National Maternal Mortality Data Collection, 2015–2016; Quality Statement
Identifying and definitional attributes
|Metadata item type:||Quality Statement|
|Synonymous names:||Maternal deaths|
|Registration status:||AIHW Data Quality Statements, Endorsed 17/12/2018|
|Quality statement summary:|
The NMMDC contains information on the deaths of women reported to have died while pregnant or within 42 days of the end of pregnancy, irrespective of the duration or outcome of the pregnancy. The state and territory health authorities and other jurisdictional bodies responsible for primary data collection and review regarding maternal deaths receive clinical data on the women who died from patient administrative and clinical records, as well as from the State and Territory Maternal Mortality Committees where death reviews are undertaken. This information is usually collected through a variety of sources, including notifications from health professionals, coronial reports and notifications from related data collections, including the jurisdictional register of births, deaths and marriages. Data are entered into the NMMDC via an electronic data collection system (electronic National Maternal Death Reporting tool or e-NMDR). Data in the NMMDC includes data collected retrospectively and specifically by some states and territories.
Summary of key data quality issues
The AIHW is a major national agency set up by the Australian Government under the Australian Institute of Health and Welfare Act 1987 (Cwlth) to provide reliable, regular and relevant information and statistics on Australia’s health and welfare. It is an independent corporate Commonwealth entity established in 1987, governed by a management board, and accountable to the Australian Parliament through the Health portfolio.
The AIHW aims to improve the health and wellbeing of Australians through better health and welfare information and statistics. It collects and reports information on a wide range of topics and issues, from health and welfare expenditure, hospitals, disease and injury, and mental health, to ageing, homelessness, disability and child protection.
The AIHW also plays a role in developing and maintaining national metadata standards. This work contributes to improving the quality and consistency of national health and welfare statistics. The AIHW works closely with governments and non-government organisations to achieve greater adherence to these standards in administrative data collections to promote national consistency and comparability of data and reporting.
One of the main functions of the AIHW is to work with the states and territories to improve the quality of administrative data and, where possible, to compile national data sets based on data from each jurisdiction, to analyse these data sets and disseminate information and statistics.
The Australian Institute of Health and Welfare Act 1987, in conjunction with compliance to the Privacy Act 1988 (Cwlth), ensures that the data collections managed by the AIHW are kept securely and under the strictest conditions with respect to privacy and confidentiality.
For further information see the AIHW website <www.aihw.gov.au>.
Under a Memorandum of Understanding with the Department of Health, the AIHW is responsible for the management of the NMMDC. The AIHW maintains a coordinating role in the collection, including providing secretariat duties to the National Maternal and Perinatal Mortality Advisory Group, undertaking data development and highlighting implementation and collection issues.
Australian state and territory health authorities supply data to the AIHW under individual data agreements between AIHW and each state and territory. The AIHW is the data custodian of the NMMDC and receives, compiles, edits and verifies the NMMDC data in collaboration with the state or territory health authority that supplied the data. State and territory health authorities retain ownership of the jurisdictional level data and must approve any jurisdictional level output before it is released.
NMMDC data are collected annually. Most jurisdictions need at least 12 months lead time to undertake post-mortem investigations, data entry and validation as required after the end of the data collection period. Maternal deaths data for 2015–2016 were requested for submission to the AIHW by 31 May 2018. Two jurisdictions supplied completed data by this date. Final and useable 2015–2016 data were received from all jurisdictions by 5 November 2018, except from Western Australia and the Northern Territory who have not supplied data for 2016 and 2015–2016 respectively. The AIHW is working with states and territories to improve the timeliness of these data.
Maternal deaths in Australia 2016 is a web based report published available on the AIHW website < https://www.aihw.gov.au/reports/mothers-babies/maternal-deaths-in-australia-2016/contents/report>.
Requests for unpublished data can be made by contacting the AIHW on (02) 6244 1000, by email to firstname.lastname@example.org or through the AIHW’s custom data request service at https://www.aihw.gov.au/our-services/data-on-request.
A cost-recovery charge may apply to requests that require substantial resources. Depending on the nature of the request, requests for access to unpublished data may require additional approval from jurisdictional data custodians or the AIHW Ethics Committee.
The organisational structure, including relevant legislation, policy and process for maternal death data collection, varies by state and territory. The NMMDC reflects these variations. In all cases, the best available information has been used to form the NMMDC.
An overview of each state’s maternal death data collection process is outlined below:
The NMMDC data are compiled primarily from state and territory maternal death data collections or, where not available, other state and territory data sources. Data are requested on the death of all women reported to have died while pregnant or within 42 days of the end of pregnancy in Australia from 2006–2016. Specifications for data items in the NMMDC were developed using nationally standardised data as entered into the National health data dictionary. It includes data items relating to the mother, including demographic characteristics and factors relating to the pregnancy, labour and birth; details of death; classification of death and data items relating to the baby, including birth status; and any additional case summaries.
A National Maternal and Perinatal Mortality Advisory Group was convened in 2015 to oversee the process of data collection for the maternal and perinatal death reports and has taken over the responsibilities of the previous National Maternal Mortality Advisory Committee.
Inaccurate responses may occur in all data provided to the AIHW. The AIHW does not have direct access to maternal mortality committee records to determine the accuracy of the data provided. However, the AIHW undertakes validation on receipt of data. Data received from states and territories are checked for completeness, validity and logical errors. Potential errors are queried with jurisdictions, and corrections and resubmissions are made in response to these edit queries. The AIHW does not adjust data to account for possible data errors without the permission of the state or territory that supplied the data.
Errors may occur during the processing of data by the states and territories or at the AIHW. Processing errors prior to data supply may be found through the validation checks applied by the AIHW. The data are corrected when verification of an error is supplied. The AIHW does not adjust the data to correct for missing values.
Prior to publication, state/territory-level data are referred back to jurisdictions for checking and review. Note that because of data editing and subsequent updates of state/territory information, numbers reported may differ from those in reports published by the states and territories.
Due to small numbers contained in the NMMDC, caution should be taken when interpreting these data.
Data on maternal deaths are not available from Western Australia for 2016 or from the Northern Territory for 2015–2016. Due to their health and privacy legislation, only limited summary data on maternal deaths are supplied by Western Australia.
The NMMDC is an ongoing data set collected specifically, in the first instance, for use in the Maternal deaths in Australia reporting; it is a continuing collection and will be available as it expands for future reports in that series.
State and territory health authorities compile statistics and publish reports on maternal deaths. Methodology, definitions, classifications and reference periods for these collections differ significantly across states and territories, and comparisons between states and territories should be made with caution.
|Implementation start date:||01/01/2015|
Source and reference attributes
Australian Institute of Health and Welfare
|Related metadata references:|
Supersedes National Maternal Mortality Data Collection, 2012–2014; Quality Statement AIHW Data Quality Statements, Archived 17/12/2018