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Lung cancer (clinical) DSS

Identifying and definitional attributes

Metadata item type:Help on this termData Set Specification
METeOR identifier:Help on this term430950
Registration status:Help on this termHealth, Superseded 14/05/2015
DSS type:Help on this termData Set Specification (DSS)
Scope:Help on this term

The purpose of the Lung cancer (clinical) data set specification (LCCDSS) is to define data standards for the national collection of lung cancer clinical data so that data collected is consistent and reliable. Collection of this data set specification is not mandated but it is recommended as best practice if clinical cancer data are to be collected. It will facilitate more consistent data collection while enabling individual treatment centres or health service areas to develop data extraction and collection processes and policies that are appropriate for their service settings.

The Lung cancer (clinical) data set specification is used in conjunction with the Cancer (clinical) data set specification (CCDSS). Mandatory reporting regulations have enabled population-based cancer registries in Australia to collect standard information on all incident cases of cancer apart from non-melanoma skin cancers, from which incidence, mortality and overall survival have been determined and trends monitored. The CCDSS provides a framework for the collection of more detailed and comprehensive clinical data such as stage of cancer at diagnosis, other prognostic characteristics, cancer treatment and patient outcomes.

The Lung cancer (clinical) data set specification will support prospective data collection from the time a person with cancer symptoms is referred or first presents to a hospital or specialist through the entire duration of their illness.

The definitions used in this data set specification are designed to capture the provision of cancer care on a day-to-day level. They relate to the cancer care pathway and the need to optimise care by correctly diagnosing, evaluating and managing patients with cancer. In addition, end-points and patterns of care can be monitored to understand both the appropriateness and effectiveness of cancer care.

The data elements specified provide a framework for:

  • promoting the delivery of evidence-based care to patients with cancer
  • facilitating the ongoing improvement in the quality and safety of cancer management in treatment settings
  • improving the epidemiological and public health understanding of cancer
  • informing treatment guidelines and professional education
  • guiding resource planning and the evaluation of cancer control activities

They will facilitate the aggregation of data across different treatment centres.

The underlying long-term goal is to provide data support to improve outcomes for patients by increasing the quality and length of life. For example, a comparison of the actual management of patients with best practice guidelines may identify shortfalls in treatment and limitations in access to treatment modalities for some patients. 

Collection and usage attributes

Guide for use:Help on this termThe data elements in the Lung cancer (clinical) data set specification with obligations described as mandatory or conditional for collection are recommended as best practice, while the data items described as optional are for collection at the discretion of the treating centre and may be contingent, for example, on the availability of resources.
Collection methods:Help on this termThis data set specification is primarily directed at the clinical and clinical epidemiological use of cancer data. Treatment centres such as hospitals, radiotherapy centres and cancer specialist practices are the settings in which implementation of the Lung cancer (clinical) data set specification should be considered. The data set specification can also be used by a wider range of health and health-related establishments that create, use, or maintain records on health-care clients.
Comments:Help on this term

Glossary items

Glossary terms that are relevant to this data set specification are included here.

Address

Adoption

Asbestos

Chemotherapy

Clinical trial

Family

Hormone therapy

Immunohistochemistry

Immunotherapy

Medical imaging

Molecular pathology

Palliative care

Psychosocial services

Radiotherapy

Record linkage

Second-line treatment

Systemic therapy procedure

Source and reference attributes

Submitting organisation:Help on this termCancer Australia

Relational attributes

Related metadata references:Help on this term

Has been superseded by Lung cancer (clinical) NBPDS Health, Standard 14/05/2015

Metadata items in this Data Set SpecificationHelp on this term

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Seq No.Help on this termMetadata itemHelp on this term ObligationHelp on this term Max occursHelp on this term
1Cancer treatment—distance of closest surgical margin, total millimetres N[N]Conditional1
2Cancer treatment—lung cancer surgical margin qualifier, code N[N]Conditional1
3Cancer treatment—multidisciplinary team review indicator, yes/no/unknown code NMandatory1
4Cancer treatment—radiotherapy target site for lung cancer, code NConditional1
5Cancer treatment—residual (R) tumour indicator, yes/no code NConditional1
6Cancer treatment—residual (R) tumour type, code AXConditional1
7Health service event—first service contact date, DDMMYYYYConditional1
8Patient—intention of treatment, code NMandatory1
9Person (address)—country identifier, code (SACC 2011) NNNNMandatory1
10Person with cancer—basis of diagnostic investigation, code NMandatory1
11Person with cancer—clinical trial entry status, code NOptional1
12Person with cancer—clinical trial identifier, text X[X(399)]Conditional99
13Person with cancer—comorbidities, Colinet defined comorbidities code N[N]Mandatory7
14Person with cancer—date clinical trial entered, DDMMYYYYOptional1
15Person with cancer—date of referral to palliative care services, DDMMYYYYConditional1
16Person with cancer—date of referral to psychosocial services, DDMMYYYYConditional1
17Person with cancer—distant metastatic site(s) at diagnosis, topography code (ICD-O-3) ANN.NConditional99
18Person with cancer—immunohistochemistry type, text X[X(49)]Conditional99
19Person with cancer—lung cancer immunohistochemistry type, code N[N]Conditional9
20Person with cancer—lung cancer molecular pathology test results, code N[N]Conditional14
21Person with cancer—lymphovascular invasion indicator, yes/no code NMandatory1
22Person with cancer—lymphovascular invasion type, code NConditional3
23Person with cancer—molecular pathology indicator, yes/no/unknown code NMandatory1
24Person with cancer—molecular pathology test date, DDMMYYYYConditional99
25Person with cancer—molecular pathology test results, (other) code X[X(19)]Conditional99
26Person with cancer—multiple primary tumours descriptor, code NConditional1
27Person with cancer—multiple primary tumours indicator, yes/no code NMandatory1
28Person with cancer—performance status score at diagnosis, Eastern Cooperative Oncology Group code NMandatory1
29Person with cancer—perineural invasion indicator, yes/no/not applicable/not stated/inadequately described code NOptional1
30Person with cancer—psychosocial services type, code N[N]Optional1
31Person with cancer—reason(s) second-line treatment administered, code NConditional4
32Person with cancer—reason(s) treatment not administered, code NOptional6
33Person with cancer—referral to palliative care services indicator, yes/no/unknown code NOptional1
34Person with cancer—referral to psychosocial services indicator, yes/no/unknown code NMandatory1
35Person with cancer—second-line treatment intention, code NConditional1
36Person with cancer—second-line treatment type, code N[N]Conditional5
37Person—asbestos exposure indicator, yes/no/unknown code NOptional1
38Person—asbestos exposure setting, code NConditional1
39Person—diagnostic imaging type, lung cancer code N[N]Optional16
40Person—Individual Healthcare Identifier, N(16)Mandatory1
41Person—lung cancer diagnostic procedure type, code N[N]Optional20
42Person—number of cigarettes smoked (per day), total N[N]Conditional1
43Person—tobacco product smoked, code NConditional1
44Person—tobacco smoking duration (daily smoking), total years N[N]Conditional1
45Person—tobacco smoking quit age (daily smoking), total years NNConditional1
46Person—tobacco smoking start age (daily smoking), total years NNConditional1
47Person—tobacco smoking status, code NMandatory1
48Person—unintentional weight loss indicator, yes/no/unknown code NMandatory1
49Cancer (clinical) DSSMandatory1
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