National Perinatal Data Collection, 2014: Quality Statement
Identifying and definitional attributes
|Metadata item type:||Quality Statement|
|Registration status:||AIHW Data Quality Statements, Archived 26/10/2017|
|Quality statement summary:|
The National Perinatal Data Collection (NPDC) is a national population-based cross-sectional collection of data on pregnancy and childbirth. The data are based on births reported to the perinatal data collection in each state and territory in Australia. Midwives and other birth attendants, using information obtained from mothers and from hospital or other records, complete notification forms for each birth. A standard de-identified extract is provided to the Australian Institute of Health and Welfare (AIHW) on an annual basis to form the NPDC. Information is included in the NPDC for both live births and stillbirths, where gestational age is at least 20 weeks or birthweight is at least 400 grams, except in Western Australia, where births are included if gestational age is at least 20 weeks or, if gestation is unknown, birthweight is at least 400 grams.
The Australian Institute of Health and Welfare (AIHW) is a major national agency set up by the Australian Government under the Australian Institute of Health and Welfare Act 1987 to provide reliable, regular and relevant information and statistics on Australia’s health and welfare. It is an independent statutory authority established in 1987, governed by a management board, and accountable to the Australian Parliament through the Health portfolio.
The AIHW aims to improve the health and wellbeing of Australians through better health and welfare information and statistics. It collects and reports information on a wide range of topics and issues, ranging from health and welfare expenditure, hospitals, disease and injury, and mental health, to ageing, homelessness, disability and child protection.
The AIHW also plays a role in developing and maintaining national metadata standards. This work contributes to improving the quality and consistency of national health and welfare statistics. The AIHW works closely with governments and non-government organisations to achieve greater adherence to these standards in administrative data collections to promote national consistency and comparability of data and reporting.
One of the main functions of the AIHW is to work with the states and territories to improve the quality of administrative data and, where possible, to compile national datasets based on data from each jurisdiction, to analyse these datasets and disseminate information and statistics.
The Australian Institute of Health and Welfare Act 1987, in conjunction with compliance to the Privacy Act 1988, (Commonwealth) ensures that the data collections managed by the AIHW are kept securely and under the strictest conditions with respect to privacy and confidentiality.
For further information see the AIHW website www.aihw.gov.au
Data for the NPDC were supplied to the AIHW by state and territory health authorities under the terms of the National Health Information Agreement
The state and territory health authorities receive these data from patient administrative and clinical records, with the information usually collected by midwives or other birth attendants. States and territories use these data for service planning, monitoring and internal and public reporting.
Data specifications for the NPDC are documented in the AIHW’s online metadata repository, METeOR, and the Maternity Information Matrix:
METeOR—AIHW online metadata repository
Maternity Information Matrix
NPDC data are collated annually for calendar years. Most jurisdictions need at least 12 months lead time to undertake data entry, validation and linking with hospitals data as required after the end of the data collection period. Data were requested to be submitted on 29 April 2016. One jurisdiction supplied completed data by this date. Final and useable data were received from all jurisdictions by 16 September 2016. Data are published in Australia’s mothers and babies in November each year, about 2 years after the end of the data collection period. The National Health Information Standards and Statistics Committee agreed that jurisdictions would move to the provision of financial year data for the NPDC from July 2013. The AIHW is working with states and territories to transition from calendar year to financial year data provision and reporting.
A variety of products draw upon the NPDC. Products published by the AIHW that are based primarily on data from the NPDC include:
Ad hoc data are also available on request (charges apply to recover costs).
Data for selected indicators are also published in AIHW and other products such as:
The latest publication on the NPDC is Australia’s mothers and babies 2014—in brief. This is the twenty-fourth annual report on pregnancy and childbirth in Australia, providing national information on women who gave birth and the characteristics and outcomes of their babies.
Supporting information on the quality and use of the NPDC is published annually in Australia’s mothers and babies (Chapter 6 in the 2014 edition), and is available in hard copy or on the AIHW website.
Readers are advised to read caveat information to ensure appropriate interpretation of data. Metadata information for the NPDC are published in the National Health Data Dictionary (NHDD) on METeOR and in the Maternity Information Matrix.
The NPDC contributes to 2 Essential Statistical Assets for Australia (ESA 207 Birth statistics and ESA 133 Early Childhood Development), and was included in the ESA quality assessment process (based on the ABS Data Quality Framework) in 2014. For further information see the ABS publication Essential Statistical Assets for Australia, 2014.
The NPDC comprises data items as specified in the Perinatal NMDS, plus additional items collected by the states and territories. The purpose of the NPDC is to collect information about births for monitoring pregnancy, childbirth and the neonatal period for both the mother and baby.
