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Dementia NBPDS

Identifying and definitional attributes

Metadata item type:Help on this termData Set Specification
METeOR identifier:Help on this term737872
Registration status:Help on this termHealth, Candidate 15/11/2021
DSS type:Help on this termData Set Specification (DSS)
Scope:Help on this term

The Dementia National Best Practice Data Set (NBPDS) aims to ensure national consistency in relation to defining and recording information on people with dementia and their carers.

The Dementia NBPDS relates to the clinical status of the provision of services delivered to individuals with dementia, across the health and social welfare sectors, including:

  • Aged care service providers
  • Allied health
  • Clinical registries
  • Cognitive and memory clinics
  • Community care
  • Disability service providers
  • Epidemiology
  • General practice
  • Mental health
  • Public health
  • Research databases
  • Specialists in private practice
  • Surveys

The Dementia NBPDS provides concise and unambiguous definitions for items related to dementia diagnosis, treatment and management. It also aims to ensure a standardised methodology of data collection in Australia, that is harmonised across collection settings.

Admitted patient care, emergency department and mortality data are not in scope for this collection, as they fall under other National Minimum Data Sets. While these are not specific to dementia, the coding and capture of dementia in those collections is well specified, documented and nationally (and internationally) agreed.

Collection and usage attributes

Statistical unit:Help on this term

A Person

Guide for use:Help on this term

The Dementia NBPDS encourages national consistency in the definition, collection and recording of information on people with dementia in a range of clinical and non-clinical settings across the health, aged care and social welfare sectors.

It contains clusters of items specific to clinical settings and self-reported settings, as well as general items encouraged for collection in all settings.

These definitions may prospectively influence existing and emerging collection arrangements. For example, a practice that currently reports on services provided to people with dementia may choose to adjust how components of a diagnosis are captured to align with this nationally consistent specification.

Collection methods:Help on this term

This data set is designed to be used by a range of health, aged care and disability service providers and establishments that create, use or maintain records on clients with dementia.

The data set can be applied to ongoing administrative collections or to survey collections, in both clinical and non-clinical settings.

Comments:Help on this term

Glossary terms that are relevant to this DSS include:

Dementia

Diagnosis

Disability

Family

Gender

Informal carer

​Sex

Veteran

Source and reference attributes

Submitting organisation:Help on this term

Australian Institute of Health and Welfare

Metadata items in this Data Set SpecificationHelp on this term

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Seq No.Help on this termMetadata itemHelp on this term ObligationHelp on this term Max occursHelp on this term
-Activity and participation need for assistance clusterOptional1
-Dementia clinical diagnosis clusterConditional1
-Date—accuracy indicator, code AAAOptional3
-Person—ADF veteran status, code NOptional2
-Person—area of usual residence, statistical area level 2 (SA2) code (ASGS Edition 3) N(9)Mandatory1
-Person—country of birth, code (SACC 2016) NNNNOptional1
-Person—date of birth, DDMMYYYYMandatory1
-Person—date of death, DDMMYYYYOptional1
-Person—dementia comorbidities, diagnosis code (ICD-10-AM 12th edn) ANN{.N[N]}Optional99
-Person—dementia diagnosis status, code NMandatory1
-Person—dementia risk factors, code NNOptional99
-Person—diagnosis date of dementia, DDMMYYYYOptional1
-Person—gender, code XConditional1
-Person—Indigenous status, code NOptional1
-Person—informal carer existence indicator, yes/no/not stated/inadequately described code NOptional1
-Person—informal carer relationship to care recipient, interpersonal carer relationship code N[N]Conditional99
-Person—living arrangement, dementia code NNOptional1
-Person—main language other than English spoken at home, code (ASCL 2016) N[NNN]Optional1
-Person—marital status, code NOptional1
-Person—non-clinical type of dementia, code NConditional1
-Person—proficiency in spoken English, code NOptional1
-Person—residential setting, dementia code NNOptional1
-Person—sex, code XConditional1
-Person—year of first arrival in Australia, date YYYYConditional1
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