Disability Services National Minimum Data Set 2016-17; Quality Statement
Identifying and definitional attributes
|Metadata item type:||Quality Statement|
|Synonymous names:||DS NMDS DQS|
|Registration status:||AIHW Data Quality Statements, Endorsed 04/06/2018|
|Quality statement summary:|
The Australian Institute of Health and Welfare (AIHW) is a major national agency set up by the Australian Government under the Australian Institute of Health and Welfare Act 1987 to provide reliable, regular and relevant information and statistics on Australia's health and welfare. It is an independent Commonwealth entity established in 1987, governed by a management Board, and accountable to the Australian Parliament through the Health Portfolio.
The AIHW aims to improve the health and wellbeing of Australians through better health and welfare information and statistics. It collects and reports information on a wide range of topics and issues, ranging from health and welfare expenditure, hospitals, disease and injury, and mental health, to ageing, homelessness, disability and child protection.
The Institute also plays a role in developing and maintaining national metadata standards. This work contributes to improving the quality and consistency of national health and welfare statistics. The Institute works closely with governments and non-government organisations to achieve greater adherence to these standards in administrative data collections to promote national consistency and comparability of data and reporting.
One of the main functions of the AIHW is to work with the states and territories to improve the quality of administrative data and, where possible, to compile national datasets based on data from each jurisdiction, to analyse these datasets and disseminate information and statistics.
The Australian Institute of Health and Welfare Act 1987, in conjunction with compliance to the Privacy Act 1988, ensures that the data collections managed by the AIHW are kept securely and under the strictest conditions with respect to privacy and confidentiality.
For further information see the AIHW website www.aihw.gov.au.
The AIHW has been maintaining a minimum data set on disability support services since 1994, firstly as a snapshot collection and then from 2003–04 as an annual collection. The AIHW receives, compiles, edits and verifies the DS NMDS data in collaboration with jurisdictions, which retain ownership of the jurisdictional level data and must approve any jurisdictional level output before it is released.
Data are released annually.
The DS NMDS cannot be compiled for a given year until each jurisdiction is able to supply and sign-off data for that year. Sign-off of jurisdictional data submissions is due by the December following the end of the collection period. Data are required to be released by the end of the following June. For the 2016–17 data, the final jurisdiction provided sign-off 21 December 2017.
The AIHW has been reporting on disability support services collected under the various iterations of the national disability agreements since 1994.
The AIHW website provides disability services reports and data which can be downloaded free of charge. Additional disaggregation of data may be requested via a customised data request. The length of time it takes to complete a request depends on several factors and a charge might apply to recover costs. General enquiries about AIHW publications can be made to the Digital and Media Communications Unit on (02) 6244 1032 or via email to firstname.lastname@example.org.
The main counts of the DS NMDS collection are service users and service type outlets. A service type outlet is a statistical counting unit of an agency that provides a particular NDA service type at, or from, a discrete location. Data are collected, usually by agencies, for each service type outlet.
Data on service users are collected against the service types (service type outlets) over the collection period. Note that service user data are not collected in relation to two of the seven service groups—‘advocacy, information and alternative forms of communication’ and ‘other support’. Further, the level of information required to be collected varies according to the particular service type. For more information on what information is collected against each service type as well as a description of each service type, see the associated Disability Services NMDS 2016–17 METeOR entry or the DS NMDS data guide.
The scope of services included in the DS NMDS can vary in terms of the programs that are provided under the NDA across jurisdictions as well as in what programs are included in the data collection (see ‘Coherence’ for further details).
The National Disability Insurance Scheme (NDIS) was launched in trial sites from 1 July 2013, with progressive roll-out to full scheme from 1 July 2016. It is expected that many NDA service users will transition to the NDIS and hence exit from the DS NMDS collection over time. This affects data from 2013–14 onwards. Some service type outlets may also be less responsive because of the complexities associated with the changeover to the NDIS.
