1 | Person identifier (20 character maximum) | 529217 | String
[20]
| X[X(19)]
A logical combination of alphanumeric characters that identify an entity. | |
2 | Correspondence identifier | 321496 | Number
[9]
| N[N(8)] A number which uniquely identifies an entity. | DSS specific information: People can have multiple interactions with the National Bowel Cancer Screening Program (NBCSP) system and will have a different correspondence number for each interaction. For example, a person will have a correspondence identifier for a screening invitation, a faecal occult blood test (FOBT), a general practitioner consultation and a colonoscopy. |
3 | Given name(s) | 287035 | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | |
4 | Given name sequence number | 287595 | Number
[1]
| 1 | First given name | 2 | Second given name | 3 | Third given name | 4 | Fourth given name | 5 | Fifth given name | 6 | Sixth given name | 7 | Seventh given name | 8 | Eighth given name | 9 | Ninth and subsequent given name |
| |
5 | Family name | 286953 | String
[40]
| X[X(39)]
A combination of alphanumeric characters. | |
6 | Sex | 287316 | Number
[1]
| 1 | Male | 2 | Female | 3 | Intersex or indeterminate | 9 | Not stated/inadequately described |
| |
7 | Date of birth | 287007 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
8 | Age | 303794 | Number
[3]
| | |
9 | Indigenous status | 602543 | Number
[1]
| 1 | Aboriginal but not Torres Strait Islander origin | 2 | Torres Strait Islander but not Aboriginal origin | 3 | Both Aboriginal and Torres Strait Islander origin | 4 | Neither Aboriginal nor Torres Strait Islander origin | 9 | Not stated/inadequately described |
| |
10 | Main language other than English spoken at home | 460125 | Number
[4]
| NN{NN} The Australian Standard Classification of Languages (ASCL 2011) code set representing languages. | |
11 | Disability status | 312934 | Boolean
[1]
| 1 | Yes | 2 | No | 9 | Not stated/inadequately described |
| |
12 | Australian state/territory identifier (person) | 286919 | Number
[1]
| 1 | New South Wales | 2 | Victoria | 3 | Queensland | 4 | South Australia | 5 | Western Australia | 6 | Tasmania | 7 | Northern Territory | 8 | Australian Capital Territory | 9 | Other territories (Cocos (Keeling) Islands, Christmas Island and Jervis Bay Territory) |
| DSS specific information: This is the state in which the person lives. |
13 | Australian postcode (address) | 429894 | Number
[4]
| {NNNN}
The Postcode datafile code set representing Australian postcodes as defined by Australia Post. | |
14 | Geographic remoteness | 569240 | Number
[1]
| 1 | Major cities of Australia | 2 | Inner regional Australia | 3 | Outer regional Australia | 4 | Remote Australia | 5 | Very remote Australia | 6 | Migratory | 9 | Not stated/inadequately described |
| |
15 | Socio-Economic Indexes for Areas (SEIFA) (2011 Census, ASGS 2011) cluster | 517903 |
|
| DSS specific information: To accurately report SEIFA information, sufficient geographic information needs to be reported. For the NBCSP, the data element Address—statistical area, level 1 (SA1) code (ASGS 2011) N(11) needs to be provided. Currently, the NBCSP does not collect information on either the Person—area of usual residence, geographical location code (ASGC 2011) NNNNN data element or the Person—area of usual residence, statistical area level 2 (SA2) code (ASGS 2011) N(9) data element. |
- | Collection of locality, postcode and state/territory for SEIFA cluster | 528146 |
|
| |
- | Australian postcode (address) | 429894 | Number
[4]
| {NNNN}
The Postcode datafile code set representing Australian postcodes as defined by Australia Post. | |
- | Australian state/territory identifier of address | 430134 | String
[3]
| NSW | New South Wales | VIC | Victoria | QLD | Queensland | SA | South Australia | WA | Western Australia | TAS | Tasmania | NT | Northern Territory | ACT | Australian Capital Territory | AAT | Australian Antarctic Territory |
| |
- | Suburb/town/locality name within address | 429889 | String
[46]
| X[X(45)]
A combination of alphanumeric characters. | |
- | Statistical area level 1 (SA1) | 457287 | String
[11]
| N(11)
A code set representing the smallest unit for the release of Census data. | |
- | Area of usual residence | 455536 | Number
[5]
