| Conditional obligation: This data element is to be recorded if Person with cancer—multiple primary tumours indicator, yes/no code N indicates the presence of multiple primary tumours. |
27 | Multiple primary tumours indicator | 519548 | Boolean
[1]
| | |
28 | ECOG score | 412327 | Number
[1]
| 0 | Fully active, able to carry on all pre-disease performance without restriction. | 1 | Restricted in physically strenuous activity but ambulatory and able to carry out work of a light or sedentary nature, e.g., light house work, office work. | 2 | Ambulatory and capable of all selfcare but unable to carry out any work activities. Up and about more than 50% of waking hours. | 3 | Capable of only limited selfcare, confined to bed or chair more than 50% of working hours. | 4 | Completely disabled. Cannot carry on any selfcare. Totally confined to bed or chair. | 8 | Unknown | 9 | Not stated |
| |
29 | Perineural invasion indicator | 429134 | Number
[1]
| 1 | Yes | 2 | No | 7 | Not applicable | 9 | Not stated/inadequately described |
| |
30 | Psychosocial services referral type | 431257 | Number
[2]
| 1 | Psychiatrist | 2 | Psychologist | 3 | Social worker | 4 | Specialist nurse or nurse counsellor | 5 | Cancer or volunteer support group | 6 | Individual peer support | 7 | Counsellor or bereavement counsellor | 8 | Pastoral care | 9 | Community services | 97 | Not applicable-patient not referred to psychosocial services | 98 | Unknown whether patient referred to psychosocial services | 99 | Patient referred to psychosocial services but type not stated/inadequately described |
| |
31 | Reason(s) second-line treatment administered | 457437 | Number
[1]
| 1 | Incomplete response to first-line treatment | 2 | Toxic effects of first-line treatment | 3 | Recurrence or progressive disease | 6 | Other | 7 | Not applicable-no second-line treatment administered | 8 | Unknown whether second-line treatment administered | 9 | Second-line treatment administered but reason for not stated/inadequately described |
| Conditional obligation: Conditional on the administration of second-line treatment for cancer. |
32 | Reason(s) treatment not administered (cancer) | 428257 | Number
[1]
| 1 | Advanced age | 2 | Comorbid conditions | 3 | Poor performance status | 4 | Patient died prior to planned or recommended treatment | 5 | Patient or family declined treatment | 88 | Other | 97 | Not applicable-treatment administered to patient | 98 | Unknown whether treatment administered to patient | 99 | Treatment not administered to patient but reasons not stated/inadequately described |
| |
33 | Referral to palliative care services indicator | 431284 | Number
[1]
| | |
34 | Referral to psychosocial services indicator | 519990 | Number
[1]
| | |
35 | Second-line treatment intention | 430242 | Number
[1]
| 1 | Prophylactic | 2 | Curative | 3 | Palliative | 9 | Not stated/inadequately described | | | | |
| Conditional obligation: Conditional on the administration of second-line treatment for cancer. |
36 | Second-line treatment type | 432433 | Number
[2]
| 1 | Surgery only | 2 | Radiotherapy only | 3 | Systemic agent therapy only | 4 | Surgery and radiotherapy | 5 | Surgery and systemic agent therapy | 6 | Radiotherapy and systemic agent therapy | 7 | Surgery, radiotherapy and systemic agent therapy | 97 | Not applicable—treatment was not administered | 98 | Unknown whether treatment was administered | 99 | Treatment was administered but the type was not stated/inadequately described |
| Conditional obligation: Conditional on the administration of second-line treatment for cancer. |
37 | Asbestos exposure indicator | 428199 | Number
[1]
| | |
38 | Asbestos exposure setting | 520724 | Number
[1]
| 1 | Occupational exposure to asbestos | 2 | Domestic exposure to asbestos | 9 | Exposure to asbestos occurred but where not stated/inadequately described |
| Conditional obligation: Conditional on the person having known exposure to asbestos. |
39 | Diagnostic imaging type (lung cancer) | 431754 | Number
[2]
