Identifying and definitional attributes
|Metadata item type:||Quality Statement|
|Synonymous names:||NBCSP DQS|
|Registration status:||AIHW Data Quality Statements, Endorsed 02/12/2019|
|Quality statement summary:|
Summary of Key Issues
The NBCSP is managed by the Australian Government Department of Health in partnership with state and territory governments. The NBCSP started in 2006 and uses national invitation and screening analysis processes. A ‘usual care’ model is then used for follow-up functions for those with a positive (abnormal) screening result; that is, these people are encouraged to see their doctor to discuss the test result and seek further diagnostic testing (such as colonoscopy) as required. Data from these follow-up functions are returned to the national NBCSP Register via non-mandatory form return.
Program expansion to implement a biennial screening interval for those aged 50–74 started in January 2015 and roll-out (with all age groups included) was completed from 1 January 2019. Eligible Australians (Australian citizens or migrants in the Medicare enrolment file, or who are registered with a Department of Veterans’ Affairs gold card) aged 50–74 will be invited to screen every 2 years.
NBCSP data depend on the return of data forms from participants, general practitioners, colonoscopists and pathologists to the NBCSP Register. The register is currently maintained by the Department of Human Services (DHS) (formerly Medicare Australia). Data from the register are provided to the Australian Institute of Health and Welfare (AIHW) 6-monthly as de-identified unit record data. However, in November 2019, NBCSP data will be transitioned into the National Cancer Screening Register (NCSR), that currently houses National Cervical Screening Program data, and is maintained by Telstra Health (TH). This means in future data will be available for download monthly.
The NBCSP is monitored annually by the AIHW. Results are compiled and reported at the national level by the AIHW in an annual NBCSP monitoring report.
The AIHW is a major national agency set up in 1987 by the Australian Government under the Australian Institute of Health and Welfare Act 1987 (Cwlth) to provide reliable, regular and relevant information and statistics on Australia’s health and welfare. It is an independent statutory authority, which is governed by a management board, and accountable to the Australian Parliament through the Australian Government Health portfolio.
The AIHW aims to improve the health and wellbeing of Australians through better health and welfare information and statistics. It collects and reports information on a wide variety of topics and issues, including health and welfare expenditure, hospitals, disease and injury, mental health, ageing, homelessness, disability and child protection.
The AIHW also plays a role in developing and maintaining national metadata standards. This work helps improve the quality and consistency of national health and welfare statistics. The AIHW works closely with governments and non-government organisations to achieve greater adherence to those standards in administrative data collections to promote national consistency and comparability of data and reporting.
One of the main functions of the AIHW is to work with the states and territories to improve the quality of administrative data and, where possible, to compile national data sets based on data from each jurisdiction, analyse the data sets, and disseminate information and statistics.
Compliance with the provisions of both the Australian Institute of Health and Welfare Act and the Privacy Act 1988 (Cwlth) ensures that the data collections managed by the AIHW are kept securely and under the strictest conditions to preserve privacy and confidentiality.
For further information, see www.aihw.gov.au.
Under agreement with the Department of Health and AIHW, the Department of Human Services supply a de-identified snapshot of all NBCSP activity to the AIHW at 6-month intervals. The AIHW has been receiving these data, for reporting purposes, since 2006. From 2020, the NCSR will make a raw data extract available for download each month.
The data discussed in this data quality statement cover the period January 2016–December 2018.
Therefore, the performance indicators included in this report use the latest practical data available.
The NBCSP annual monitoring reports, and any supplementary data, are available via the AIHW website where they can be downloaded free of charge. Users can request data not available online or in reports via the Screening Analysis & Monitoring Unit of the AIHW on (02) 6244 1000 or via email to email@example.com. Requests that take longer than half an hour to compile are charged for on a cost-recovery basis.
General enquiries about AIHW publications can be made to the Strategic Communications and Stakeholder Engagement Unit on (02) 6244 1000 or via email to firstname.lastname@example.org.