| NNNNN The ASGC (2011) code set representing geographical location. | |
- | Area of usual residence (SA1) | 492361 | String
[11]
| N(11)
A code set representing the smallest unit for the release of Census data. | |
- | Area of usual residence (SA2) | 469909 | String
[9]
| N(9) A code set representing a medium-sized area built from whole Statistical areas level 1 (SA1s). The aim of Statistical areas level 2 (SA2s) is to represent a community that interacts together socially and economically. | |
16 | Screening invitation date | 530061 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
17 | Disease screening invitation round count | 568644 | Number
[2]
| 99 | Not stated/inadequately described |
| |
18 | First screening participation | 530590 | Boolean
[1]
| | |
19 | Participation in last biennial screening program indicator | 563608 | Boolean
[1]
| | Conditional obligation: Reporting of this data element is conditional upon answering 'No' to the Person—first disease screening program participation indicator, yes/no code N data element. |
20 | Opted off a disease screening program indicator | 568070 | Boolean
[1]
| | DSS specific information: Invitees who do not wish to participate in the National Bowel Cancer Screening Program now or in the future may opt off the Program. Invitees will not be contacted again. Invitees may elect to opt back on at a later date. |
21 | Reason for opting off a disease screening program | 568086 | Number
[1]
| 1 | Already having cancer surveillance | 2 | Having regular colonoscopy | 3 | Having regular screening | 4 | Medical advice not to participate | 5 | Uncomfortable with process | 6 | Privacy concerns | 7 | Not interested | 8 | Other | 9 | Not stated/inadequately described |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Person—opted off from a disease screening program indicator, yes/no code N data element. |
22 | Opted off from a disease screening program date | 576720 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Person—opted off from a disease screening program indicator, yes/no code N data element. |
23 | Suspended participation from a disease screening program indicator | 568073 | Boolean
[1]
| | DSS specific information: Invitees who would like to participate in the National Bowel Cancer Screening Program but are unable to do so at this time. Invitees will be contacted once the nominated suspension period has elapsed. |
24 | Reason for suspending disease screening participation | 568098 | Number
[1]
| 1 | Recent colonoscopy | 2 | Other recent screening | 3 | Seeking general practitioner (GP) advice | 4 | Illness | 5 | Travelling | 6 | Administrative reason | 8 | Other reason | 9 | Not stated/inadequately described |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Person—suspended participation from a disease screening program indicator, yes/no code N data element. |
25 | Suspended participation from a disease screening program date | 576728 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Person—suspended participation from a disease screening program indicator, yes/no code N data element. |
26 | Cancer screening test indicator | 571236 | Boolean
[1]
| | |
27 | Bowel cancer screening test cluster | 571219 |
|
| Conditional obligation: Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer screening test indicator, yes/no code N data element. |
1 | Bowel cancer screening test type | 529838 | Number
[1]
| 1 | Faecal occult blood test (FOBT) | 8 | Other test type |
| |
2 | Screening test completion status | 529906 | Number
[1]
| 1 | Correctly completed | 2 | Incorrectly completed | 3 | Unsatisfactory |
| |
3 | Screening test analysis date | 568129 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
4 | Screening test result sent date | 530003 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
5 | Bowel cancer screening test result | 530020 | String
[2]
| 1 | Positive | 2 | Negative | 3 | Inconclusive | 4 | No result | 1F | Positive - faulty | 2F | Negative - faulty | 3F | Inconclusive - faulty | 4F | No result - faulty |
| DSS specific information: A faecal occult blood test (FOBT) screening test is: - positive if blood was detected in either sample
- negative if blood was not detected in either sample
- inconclusive if only one sample was taken and it was negative
- no result if screening test could not be analysed.