| 1 | Chest x-ray (spiral) | 2 | Computed tomography (CT) abdomen/upper abdomen | 3 | CT adrenals | 4 | CT brain | 5 | CT chest | 6 | CT liver | 7 | CT mediastinal nodes | 8 | CT pelvis | 9 | Magnetic resonance imaging (MRI) brain | 10 | MRI chest | 11 | Positron emission tomography (PET) scan | 12 | Radioisotope bone scan | 13 | Ultrasound chest | 14 | Ventilation/perfusion scan | 88 | Other | 97 | Not applicable-imaging not performed | 98 | Unknown whether imaging performed | 99 | Imaging performed but type not stated/inadequately described |
| |
40 | Individual Healthcare Identifier | 432495 | Number
[16]
| N(16) A unique combination of numbers that identifies an individual or organisation where healthcare is provided within Australia. | |
41 | Diagnostic procedure type (lung cancer) | 431734 | Number
[2]
| 1 | Biopsy-bone marrow | 2 | Biopsy-liver | 3 | Biopsy-mediastinal lymph node | 4 | Biopsy-pleural (closed) | 5 | Biopsy-pleural (open) | 6 | Biopsy-skin | 7 | Biopsy-supraclavicular/cervical lymph nodes | 8 | Biopsy-thorascopic (endoscopic) pleural biopsy | 9 | Biopsy-video-assisted thorascopic surgical (VATS) lung biopsy | 10 | Bronchoscopy (fibreoptic) | 11 | Bronchoscopy (rigid) | 12 | Bronchoscopic washings/brushing/biopsy | 13 | Endobronchial ultrasound (EBUS) | 14 | EBUS guided transbronchial lung biopsy (TBBx) | 15 | EBUS guided transbronchial needle aspiration (TBNA) | 16 | EUS guided transoesophageal FNA | 17 | Fine needle aspirate (FNA)-computed tomography (CT) guided | 18 | Mediastinoscopy/mediastinotomy | 19 | Pleural aspirate | 20 | Sputum cytology | 21 | Thoracoscopy | 22 | Thoracotomy | 88 | Other | 97 | Not applicable-diagnostic procedure not performed | 98 | Unknown whether diagnostic procedure performed | 99 | Diagnostic procedure performed but type not stated/inadequately described |
| |
42 | Tobacco smoking—consumption/quantity (cigarettes) | 270332 | Number
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: Conditional on the person currently smoking tobacco daily or at least weekly, or smoking daily in the past. |
43 | Tobacco smoking—product | 270327 | Number
[1]
| 1 | Cigarettes - manufactured | 2 | Cigarettes - roll-your-own | 3 | Cigars | 4 | Pipes | 5 | Other tobacco product | 6 | None |
| Conditional obligation: Conditional on the patient currently smoking tobacco daily or smoking daily in the past. |
44 | Tobacco smoking—duration (daily smoking) | 270330 | Number
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: Conditional on the patient currently smoking tobacco daily or smoking daily in the past. |
45 | Tobacco smoking—quit age (daily smoking) | 270323 | String
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: Conditional on the patient not currently smoking but being a daily tobacco smoker in the past. |
46 | Tobacco smoking—start age (daily smoking) | 270324 | String
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: Conditional on the patient currently smoking tobacco daily or smoking daily in the past. |
47 | Tobacco smoking status | 270311 | Number
[1]
| 1 | Daily smoker | 2 | Weekly smoker | 3 | Irregular smoker | 4 | Ex-smoker | 5 | Never smoked |
| |
48 | Unintentional weight loss indicator | 428841 | Number
[1]
| | DSS specific information: This item should be recorded at diagnosis when recorded in the context of this Data Set Specification. |
49 | Cancer (clinical) DSS | 560813 |
|
| DSS specific information: The Cancer (clinical) data set specification is intended to only describe data collected in relation to the initial course of cancer treatment. The initial course of treatment includes all treatments administered to the patient from diagnosis and before disease progression or recurrence. |
- | Chemotherapy for cancer cluster | 561228 |
|
| Conditional obligation: Conditional on patient receiving chemotherapy. |
- | Chemotherapy completion date | 561215 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Chemotherapy cycles administered | 561248 | Number
[3]
| 997 | Not applicable-no chemotherapy was administered | 998 | Unknown whether chemotherapy was administered | 999 | Chemotherapy was administered but the number of cycles was not stated/inadequately described |
| |
- | Chemotherapy start date | 561273 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Systemic therapy agent or protocol, eviQ | 561278 | String
[6]
