Person with cancer—adolescent and young adult cancer healthcare provider type, code N[N]

Identifying and definitional attributes

Metadata item type:Data Element
Short name:AYA cancer treatment provider type
METeOR identifier:457925
Registration status:Health, Standard 04/02/2015
Definition:The type of healthcare provider (individual, team or organisation) that is providing primary care to an adolescent or young adult with cancer, as represented by a code.
Data Element Concept:Person with cancer—cancer healthcare provider type

Value domain attributes

Representational attributes

Representation class:Code
Data type:Number
Format:N[N]
Maximum character length:2
Permissible values:
ValueMeaning
1Specialist adolescent or young adult with cancer centre or team
2Cancer centre
3Paediatric cancer centre
4General hospital
5General paediatric hospital
88Other
Supplementary values:
99Unknown

Collection and usage attributes

Guide for use:

Record the code that most accurately represents the healthcare provider in charge of primary treatment of an adolescent or young adult patient with cancer.

Cancer centres treat patients of all age groups with cancer, paediatric cancer centres treat cancer patients who are under 18 years of age, general hospitals treat patients of all age groups with varying healthcare requirements, and general paediatric hospitals treat patients who are under 18 years of age with varying healthcare requirements. 

Source and reference attributes

Submitting organisation:Cancer Australia

Data element attributes

Collection and usage attributes

Guide for use:

Record the code most accurately outlining the type of healthcare provider (individual, team or organisation) that is providing primary care to an adolescent or young adult (AYA) with cancer.

If an individual has been treated by a specialist unit within a broader hospital, the unit type should be recorded. For example, if a person is treated by specialist AYA team within a paediatric hospital, this data element should be recorded as "specialist AYA centre or team", but if a person treated by a paediatric oncology team within a paediatric centre, this data element should be recorded as "paediatric cancer centre or hospital".

This item is used to determine whether a patient has been primarily cared for by a specialist AYA healthcare provider, or by a healthcare provider that primarily treats adults or children. This is important in assessing whether an individual has received care that has been tailored for their age group.
Collection methods:Collect from patient medical records.

Source and reference attributes

Submitting organisation:Cancer Australia

Relational attributes

Implementation in Data Set Specifications:

Adolescent and young adult cancer (clinical) DSS Health, Superseded 14/05/2015

Adolescent and young adult cancer (clinical) NBPDS Health, Standard 14/05/2015