Person—extent of participation in a life area, code (ICF 2001) N

Identifying and definitional attributes

Metadata item type:Data Element
Short name:Extent of participation
METeOR identifier:320219
Registration status:Health, Standard 29/11/2006
Disability, Standard 13/08/2015
Community Services (retired), Standard 16/10/2006
Definition:The degree of participation by an individual in a specified life area, as represented by a code.  
Context:Human functioning and disability
Data Element Concept:Person—extent of participation in a life area

Value domain attributes

Representational attributes

Classification scheme:International Classification of Functioning, Disability and Health 2001
Representation class:Code
Data type:Number
Format:N
Maximum character length:1
Permissible values:
ValueMeaning
0Full participation
1Mild participation restriction
2Moderate participation restriction
3Severe participation restriction
4Complete participation restriction
Supplementary values:
8Not specified
9Not applicable

Collection and usage attributes

Guide for use:

This metadata item contributes to the definition of the concept 'Disability' and gives an indication of the experience of disability for a person.

In the context of health, participation is involvement in a life situation. Participation restrictions are problems an individual may experience in involvement of life situations.

This metadata item may be used to describe the extent of participation in life situations for an individual with a health condition. The standard or norm to which an individual's participation is compared is that of an individual without a similar health condition in that particular society. The participation restriction records the discordance between the experienced participation and the expected participation of an individual without a health condition. The definition of 'particular society' is not specified and will inevitably give rise to different interpretations. If limiting the interpretation, it will be necessary to state the factors which are taken into account, for example, age, gender, ethnicity, religion, education, locality (town, state, rural, remote, urban).

The user will select the code that most closely summarises, in terms of duration, frequency, manner or outcome, the level of participation of the person for whom the data is recorded.

CODE 0     Full participation

Used when the person participates in this life area in the same way in terms of duration, frequency, manner or outcome as other individuals without a similar health condition in that particular society

CODE 1     Mild participation restriction

Used for example, when the person is restricted in their participation less than 25% of the time, and/or with a low alteration in functioning which may happen occasionally over the last 30 days

CODE 2    Moderate participation restriction 

Used for example, when the person is restricted in their participation between 26% and 50% of the time with a significant, and/or with a moderate effect on functioning (Up to half the total scale of performance) which may happen regularly over the last 30 days

CODE 3     Severe participation restriction

Used for example, when participation in this life area can be achieved, but only rarely and/or with an extreme effect on functioning which may happen often over the last 30 days

CODE 4     Complete participation restriction

Used when the person can not participate in this life area. This scale has a margin of error of 5%

CODE 8     Not specified

Used when a person's participation in a life area is restricted but there is insufficient information to use codes 0-4

CODE 9     Not applicable

Used when participation in a life area is not relevant, such as employment for an infant.

Source and reference attributes

Submitting organisation:

Australian Institute of Health and Welfare (AIHW) which is the Australian Collaborating Centre for the World Health Organization Family of International Classifications.

Origin:

WHO 2001. ICF: International Classification of Functioning, Disability and Health. Geneva: WHO

AIHW 2003. ICF Australian User Guide Version 1.0. Canberra: AIHW 

Reference documents:

Further information on the ICF, including more detailed codes, can be found in the ICF itself and the ICF Australian User Guide (AIHW 2003), at the following websites:

 

Data element attributes

Collection and usage attributes

Guide for use:

Extent of participation is always associated with a health condition. For example, a restriction in participation in 'community, social and civic life' may be recorded when the person has had a stroke, but not when the restriction is associated only with personal preferences, without a related health condition. A value is attached to restriction of participation (i.e. a participation restriction is a disadvantage). The value is dependent on cultural norms, so that an individual may be disadvantaged in one group or location and not in another place.

This data element is used in conjunction with a specified Activities and participation life area (ICF 2001) AN[NNN]. For example, a 'mild restriction in participation in exchange of information'. 

Source and reference attributes

Submitting organisation:Australian Institute of Health and Welfare (AIHW) which is the Australian Collaborating Centre for the World Health Organization Family of International Classifications.

Relational attributes

Related metadata references:

See also Person—activity and participation life area, code (ICF 2001) AN[NNN] Health, Standard 29/11/2006, Disability, Standard 13/08/2015, Community Services (retired), Standard 16/10/2006

Implementation in Data Set Specifications:

Activities and Participation cluster Health, Standard 29/11/2006
Disability, Standard 13/08/2015
Community Services (retired), Standard 16/10/2006