| NNNNNN The eviQ protocol identifier for the systemic therapy agent protocol. | Conditional obligation: Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website. |
- | Systemic therapy agent or protocol | 561301 | String
[150]
| X[X(149)] A combination of alphanumeric characters. | |
- | Hormone therapy for cancer cluster | 561324 |
|
| Conditional obligation: Conditional on patient receiving hormone therapy. |
- | Hormone therapy completion date | 561329 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Hormone therapy start date | 561335 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Systemic therapy agent or protocol, eviQ | 561278 | String
[6]
| NNNNNN The eviQ protocol identifier for the systemic therapy agent protocol. | Conditional obligation: Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website. |
- | Systemic therapy agent or protocol | 561301 | String
[150]
| X[X(149)] A combination of alphanumeric characters. | |
- | Immunotherapy for cancer cluster | 561356 |
|
| Conditional obligation: Conditional on patient receiving immunotherapy. |
- | Immunotherapy completion date | 561360 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Immunotherapy start date | 561366 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Systemic therapy agent or protocol, eviQ | 561278 | String
[6]
| NNNNNN The eviQ protocol identifier for the systemic therapy agent protocol. | Conditional obligation: Conditional on the administration of systemic therapy agents according to a prespecified regimen or protocol, and on the availability of the protocol number on the eviQ website. |
- | Systemic therapy agent or protocol | 561301 | String
[150]
| X[X(149)] A combination of alphanumeric characters. | |
- | Radiotherapy for cancer cluster | 561380 |
|
| Conditional obligation: Conditional on the patient receiving radiotherapy. |
- | Radiation dose administered | 561384 | Number
[5]
| 999.97 | Not applicable-radiotherapy was not administered | 999.98 | Unknown whether radiotherapy was administered | 999.99 | Radiotherapy was administered but the dose is not stated/inadequately described |
| |
- | Radiotherapy completion date | 561389 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Radiotherapy fractions administered | 561464 | Number
[2]
| 97 | Not applicable-no radiotherapy was administered | 98 | Unknown whether radiotherapy was administered | 99 | Radiotherapy administered but the number of fractions not stated/inadequately described |
| |
- | Radiotherapy start date—cancer treatment | 561469 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Radiotherapy target site | 561476 | Number
[2]
| 1 | Primary site only | 2 | Regional nodes only | 3 | Distant metastases only | 4 | Primary site and regional nodes | 5 | Primary site and distant metastases | 6 | Primary site, regional nodes and distant metastases | 7 | Regional nodes and distant metastases | 97 | Not applicable-radiotherapy was not administered | 98 | Unknown whether radiotherapy was administered | 99 | Radiotherapy was administered but the site not stated/inadequately described |
| |
- | Radiotherapy treatment type | 561521 | Number
[2]
| 1 | External beam radiotherapy only | 2 | Brachytherapy only | 3 | Unsealed radioisotopes only | 4 | External beam radiotherapy and brachytherapy | 5 | External beam radiotherapy and unsealed radioisotopes | 6 | Brachytherapy and unsealed radioisotopes | 7 | External beam radiotherapy, brachytherapy and unsealed radioisotopes | 97 | Not applicable-radiotherapy was not administered | 98 | Unknown whether radiotherapy was administered | 99 | Radiotherapy was administered but the treatment type not stated/inadequately described |
| |
- | Surgery for cancer cluster | 561539 |
|
| Conditional obligation: Conditional on the patient receiving cancer-directed surgery. |
- | Surgery target site | 561567 | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | |
- | Surgical procedure date | 561574 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Surgical procedure for cancer | 562816 | Number
[7]
| NNNNN-NN The Australian Classification of Health Intervention (8th edition) code set representing procedures. | |
- | Systemic therapy procedure for cancer cluster | 561601 |
|
| Conditional obligation: Conditional on the patient receiving a systemic therapy procedure. |