Other screening tests, when they become available, may have different indications for positive results. However, a positive result with any screening test is one that means further investigations are required. Participants with a positive result are encouraged to visit their primary health care professional to follow up this finding. Those with an inconclusive result are requested to complete another FOBT kit, while those with a negative result are reminded that it is recommended they rescreen every two years. At this stage, the screening pathway does not account for false negatives or positives. |
28 | Cancer diagnostic assessment indicator | 563770 | Boolean
[1]
| | DSS specific information: Participants with a positive faecal occult blood test (FOBT) result, indicating blood in their bowel motion, are advised to consult their primary health care practitioner to discuss further testing. |
29 | Bowel cancer diagnostic assessment cluster | 563761 |
|
| Conditional obligation: Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer diagnostic assessment indicator, yes/no code N data element. |
1 | Cancer diagnostic assessment date | 530106 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
2 | Bowel cancer diagnostic assessment type | 530093 | Number
[1]
| 1 | Colonoscopy | 2 | Computerised Tomography (CT) colonography |
| |
3 | Australian State/Territory identifier (establishment) | 269941 | Number
[1]
| 1 | New South Wales | 2 | Victoria | 3 | Queensland | 4 | South Australia | 5 | Western Australia | 6 | Tasmania | 7 | Northern Territory | 8 | Australian Capital Territory | 9 | Other territories (Cocos (Keeling) Islands, Christmas Island and Jervis Bay Territory) |
| DSS specific information: This is the state in which a bowel cancer diagnostic assessment occurs. This can be different to the person's state or territory of usual residence, e.g. a person living in Queanbeyan (in NSW) may undergo a diagnostic assessment in Canberra, i.e. in the ACT. |
4 | Colonoscope withdrawal time | 530145 | Number
[3]
| NNN A valid time measured in minutes. | Conditional obligation: Reporting of this data element is conditional upon answering 'Colonoscopy' to the Person—cancer diagnostic assessment type, bowel cancer code N data element. |
5 | Colonoscope depth | 530159 | String
[4]
| TI | Terminal ileum | CAEC | Caecum | ASC | Ascending colon | HEP | Hepatic flexure | TRAN | Transverse colon | SPLN | Splenic flexure | DESC | Descending colon | SIG | Sigmoid colon | RECT | Rectum | 99 | Not stated or unknown |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Colonoscopy' to the Person—cancer diagnostic assessment type, bowel cancer code N data element. |
6 | Election status | 566135 | Number
[1]
| 1 | Public patient | 2 | Private patient |
| |
7 | Sedation received indicator | 563828 | Boolean
[1]
| | DSS specific information: The level of sedation used should comply with ANZCA standards (ANZCA 2010). The level of sedation used should generally be related to the risk of complications for each individual patient as documented in the pre-procedure patient assessment. Further, deep sedation and general anaesthesia may only be used in the presence of an anaesthetist or other appropriately trained and credentialed medical specialist within his/her scope of practice. Non‑anaesthetist medical staff require adequate training in the safe and correct usage of sedation equipment and drugs, and in the management and monitoring of sedated patients in accordance with the guidelines. Reference: ANZCA (Australian and New Zealand College of Anaesthetists) 2010. Guidelines on Sedation and/or Analgesia for Diagnostic and Interventional Medical, Dental or Surgical Procedures. Viewed 23 March 2012, www.anzca.edu.au/resources/professional-documents/documents/ professional-standards/pdf-files/PS9-2010.pdf |
8 | Sedation type | 530119 | Number
[1]
| 1 | Conscious sedation | 2 | Deep sedation | 3 | General anaesthesia | 9 | Not stated |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Patient—sedation received indicator, yes/no code N data element. |
9 | Health professional who administered sedation | 530135 | Number
[1]
| 1 | Colonoscopist | 2 | General practitioner | 3 | Nurse | 4 | Anaesthetist |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Patient—sedation recieved indicator, yes/no code N data element. |
10 | Polyps found in colon indicator | 530230 | Boolean
[1]
| | |
11 | Number of polyps found | 530387 | Number
[3]
| N[NN] The total, sum, count, or aggregate of a collection of units. | Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Patient—colorectal polyps found in colon indicator, yes/no code N data element. DSS specific information: There could be multiple polyps listed if multiple polyps are found during an assessment. |
12 | Colorectal polyps greater than or equal to 10 mm indicator | 530295 | Boolean
[1]
| | Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Patient—colorectal polyps found in colon indicator, yes/no code N data element.DSS specific information: There could be multiple polyps listed if multiple polyps are found during an assessment. |
13 | Site of polyps | 530510 | String
[4]