The NPDC is a specification for data collected on all births in Australia in hospitals, birth centres and the community. It includes information for both live births and stillbirths, where gestational age is at least 20 weeks or birthweight is at least 400 grams. Live births and stillbirths may include termination of pregnancy after 20 weeks. Stillbirths can include fetus papyraceous and fetus compressus. In Western Australia, data were included for both live births and stillbirths of at least 20 weeks' gestation or, if gestation was unknown, the birthweight was at least 400 grams. In Victoria, stillbirths were of at least 20 weeks' gestation unless gestation was unknown and the baby weighed 400 grams or more. In South Australia, data may not include all terminations of pregnancy for psychosocial reasons after 20 weeks' gestation where birthweight was not recorded.
The NPDC includes data items relating to the mother—including demographic characteristics and factors relating to the pregnancy, labour and birth—and data items relating to the baby—including birth status (live birth or stillbirth), sex, gestational age at birth, birthweight and neonatal morbidity and deaths.
A program of national perinatal data development has led to improvements in data provision and reporting. The program involves revision of existing Perinatal NMDS items, data development work on existing perinatal METeOR items and the development of new perinatal items. The scope of the NPDC has not changed. Many of the core data elements have also not changed since the start of the data collection in 1991. Definitions and data domains of some individual data elements have changed over time in response to data development; however, in many cases, data can be mapped to create a consistent time series.
New data elements introduced into the NPDC in the reference period may not be available for the entire period. Developments to the Perinatal NMDS are underway to include additional data elements. Recent data developments include the addition of Indigenous status of the baby to the NMDS, with data collection starting from 1 July 2012. The number of antenatal care visits, postpartum perineal status, type of analgesia administered and type of anaesthesia administered have been added to the NMDS for collection from 1 July 2013.
The collection of information on additional data items, such as alcohol use in pregnancy, mental health screening and domestic violence screening, is under development. Due to the time delay between development, implementation and collection of data by the state and territory perinatal data collections and their inclusion in the NPDC, these items will not appear in published data until after 2017. Enhancement of perinatal data is a priority for the Council of Australian Governments and the Australian Health Ministers' Advisory Council.
Inaccurate responses may occur in all data provided to the AIHW. The AIHW does not have direct access to state and territory perinatal records to determine the accuracy of the data provided. However, the AIHW does undertake validation on all data provided by the states and territories. Data received from the states and territories are checked for completeness, validity and logical errors. Potential errors are queried with jurisdictions, and corrections and resubmissions are made in response to these edit queries.
Errors may occur during the processing of data by the states and territories or at the AIHW. Processing errors before data supply may be found through the validation checks applied by the AIHW. The AIHW does not adjust data to account for possible data errors or to correct for missing data.
Before publication, data are referred back to jurisdictions for checking and review. Note that because of data editing and subsequent updates of state and territory databases, numbers reported may differ from those in reports published by the states and territories.
According to the NHDD, Indigenous status is a measure of whether a person identifies as being of Aboriginal and Torres Strait Islander origin. All states and territories have a data item to record Indigenous status of the mother on their perinatal form, although there are some differences among the jurisdictions. For 2014, data on the Indigenous status of the baby was also available from all states and territories.
Neonatal deaths collected as part of the NPDC may be incomplete. In some jurisdictions, neonatal deaths for babies transferred to another hospital or readmitted to hospital, and those dying at home, may not be included. Neonatal deaths for the Northern Territory are considered to be incomplete for 2014 as data do not include deaths occurring outside the Northern Territory. Differences in mortality rates may be due to the small number of deaths, which result in statistical fluctuations, under-ascertainment, or actual differences in mortality experience.
NPDC data are reported and published annually by the AIHW. While definitions and data domains of some individual data elements have changed over time in response to data development, in many cases it is possible to map coding changes to make meaningful comparisons over time.
The other national data sources on perinatal data are the ABS and the AIHW’s National Hospital Morbidity Database (NHMD). The Australian Bureau of Statistics (ABS) compiles statistics and publishes reports on registrations of live births and perinatal deaths from data made available by the Registrars of Births, Deaths and Marriages in each state and territory. The ABS collection includes all live births that were not previously registered and stillbirths of at least 400 grams, or of at least 20 weeks gestation where birthweight is unknown. The NHMD is compiled from data supplied by the state and territory health authorities. It is a collection of electronic confidentialised summary records for separations (that is, episodes of admitted patient care) in public and private hospitals in Australia.
As these collections differ from the NPDC in scope, collection methodology, definitions and reference periods, comparisons between collections should be made with caution.
|Implementation start date:||01/01/2014|
|Related metadata references:|
See also National Indigenous Reform Agreement: PI 07-Proportion of babies born of low birthweight, 2015-16; Quality Statement Indigenous, Archived 07/02/2018
See also National Indigenous Reform Agreement: PI 08-Tobacco smoking during pregnancy, 2015-16; Quality Statement Indigenous, Archived 07/02/2018
See also National Indigenous Reform Agreement: PI 09-Antenatal care, 2015-16; Quality Statement Indigenous, Archived 07/02/2018
Supersedes National Perinatal Data Collection, 2013: Quality Statement AIHW Data Quality Statements, Archived 26/11/2016
Has been superseded by National Perinatal Data Collection, 2015: Quality Statement AIHW Data Quality Statements, Archived 02/08/2018