- | Systemic therapy procedure date | 561606 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Systemic therapy procedure | 561612 | Number
[2]
| 1 | A bone marrow transplant procedure was administered but the type was not specified | 2 | Bone marrow transplant—autologous only | 3 | Bone marrow transplant—allogeneic only | 4 | Stem cell harvest and infusion only | 5 | Endocrine surgery and/or endocrine radiation therapy only | 6 | Combination of endocrine surgery and/or radiation with a transplant procedure | 96 | Other systemic therapy procedure | 97 | Not applicable-no systemic therapy procedures were administered | 98 | Unknown whether systemic therapy procedures were administered | 99 | Systemic therapy procedures were administered but were not stated/inadequately described |
| |
- | Cancer staging scheme source edition number | 393398 | Number
[2]
| 97 | Not applicable | 98 | Unknown | 99 | Not stated/inadequately described |
| |
- | Staging scheme source | 393364 | Number
[2]
| 1 | TNM Classification of Malignant Tumours (UICC) | 2 | Durie & Salmon for multiple myeloma staging | 3 | French-American-British (FAB) for leukaemia classification | 4 | Australian Clinico-Pathological Staging (ACPS) System for colorectal cancer | 5 | International Federation of Gynecologists & Obstetricians (FIGO) for gynaecological cancers | 6 | Dukes/Modified Dukes for colorectal cancer | 7 | Ann Arbor staging system for lymphomas | 8 | Binet Staging Classification for chronic lymphocytic leukaemia | 9 | Rai staging system for chronic lymphocytic leukaemia | 10 | Chronic Myeloid Leukaemia (CML) staging system | 11 | International Staging System (ISS) for myeloma | 12 | American Joint Committee on Cancer (AJCC) Cancer Staging Manual | 96 | Other reference | 97 | Not applicable | 98 | Unknown | 99 | Not stated/inadequately described |
| |
- | Staging basis of cancer | 422604 | String
[1]
| | |
- | Cancer treatment type | 561618 | Number
[2]
| 1 | Surgery only | 2 | Radiotherapy only | 3 | Systemic agent therapy only | 4 | Surgery and radiotherapy | 5 | Surgery and systemic agent therapy | 6 | Radiotherapy and systemic agent therapy | 7 | Surgery, radiotherapy and systemic agent therapy | 97 | Not applicable—treatment was not administered | 98 | Unknown whether treatment was administered | 99 | Treatment was administered but the type was not stated/inadequately described |
| |
- | Other cancer treatment description | 561623 | String
[150]
| X[X(149)] The cancer-directed treatment administered to the patient that cannot be defined as surgery, radiotherapy or systemic therapy. | Conditional obligation: Conditional on the patient having treatment that cannot be defined as surgery, radiotherapy or systemic therapy according to the definitions of those data items in this data set specification. |
- | Outcome of treatment | 561665 | Number
[2]
| 1.0 | Complete response/no evidence of disease | 2.1 | Partial response | 2.2 | Stable or static disease | 2.3 | Progressive disease | 7.0 | Not assessed or unable to be assessed | 8.0 | Unknown | 9.0 | Not stated/inadequately described |
| |
- | Date accuracy indicator | 294429 | String
[3]
| AAA | Day, month and year are accurate | AAE | Day and month are accurate, year is estimated | AAU | Day and month are accurate, year is unknown | AEA | Day is accurate, month is estimated, year is accurate | AEE | Day is accurate, month and year are estimated | AEU | Day is accurate, month is estimated, year is unknown | AUA | Day is accurate, month is unknown, year is accurate | AUE | Day is accurate, month is unknown, year is estimated | AUU | Day is accurate, month and year are unknown | EAA | Day is estimated, month and year are accurate | EAE | Day is estimated, month is accurate, year is estimated | EAU | Day is estimated, month is accurate, year is unknown | EEA | Day and month are estimated, year is accurate | EEE | Day, month and year are estimated | EEU | Day and month are estimated, year is unknown | EUA | Day is estimated, month is unknown, year is accurate | EUE | Day is estimated, month is unknown, year is estimated | EUU | Day is estimated, month and year are unknown | UAA | Day is unknown, month and year are accurate | UAE | Day is unknown, month is accurate, year is estimated | UAU | Day is unknown, month is accurate, year is unknown | UEA | Day is unknown, month is estimated, year is accurate | UEE | Day is unknown, month and year are estimated | UEU | Day is unknown, month is estimated, year is unknown | UUA | Day and month are unknown, year is accurate | UUE | Day and month are unknown, year is estimated | UUU | Day, month and year are unknown |