Details of NBCSP performance indicators can be found at Key performance indicators for the National Bowel Cancer Screening Program.
While the concept of participation in the NBCSP is easy to interpret, the NBCSP screening pathway and other concepts and statistical calculations are more complex and may be confusing to some users. All concepts are explained within the body of the reports presenting these data, along with footnotes to provide further details and caveats. The appendixes provide additional detail on the data sources and classifications, and on the statistical methods used.
NBCSP screening data are highly relevant for monitoring trends and outcomes from NBCSP screening participation. It is important to note that additional bowel cancer screening is undertaken outside of the NBCSP. Data on people screened outside the program are not routinely collected; therefore, the level of underestimation of overall bowel cancer screening in Australia is unknown.
Socioeconomic status Index of Relative Socio-economic Disadvantage (IRSD) rankings are calculated by Postal Area (POA) using a population-based method at the Australia-wide level. These ranked socioeconomic status POAs are then allocated to their relevant jurisdiction, meaning quintiles should contain similar socioeconomic groups across jurisdictions.
Self-reporting of Aboriginal and Torres Strait Islander, language spoken at home and disability status within the program means these data are dependent on accurate, and complete, information.
Socioeconomic status IRSD rankings are only measured at the time of the Australian Census of Population and Housing and are not available for approximately 18 months from the census date. Consequently, socioeconomic status for a geographical area may be up to 6 years out of date and not an accurate representation of the status of residents at the time the data is analysed.
An Australian Bureau of Statistics POA to remoteness correspondence and a POA to socioeconomic status correspondence are used to allocate persons screened to remoteness and socioeconomic status areas based on their postcode of residence. POAs are defined to match Australia Post postcodes as closely as possible, but for various reasons, they do not match identically. Socioeconomic status is calculated using a population-based method at the Australia-wide level.
The remoteness (and socioeconomic status) to POA correspondences are based on postal areas, boundaries and classifications as at the year of the last Australian census, which may have been up to 5 years earlier, and boundaries, socioeconomic status and remoteness regions may have changed over time, creating inaccuracies. New postal areas defined since the last census will not have valid remoteness or socioeconomic status correspondence data available as they will not match the old postal areas.
Correspondences that convert POAs and Statistical Area 1 geographies to PHN and Statistical Area geographies are also used. Records that cannot be converted by the correspondences are classified in an 'unknown' category.
NBCSP outcome data are via non-mandatory form return from GP visits, colonoscopies, histopathology, adverse events and surgical resection. The level of form return may be unknown; therefore, there is an unknown amount of missing outcome data, which needs to be taken into consideration when reviewing NBCSP outcome analyses. Results of some analyses may be excluded where data are not considered complete enough to provide accurate information.
The data used in NBCSP monitoring reports allow for 6 months of follow-up time post-invitation. However, this may not be enough time for all people who had a positive screening result to have completed the screening pathway and had outcomes returned to the NBCSP Register. This may also result in some under-reporting of outcome data.
Some data cells have been suppressed for confidentiality and reliability reasons (for example, if the numerator is less than 20 or the denominator is less than 100, or the rate could not be sensibly estimated).
NBCSP screening data are reported and published annually by the AIHW. However, the 2016 NBCSP monitoring report was the first to use the new NBCSP performance indicators. Therefore, results in reports from 2016 onwards cannot be compared with earlier reports. Instead, monitoring reports from 2016 onwards apply the new performance indicators to earlier years of data to provide trends using the new indicators.
In future, the addition of extra screening ages and biennial rescreening are expected to affect results in most performance indicators, which will make changes in their overall trends difficult to interpret.
Source and reference attributes
Australian Institute of Health and Welfare
|Related metadata references:|
Supersedes National Bowel Cancer Screening Program screening data 2015–2017; Quality Statement AIHW Data Quality Statements, Archived 02/12/2019