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Gynaecological cancer (clinical) DSS

Identifying and definitional attributes

Metadata item type:Help on this termData Set Specification
METeOR identifier:Help on this term421105
Registration status:Help on this termHealth, Superseded 14/05/2015
DSS type:Help on this termData Set Specification (DSS)
Scope:Help on this term

The purpose of the Gynaecological cancer (clinical) data set specification (DSS) is to define data standards for the national collection of gynaecological cancer data so that data collected is consistent and reliable. The data set specification is not mandated for collection but is recommended as best practice if gynaecological cancer data is to be collected. It enables individual treatment centres or health service areas to develop collection methods and policies appropriate for their service.

The Gynaecological cancer (clinical) data set specification is used in conjunction with the Cancer (clinical) data set specification (CCDSS). The data elements with obligations described as mandatory or conditional for collection are recommended as best practice, while the data items described as optional are for collection at the discretion of the treating centre and may be contingent, for example, on the availability of resources.

The scope for the Gynaecological cancer (clinical) DSS is to collect comprehensive data encompassing the time a person is first referred for the investigation of symptoms and for the entire duration of their illness so that treatment and outcomes are captured.

The definitions used in this data set specification are designed to capture the provision of cancer care on a day-to-day level. They relate to the realities of cancer care and the need to optimise care by correctly diagnosing, evaluating and managing patients with gynaecological cancer.

The data elements specified provide a framework for:

  • providing a systematic foundation and promoting the delivery of evidence-based care to patients with gynaecological cancer
  • informing treatment guidelines and professional education
  • informing quality assurance
  • guiding resource planning and the evaluation of cancer control activities

Many of the data elements in this data set specification may also be used in the collection of data for other types of cancer.

This data set specification is primarily directed at the clinical and clinical epidemiological use of cancer data. Treatment centres such as hospitals, radiotherapy centres and cancer specialist practices are the settings in which implementation of the Gynaecological cancer (clinical) data set specification should be considered. The data set specification can also be used by a wider range of health and health-related establishments that create, use or maintain records on health-care clients.

Source and reference attributes

Submitting organisation:Help on this termCancer Australia

Relational attributes

Related metadata references:Help on this term

Has been superseded by Gynaecological cancer (clinical) NBPDS Health, Standard 14/05/2015

Metadata items in this Data Set SpecificationHelp on this term

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Seq No.Help on this termMetadata itemHelp on this term ObligationHelp on this term Max occursHelp on this term
1Person with cancer—cytopathology result, code NMandatory29
2Person with cancer—lymphovascular invasion indicator, yes/no code NMandatory1
3Person with cancer—location of lymphovascular invasion of cervix, code NConditional5
4Person with cancer—location of lymphovascular invasion of corpus uteri, code NConditional5
5Person with cancer—extent of primary cancer, cervical cancer staging (FIGO) code N[N]Conditional1
6Person with cancer—extent of primary cancer, endometrial cancer staging (FIGO) code N[N]Conditional1
7Person with cancer—extent of primary cancer, ovarian cancer staging (FIGO) code N[N]Conditional1
8Person with cancer—distant metastatic cancer indicator, yes/no/not stated/inadequately described code NMandatory1
9Person with cancer—distant metastatic site(s) at diagnosis, code N[N]Conditional20
10Person with cancer—depth of myometrial invasion, total millimetres N[N]Conditional1
11Person with cancer—myometrial thickness, total millimetres N[N]Conditional1
12Person with cancer—depth of cervical cancer invasion, total millimetres N[N]Conditional1
13Person with cancer—tumour outside primary site indicator, yes/no/not stated/inadequately described code NMandatory1
14Person with cancer—tumour size outside primary site, code NMandatory1
15Person with cancer—multiple primary tumours indicator, yes/no code NMandatory1
16Person with cancer—multiple primary tumours descriptor, code NConditional1
17Person—tissue sample collected indicator, yes/no code NMandatory30
18Organisation—organisation name, text X[X(199)]Conditional10
19Medical specialist—surgical specialty, initial gynaecological surgical speciality code N[N]Conditional10
20Cancer treatment—post-initial surgery residual tumour size category, code NConditional20
21Cancer treatment—residual (R) tumour indicator, yes/no code NConditional1
22Cancer treatment—primary surgical treatment complication indicator, yes/no/unknown code NMandatory1
23Cancer treatment—treatment complication type, cancer-related primary surgery complication type code N[N]Conditional10
24Cancer treatment—gynaecological cancer post-radiotherapy complication indicator, yes/no/unknown code NConditional1
25Cancer treatment—treatment complication type, gynaecological cancer-related radiotherapy code NConditional10
26Cancer treatment—treatment complication type, text X[X(149)]Conditional10
27Cancer treatment—systemic therapy treatment modification indicator, yes/no/unknown code NConditional1
28Cancer treatment—treatment modification type for cancer-related systemic therapy, code N[N]Conditional10
29Cancer treatment—treatment plan modification, text X[X(149)]Conditional10
30Cancer treatment—primary course of chemotherapy delay indicator, yes/no/unknown code NConditional5
31Cancer treatment—primary course of chemotherapy delay reason, code NConditional10
32Cancer treatment—cancer treatment type, code N[N]Conditional5
33Cancer treatment—other cancer treatment, text X[X(149)]Conditional10
34Cancer treatment—outcome of treatment, code N.NConditional5
35Cancer (clinical) DSSMandatory1
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