| |
- | Establishment number | 269975 | Number
[5]
| NNNNN A combination of numeric characters that identify an entity. | |
- | HPI-O | 426830 | Number
[16]
| N(16) A unique combination of numbers that identifies an individual or organisation where healthcare is provided within Australia. | |
- | Cancer status | 394071 | Number
[1]
| 1 | No evidence of cancer | 2 | Evidence of cancer | 8 | Unknown whether there is evidence of cancer | 9 | Not stated/inadequately described |
| |
- | Date of last contact—cancer patient | 394060 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Date of diagnosis of cancer | 416129 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Date of diagnosis of first recurrence as distant metastasis | 393841 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Conditional on the patient being diagnosed with recurrence involving a distant metastasis. |
- | Date of diagnosis of first recurrence as locoregional cancer | 393837 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Conditional on the patient being diagnosed with recurrence of locoregional cancer. |
- | Address line (person) | 286620 | String
[180]
| X[X(179)]
A combination of alphanumeric characters. | |
- | Family name | 286953 | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | |
- | Given name(s) | 287035 | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | |
- | Cancer staging—M stage code | 403720 | String
[3]
| 997 | Not applicable | 998 | Unknown | 999 | Not stated/inadequately described |
| |
- | Cancer staging—stage grouping other | 393377 | String
[6]
| 999997 | Not applicable | 999998 | Unknown | 999999 | Not stated/inadequately described |
| |
- | Cancer staging—TNM stage grouping code | 403726 | String
[3]
| 997 | Not applicable | 998 | Unknown | 999 | Not stated/inadequately described |
| |
- | Histopathological grade | 422555 | Number
[1]
| 1 | Grade 1: Low grade; well differentiated, differentiated, NOS | 2 | Grade 2: Intermediate grade, moderately differentiated, moderately well differentiated, intermediate differentiation | 3 | Grade 3: High grade, poorly differentiated | 4 | Grade 4: Undifferentiated, anaplastic | 9 | Grade or differentiation not determined, not stated or not applicable |
| |
- | Laterality of primary cancer | 422769 | String
[1]
| R | Right | L | Left | B | Bilateral | N | Not applicable | U | Unknown |
| |
- | Morphology of cancer | 399491 | Number
[5]
| NNNN/N The ICD-O (3rd edition) code set representing the histology and behaviour of cancer tissue. | |
- | Most valid basis of diagnosis of cancer | 422772 | Number
[1]
| 0 | Death certificate only: Information provided is from a death certificate | 1 | Clinical: Diagnosis made before death, but without any of the following (codes 2-7) | 2 | Clinical investigation: All diagnostic techniques, including x-ray, endoscopy, imaging, ultrasound, exploratory surgery (e.g. laparotomy), and autopsy, without a tissue diagnosis | 4 | Specific tumour markers: Including biochemical and/or immunological markers that are specific for a tumour site | 5 | Cytology: Examination of cells from a primary or secondary site, including fluids aspirated by endoscopy or needle; also includes the microscopic examination of peripheral blood and bone marrow aspirates | 6 | Histology of metastasis: Histological examination of tissue from a metastasis, including autopsy specimens | 7 | Histology of a primary tumour: Histological examination of tissue from primary tumour, however obtained, including all cutting techniques and bone marrow biopsies; also includes autopsy specimens of primary tumour | 8 | Histology: either unknown whether of primary or metastatic site, or not otherwise specified | 9 | Unknown. |
| |
