Palliative Care and End-of-Life Care: PI 03-Proportion of episodes in which patients commence palliative care within 2 days of being ready for care, 2021
Identifying and definitional attributes
|Metadata item type:||Indicator|
|Short name:||PI 03-Proportion of episodes in which patients commence palliative care within 2 days of being ready for care, 2021|
|Synonymous names:||Time from date ready for care to episode start (PCOC)|
Proportion of palliative care episodes that commence on the day of, or the day following, the date the patient is ready for palliative care.
According to the National Palliative Care Strategy 2018 (DoH 2019), high quality palliative care aims to be person-centred. Access to services at the time it is required is an important component to this. Providing care when an individual is ready, rather than based on service availability, provides an indication of the receipt of timely palliative care.
|Indicator set:||Palliative Care and End-of-Life Care Key Performance Indicators 2021|
Health, Qualified 21/10/2021
Collection and usage attributes
Palliative care services contributing to the Palliative Care Outcomes Collaboration (PCOC).
The PCOC is a national program that aims to systematically drive improvements in patient and carer outcomes, using standardised validated clinical assessment tools to benchmark and measure outcomes in palliative care. Participation in the PCOC is voluntary and open to all palliative care service providers across Australia. Contribution to the collection is sought from services in:
Presented as a percentage.
(Numerator ÷ Denominator) x 100
Number of palliative care episodes that commence on the same day, or the following day, from the date the patient is ready for palliative care.
|Numerator data elements:|
Total number of palliative care episodes
|Denominator data elements:|
|Disaggregation data elements:|
Reference period for 2021 reporting: 2020.
|Unit of measure:||Episode|
Indicator conceptual framework
|Framework and dimensions:||5. Accessibility|
|Organisation responsible for providing data:|
Palliative Care Outcomes Collaboration (PCOC)
|Other issues caveats:|
Data for this indicator is sourced from PCOC.
PCOC’s national longitudinal database was established in 2005, and in 2021 consists of more than 300,000 patients and greater than 1 million palliative care phases provided within hospitals, patients’ homes and in residential aged care facilities. The number of services reporting palliative care patient outcome data increased from 127 services in 2009 to 188 services in 2019, with most specialist palliative care providers within Australia participating in this voluntary national program.
PCOC has a set of rule checks and flags that ensure consistency of data entry at the point of collection by trained staff from participating services, and also comprehensive data quality checks at the point of data entry, data receipt and prior to data analysis (Woods et al. 2021). Limited missing data values are evident (i.e. <4% per item) (Daveson et al. 2021).
Participation in PCOC is voluntary and open to all palliative care service providers across Australia. The data are administrative and embedded into routine clinical practice.
Source and reference attributes
Daveson BA, Allingham SF, Clapham S, Johnson CE, Currow DC, Yates P, et al. 2021. The PCOC Symptom Assessment Scale (SAS): A valid measure for daily use at point of care and in palliative care programs. PLoS ONE 16(3): e0247250. https://doi.org/10.1371/journal.pone.0247250
DoH (Department of Health) 2019. National Palliative Care Strategy 2018. Canberra: DoH. Viewed 9 June 2021, https://www.health.gov.au/resources/
PCOC (Palliative Care Outcomes Collaboration) November 2012. PCOC Version 3.0 Dataset: Data Dictionary and Technical Guidelines (version 1.2.0). Viewed 9 June 2021, https://documents.uow.edu.au/
Woods JA, Johnson CE, Allingham SF, Ngo HT, Katzenellenbogen JM, Thompson SC 2021. Collaborative data familiarisation and quality assessment: Reflections from use of a national dataset to investigate palliative care for Indigenous Australians. Health Inf Manag; 50(1-2):64-75. doi: 10.1177/1833358320908957.
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