| TI | Terminal ileum | CAEC | Caecum | ASC | Ascending colon | HEP | Hepatic flexure | TRAN | Transverse colon | SPLN | Splenic flexure | DESC | Descending colon | SIG | Sigmoid colon | RECT | Rectum | 99 | Not stated or unknown |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Patient—colorectal polyps found in colon indicator, yes/no code N data element.DSS specific information: There could be multiple polyps listed if multiple polyps are found during an assessment. |
14 | Colorectal polyps type | 530385 | Number
[2]
| 1 | Hyperplastic polyp | 2 | Tubular adenoma | 3 | Tubulovillous adenoma | 4 | Villous adenoma | 5 | Sessile serrated adenoma | 6 | Traditional serrated adenoma | 7 | Adenoma not otherwise classified | 8 | Carcinoma | 88 | Other - includes other polyp types |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Patient—colorectal polyps found in colon indicator, yes/no code N data element.DSS specific information: There could be multiple polyps listed if multiple polyps are found during an assessment. |
15 | Grade of polyps found | 530490 | Number
[1]
| 1 | Low grade dysplasia | 2 | High grade dysplasia/in situ | 3 | Suspicious for invasion | 4 | Invasive carcinoma | 9 | No dysplasia |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Person—colorectal polyps found in colon, yes/no code N data element.DSS specific information: There could be multiple polyps listed if multiple polyps are found during an assessment. |
16 | Adverse event indicator | 567756 | Boolean
[1]
| | DSS specific information: There is the risk of an adverse event occurring during a cancer diagnostic assessment. Monitoring of adverse events through the NBCSP is important to ensure participant safety in the Program. |
17 | Type of adverse event (bowel cancer diagnostic assessment) | 532873 | Number
[2]
| 1 | Bleeding | 2 | Infection or sepsis | 4 | Perforation | 8 | Reaction to sedation | 16 | Death | 88 | Other |
| Conditional obligation: Reporting of this data element is conditional upon answering 'Yes' to the Person—adverse event indicator, yes/no code N data element.DSS specific information: In this data element cluster, Code 32 is used to represent Code 88, Other. |
18 | Cancer status | 394071 | Number
[1]
| 1 | No evidence of cancer | 2 | Evidence of cancer | 8 | Unknown whether there is evidence of cancer | 9 | Not stated/inadequately described |
| DSS specific information: Codes 8 and 9 are not used in the Bowel cancer diagnostic assessment cluster. |
30 | Bowel cancer diagnosed cluster | 567581 |
|
| Conditional obligation: Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer diagnosed indicator, yes/no code N data element. DSS specific information: People who have or will be participating in Bowel cancer screening programs and who have answered yes in relation to having a cancer diagnosis. |
1 | Primary site of cancer (ICD-O-3 code) | 396090 | String
[5]
| ANN.N
The ICD-O (3rd edition) topography code set representing the site of the tumour. | |
2 | Date of diagnosis of cancer | 416129 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
3 | Staging scheme source | 393364 | Number
[2]
| 1 | TNM Classification of Malignant Tumours (UICC) | 2 | Durie & Salmon for multiple myeloma staging | 3 | French-American-British (FAB) for leukaemia classification | 4 | Australian Clinico-Pathological Staging (ACPS) System for colorectal cancer | 5 | International Federation of Gynecologists & Obstetricians (FIGO) for gynaecological cancers | 6 | Dukes/Modified Dukes for colorectal cancer | 7 | Ann Arbor staging system for lymphomas | 8 | Binet Staging Classification for chronic lymphocytic leukaemia | 9 | Rai staging system for chronic lymphocytic leukaemia | 10 | Chronic Myeloid Leukaemia (CML) staging system | 11 | International Staging System (ISS) for myeloma | 12 | American Joint Committee on Cancer (AJCC) Cancer Staging Manual | 96 | Other reference | 97 | Not applicable | 98 | Unknown | 99 | Not stated/inadequately described |
| DSS specific information: The data element is used to derive a value describing the patient's colorectal cancer clinico-pathological stage. |
4 | Staging basis of cancer | 422604 | String
[1]
| | DSS specific information: The data element is used to derive a value describing the patient's colorectal cancer clinico-pathological stage. |
5 | Cancer staging—TNM stage grouping code | 403726 | String
[3]
| 997 | Not applicable | 998 | Unknown | 999 | Not stated/inadequately described |
| DSS specific information: The data element is used to derive a value describing the patient's colorectal cancer clinico-pathological stage. |
6 | Admission date | 269967 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
31 | Date of death | 287305 | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | Conditional obligation: Only to be answered if the person has died. |
32 | Underlying cause of death | 307931 | String
[7]
| ANN-ANN
The ICD-10 code set representing the disease or injury which initiated the train of morbid events leading directly to death or the circumstances of the accident or violence which produced the fatal injury (WHO 2004). | Conditional obligation: Only to be answered if the person has died. |