More information on the DS NMDS is available on the AIHW website. This includes the DS NMDS collection materials.
The DS NMDS collects data on disability support services provided under the NDA. States and territories and the Australian Government collect data from agencies providing these services and supply it to the AIHW. These are compiled into the DS NMDS and released annually. See 'accuracy' for further information on coverage.
The DS NMDS is highly relevant for reporting on the use of disability support services under the NDA. The data are used for many purposes, including by policy-makers and researchers. The DS NMDS also contains a statistical linkage key for each service user. This enables researchers to link their database to the DS NMDS (noting that such data linkage can only be done after receiving approvals from various ethics committees).
Each year, when all the jurisdictions’ data are compiled into the DS NMDS, a national validation and data linkage process is undertaken.
To form service user counts, a statistical linkage key is used. The statistical linkage key enables the number of service users to be estimated from data collected from service type outlets and agencies. During any given financial year, a service user can receive services from:
In each of these cases, service user counts can be estimated by using the statistical linkage key. All counts of the number of service users depend on the accuracy of the statistical linkage key. A linkage key is considered to be invalid if any, or all, parts of the key are missing (excluding sex). To link records within the DS NMDS, the statistical linkage key components of each record for a service received are compared electronically with the statistical linkage key components of all other records. Records that have matching statistical linkage keys are assumed to belong to the same individual service user and are linked.
As with all collections that use a statistical linkage key to identify service users, a small degree of mis-identification is expected. That is, because the statistical linkage key is not a unique identifier, there is a small probability that some of the linked records do not belong to the same individual, and, conversely, that some records that did not link do belong to the same individual. Records with missing or invalid statistical linkage keys cannot be linked to other records, and so must be treated as belonging to separate individual service users. This might result in the number of service users being slightly overestimated.
Service type outlet and service user participation rates, as well as the response rates to various data items, need to be considered when interpreting data. These vary across years and jurisdictions. Data can be considered more reliable as participation and response rates increase.
Jurisdictions report their service type outlet participation rates—the number of outlets that contributed to the DS NMDS collection compared with the total number of outlets in the jurisdiction. While every effort is made to incorporate responses from all service type outlets provided under the NDA, each year a small number are not included.
Likewise, it is recognised that some outlets do not report on all service users, due to administration or other errors, and it is not possible to accurately estimate the number of service users who might be missing from the data as a result. Some service type outlets have a large number of service users who have minimal contact, such as information and referral services. These service types are not required to submit service user information to the DS NMDS, and, as a result, users of these services are not included in totals. All service type outlets are required to estimate the number of service users they helped over the year; however, analysis of these estimates and comparison with jurisdictional reports indicate that such estimations can be of poor quality.
Non-response rates to data items can vary across jurisdictions and years. High levels of non-response reduce the validity and reliability of data, and items with high proportions should be considered with care, especially when comparing data across jurisdictions and collection years. These generally occur when a service user or service type outlet does not provide/collect information on a service user, or when information cannot be derived by statistical linkage processes. In some instances, particular service types are not required to submit data for all measures.
Tabular information on the response rates, participation rates, and the validity and completeness of the statistical linkage key are provided in the supplementary tables to the annual DS NMDS bulletins.
DS NMDS data are collated and published annually by the AIHW.
Service type outlet and service user participation rates, as well as the response rates to various data items, vary across years and jurisdictions (see ‘Accuracy’ for further detail).
The scope of services vary across jurisdictions and years in terms of the programs that are provided under the NDA and how they are classified. For example:
While there have been some changes in the collection over the years, some meaningful comparisons can be made over time, particularly from 2007–08 onwards. Some major changes to the collection over time include:
See associated DS NMDS bulletins for more information.
|Implementation start date:||01/07/2016|
Source and reference attributes
|Related metadata references:|
Supersedes Disability Services National Minimum Data Set 2015-16; Quality Statement AIHW Data Quality Statements, Archived 04/06/2018