- | Most valid basis of diagnosis of recurrence | 394047 | Number
[1]
| 0 | Death certificate only: Information provided is from a death certificate | 1 | Clinical: Diagnosis made before death, but without any of the following (codes 2-7) | 2 | Clinical investigation: All diagnostic techniques, including x-ray, endoscopy, imaging, ultrasound, exploratory surgery (e.g. laparotomy), and autopsy, without a tissue diagnosis | 4 | Specific tumour markers: Including biochemical and/or immunological markers that are specific for a tumour site | 5 | Cytology: Examination of cells from a primary or secondary site, including fluids aspirated by endoscopy or needle; also includes the microscopic examination of peripheral blood and bone marrow aspirates | 6 | Histology of metastasis: Histological examination of tissue from a metastasis, including autopsy specimens | 7 | Histology of a primary tumour: Histological examination of tissue from primary tumour, however obtained, including all cutting techniques and bone marrow biopsies; also includes autopsy specimens of primary tumour | 8 | Histology: either unknown whether of primary or metastatic site, or not otherwise specified | 9 | Unknown. |
| Conditional obligation: Conditional on the return, reappearance or metastasis of cancer of the same histology after a disease-free intermission or remission. |
- | Regional lymph nodes positive | 415959 | Number
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: Conditional on the regional lymph nodes being excised and examined by a pathologist and demonstrated to be positive for malignancy. |
- | Number of regional lymph nodes examined | 415971 | Number
[2]
| 99 | Not stated/inadequately described |
| Conditional obligation: Conditional on the regional lymph nodes being excised and examined by a pathologist. |
- | Primary site of cancer (ICD-O-3 code) | 396090 | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | |
- | Cancer staging—T stage code | 403564 | String
[4]
| 9997 | Not applicable | 9998 | Unknown | 9999 | Not stated/inadequately described |
| |
- | Region of first recurrence as distant metastasis | 393854 | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | Conditional obligation: Conditional on the patient being diagnosed with recurrence of distant metastasis. |
- | Region of first recurrence as locoregional cancer | 393848 | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | Conditional obligation: Conditional on the patient being diagnosed with recurrence of locoregional cancer. |
- | Cancer staging—N stage code | 403661 | String
[3]
| 997 | Not applicable | 998 | Unknown | 999 | Not stated/inadequately described |
| |
- | Tumour size at diagnosis (solid tumours) | 422642 | String
[3]
| | Conditional obligation: Conditional on the histopathological examination of the tumour, and excludes Phyllodes tumours, sarcomas or lymphomas. |
- | Date of birth | 287007 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Date of death | 287305 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Recorded when the patient has died.DSS specific information: This field must be greater than or equal to Date of diagnosis of primary cancer. |
- | Medicare card number | 270101 | Number
[11]
| N(11) A combination of numeric characters that uniquely identify a Medicare customer. | |
- | Indigenous status | 291036 | Number
[1]
| 1 | Aboriginal but not Torres Strait Islander origin | 2 | Torres Strait Islander but not Aboriginal origin | 3 | Both Aboriginal and Torres Strait Islander origin | 4 | Neither Aboriginal nor Torres Strait Islander origin | 9 | Not stated/inadequately described |
| |
- | Person identifier | 290046 | String
[20]
| XXXXXX[X(14)]
A logical combination of valid alphanumeric characters that identify an entity. | |
- | Sex | 287316 | Number
[1]
| 1 | Male | 2 | Female | 3 | Intersex or indeterminate | 9 | Not stated/inadequately described |
| |
- | Underlying cause of death | 307931 | String
[7]
| ANN-ANN
The ICD-10 code set representing the disease or injury which initiated the train of morbid events leading directly to death or the circumstances of the accident or violence which produced the fatal injury (WHO 2004). | Conditional obligation: Recorded when the patient has died. |