Australian Government: Australian Institute of Health and Welfare METeOR Home Page

Informal carer—primary carer indicator, code N

Identifying and definitional attributes

Metadata item type:Help on this termData Element
Short name:Help on this termPrimary carer indicator
Synonymous names:Help on this termCarer primary status
METeOR identifier:Help on this term621197
Registration status:Help on this termDisability, Superseded 15/12/2017
Definition:Help on this term

An indicator of whether the informal carer provides assistance with one or more core activities (communication, mobility and self-care), as represented by a code.

Data Element Concept:Informal carer—primary carer indicator

Value domain attributes

Representational attributes

Representation class:Help on this termCode
Data type:Help on this termNumber
Format:Help on this termN
Maximum character length:Help on this term1
Permissible values:Help on this term
Supplementary values:Help on this term
9Not stated/inadequately described

Collection and usage attributes

Guide for use:Help on this term

CODE 9    Not stated/inadequately described

This code is not for use in primary data collections.

Data element attributes

Collection and usage attributes

Guide for use:Help on this term

This data element should only be reported in relation to service users that have an informal carer.

Self-care includes activities such as bathing, dressing, eating and/or toileting.

Mobility includes moving around the home and/or moving around away from home (including the ability to use transport or drive a motor vehicle) and getting in or out of bed or a chair. If the only support provided to a service user is in the area of public transport or driving a motor vehicle and this support is not required every time the service user uses these modes of transport, then a person is not generally considered to be a primary carer. For example, if a person drives the service user to the shops every second Wednesday to go shopping, and the service user can normally move/get around on their own using public transport or a motor vehicle, then the person would not be considered a ‘primary carer’.

Communication includes making oneself understood by strangers/family/friends/staff, in own native language if applicable, and understanding others.


CODE 1: Yes

Record if the informal carer provides care for self-care, communication or mobility.

CODE 2: No

Record if the informal carer does not provide care for self-care, communication or mobility.


Comments:Help on this term

This data element can be used to identify whether the carer is a primary carer (as per the Australian Bureau of Statistics Survey of Disability, Ageing and Carers) and thereby facilitates comparisons with population estimates of the number of informal carers who are also primary carers. This is important in the estimation of need for services.

Source and reference attributes

Submitting organisation:Help on this term



Relational attributes

Related metadata references:Help on this term

Has been superseded by Informal carer—primary carer indicator, code N Disability, Standard 15/12/2017

Supersedes Informal carer—primary status, code N Disability, Superseded 29/02/2016, Community Services (retired), Standard 27/04/2007

Implementation in Data Set Specifications:Help on this term
All attributes +

Disability Services NMDS 2015–16 Disability, Superseded 28/09/2016

DSS specific attributes +

Disability Services NMDS 2016–17 Disability, Superseded 15/12/2017

DSS specific attributes +
My items Help on this term
Download Help on this term