National Bowel Cancer Screening Program NBEDS 2020–21

Identifying and definitional attributes

Metadata item type:Data Set Specification
METeOR identifier:715323
Registration status:Health, Standard 16/01/2020
DSS type:Data Set Specification (DSS)

The National Bowel Cancer Screening Program national best endeavours data set (NBCSP NBEDS) comprises a set of standardised data definitions used for monitoring the National Bowel Cancer Screening Program. This NBEDS includes information on people who have or will be participating in the National Bowel Cancer Screening Program.

This metadata set is not mandated for collection, i.e. it reflects best practice when collecting data in relation to bowel screening rather than a nationally mandated set of data that must be provided.

It is intended to be used by the National Cancer Screening Register. It can also be used by a wider range of health and health-related professionals who collect and/or use the data in relation to the National Bowel Cancer Screening Program.

It provides concise, unambiguous definitions for items related to the Program and aims to ensure the standardised methodology of data collection.

The data set covers data in the following areas:

  • Demographic data of participants
  • Bowel cancer screening tests (such as the faecal occult blood test)
  • Bowel cancer diagnostic assessments (such as colonoscopy examinations and histopathological analyses on colorectal cancers and colorectal polyps).

General Practitioner consultations are not included at this stage.

Collection and usage attributes

Statistical unit:

People who have or will be participating in Bowel cancer screening programs.

Collection methods:

Screening data on participants’ interaction with the National Bowel Cancer Screening Program are collected from participants themselves, pathologists who analyse participants' samples for the faecal occult blood test (FOBT), general practitioners (GPs) with whom participants consult for bowel cancer screening related reasons, colonoscopists who conduct colonoscopies on the participants, histopathologists who analyse specimens of abnormal growths such as suspected colorectal cancer or colorectal polyps from the participants. Data from all these sources are then forwarded to the National Bowel Cancer Screening Program Register.

The Register also collects data on its routine operation.

The Register provides data to the Australian Institute of Health and Welfare for data analyses and reporting purposes.

Implementation start date:01/07/2020
Implementation end date:30/06/2021

Glossary items
Glossary terms that are relevant to this data set are included here:


Adverse event

Bowel cancer

Cancer diagnostic assessment

Cancer screening

Colorectal cancer clinico-pathological stage

Colorectal polyps


Disease screening

Faecal occult blood test (FOBT)


Geographic indicator

Hospital-in-the-home care

Record linkage


Urban Centre and Locality

Source and reference attributes

Submitting organisation:

Australian Institute of Health and Welfare

Relational attributes

Related metadata references:

Supersedes National Bowel Cancer Screening Program NBEDS 2019–20 Health, Superseded 16/01/2020

See also National Bowel Cancer Screening Program performance indicators 2019– Health, Standard 06/09/2018

Metadata items in this Data Set Specification

    Show more detail
Seq No.Metadata item Obligation Max occurs
1Person—person identifier, X[X(19)]Mandatory1
2Correspondence—correspondence identifier, N[N(8)]Mandatory99
3Person—given name, text X[X(39)]Mandatory1
4Person—given name sequence number, code N[N]Mandatory1
5Person—family name, text X[X(39)]Mandatory1
6Person—sex, code XMandatory1
7Person—date of birth, DDMMYYYYMandatory1
8Person—age, total years N[NN]Mandatory1
9Person—Indigenous status, code NMandatory1
10Person—main language other than English spoken at home, code (ASCL 2016) N[NNN]Mandatory1
11Person—disability status, yes/no/not stated/inadequately described code NMandatory1
12Person—Australian state/territory identifier, code NMandatory1
13Address—Australian postcode, code (Postcode datafile) NNNNMandatory1
14Person—geographic remoteness, classification (ASGS-RA) NMandatory1
15Person—area of usual residence, statistical area level 1 (SA1) code (ASGS 2016) N(11)Mandatory1
16Person—disease screening program invitation date, DDMMYYYYMandatory1
17Person—disease screening invitation round count, total number N[N]Mandatory1
18Person—first disease screening program participation indicator, yes/no code NMandatory1
19Person—participation in previous biennial screening program indicator, yes/no code NConditional1
20Person—opted off from a disease screening program indicator, yes/no code NMandatory1
21Person—reason for opting off a disease screening program, code NConditional1
22Person—opted off from a disease screening program date, DDMMYYYYConditional1
23Person—suspended participation from a disease screening program indicator, yes/no code NMandatory1
24Person—reason for suspending disease screening participation, code NConditional1
25Person—suspended participation from a disease screening program date, DDMMYYYYConditional1
26Person—cancer screening test indicator, yes/no code NMandatory1
27Bowel cancer screening test clusterConditional1
28Person—cancer diagnostic assessment indicator, yes/no code NMandatory1
29Bowel cancer diagnostic assessment clusterConditional1
30Bowel cancer diagnosed clusterConditional1
31Person—date of death, DDMMYYYYConditional1
32Person—underlying cause of death, code (ICD-10 2016 version) ANN{.N}Conditional1