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National Bowel Cancer Screening Program NBEDS 2021–22

Identifying and definitional attributes

Metadata item type:Help on this termData Set Specification
METEOR identifier:Help on this term727407
Registration status:Help on this term
  • Health, Superseded 17/12/2021
DSS type:Help on this termData Set Specification (DSS)
Scope:Help on this term

The National Bowel Cancer Screening Program national best endeavours data set (NBCSP NBEDS) comprises a set of standardised data definitions used for monitoring the National Bowel Cancer Screening Program. This NBEDS includes information on people who have or will be participating in the National Bowel Cancer Screening Program.

This metadata set is not mandated for collection, i.e. it reflects best practice when collecting data in relation to bowel screening rather than a nationally mandated set of data that must be provided.

It is intended to be used by the National Cancer Screening Register. It can also be used by a wider range of health and health-related professionals who collect and/or use the data in relation to the National Bowel Cancer Screening Program.

It provides concise, unambiguous definitions for items related to the Program and aims to ensure the standardised methodology of data collection.

The data set covers data in the following areas:

  • Demographic data of participants
  • Bowel cancer screening tests (such as the faecal occult blood test)
  • Bowel cancer diagnostic assessments (such as colonoscopy examinations and histopathological analyses on colorectal cancers and colorectal polyps).

General Practitioner consultations are not included at this stage.

Collection and usage attributes

Statistical unit:Help on this term

People who have or will be participating in Bowel cancer screening programs.

Collection methods:Help on this term

Screening data on participants’ interaction with the National Bowel Cancer Screening Program are collected from participants themselves, pathologists who analyse participants' samples for the faecal occult blood test (FOBT), general practitioners (GPs) with whom participants consult for bowel cancer screening related reasons, colonoscopists who conduct colonoscopies on the participants, histopathologists who analyse specimens of abnormal growths such as suspected colorectal cancer or colorectal polyps from the participants. Data from all these sources are then forwarded to the National Bowel Cancer Screening Program Register.

The Register also collects data on its routine operation.

The Register provides data to the Australian Institute of Health and Welfare for data analyses and reporting purposes.

Implementation start date:Help on this term01/07/2021
Implementation end date:Help on this term30/06/2022
Comments:Help on this term

Glossary items
 
Glossary terms that are relevant to this data set are included here:

Adoption

Adverse event

Bowel cancer

Cancer diagnostic assessment

Cancer screening

Colorectal cancer clinico-pathological stage

Colorectal polyps

Disability

Disease screening

Faecal occult blood test (FOBT)

Family

Geographic indicator

Hospital-in-the-home care

Record linkage

Separation

Urban Centre and Locality

Source and reference attributes

Submitting organisation:Help on this term

Australian Institute of Health and Welfare

Relational attributes

Related metadata references:Help on this term
Supersedes National Bowel Cancer Screening Program NBEDS 2020–21
  • Health, Superseded 05/02/2021
Has been superseded by National Bowel Cancer Screening Program NBEDS 2022–23
  • Health, Standard 17/12/2021
See also National Bowel Cancer Screening Program performance indicators 2019–
  • Health, Standard 06/09/2018

Metadata items in this Data Set SpecificationHelp on this term

Show more detail
Seq No.Help on this termMetadata itemHelp on this termObligationHelp on this termMax occursHelp on this term
1Person—person identifier, X[X(19)]Mandatory1
2Correspondence—correspondence identifier, N[N(8)]

DSS specific information:

People can have multiple interactions with the National Bowel Cancer Screening Program (NBCSP) system and will have a different correspondence number for each interaction. For example, a person will have a correspondence identifier for a screening invitation, a faecal occult blood test (FOBT), a general practitioner consultation and a colonoscopy.

Mandatory99
3Person—given name, text X[X(39)]Mandatory1
4Person—given name sequence number, code N[N]Mandatory1
5Person—family name, text X[X(39)]Mandatory1
6Person—sex, code XMandatory1
7Person—date of birth, DDMMYYYYMandatory1
8Person—age, total years N[NN]Mandatory1
9Person—Indigenous status, code NMandatory1
10Person—main language other than English spoken at home, code (ASCL 2016) N[NNN]Mandatory1
11Person—disability status, yes/no/not stated/inadequately described code NMandatory1
12Person—Australian state/territory identifier, code N

DSS specific information:

This is the person's state or territory of usual residence.

Mandatory1
13Address—Australian postcode, code (Postcode datafile) NNNNMandatory1
14Person—geographic remoteness, classification (ASGS-RA) NMandatory1
15Person—area of usual residence, statistical area level 1 (SA1) code (ASGS 2016) N(11)

DSS specific information:

To accurately report SEIFA information, sufficient geographic information needs to be reported. For the NBCSP, the data element Person—area of usual residence, statistical area level 1 (SA1) code (ASGS 2011) N(11) needs to be provided.

Mandatory1
16Person—disease screening program invitation date, DDMMYYYYMandatory1
17Person—disease screening invitation round count, total number N[N]Mandatory1
18Person—first disease screening program participation indicator, yes/no code NMandatory1
19Person—participation in previous biennial screening program indicator, yes/no code N

Conditional obligation:

Reporting of this data element is conditional upon answering 'No' to the Person—first disease screening program participation indicator, yes/no code N data element.

Conditional1
20Person—opted off from a disease screening program indicator, yes/no code N

DSS specific information:

Invitees who do not wish to participate in the National Bowel Cancer Screening Program now or in the future may opt off the Program. Invitees will not be contacted again. Invitees may elect to opt back on at a later date.

Mandatory1
21Person—reason for opting off a disease screening program, code N

Conditional obligation:

Reporting of this data element is conditional upon answering 'Yes' to the Person—opted off from a disease screening program indicator, yes/no code N data element.

Conditional1
22Person—opted off from a disease screening program date, DDMMYYYY

Conditional obligation:

Reporting of this data element is conditional upon answering 'Yes' to the Person—opted off from a disease screening program indicator, yes/no code N data element.

Conditional1
23Person—suspended participation from a disease screening program indicator, yes/no code N

DSS specific information:

Invitees who would like to participate in the National Bowel Cancer Screening Program but are unable to do so at this time. Invitees will be contacted once the nominated suspension period has elapsed.

Mandatory1
24Person—reason for suspending disease screening participation, code N

Conditional obligation:

Reporting of this data element is conditional upon answering 'Yes' to the Person—suspended participation from a disease screening program indicator, yes/no code N data element.

Conditional1
25Person—suspended participation from a disease screening program date, DDMMYYYY

Conditional obligation:

Reporting of this data element is conditional upon answering 'Yes' to the Person—suspended participation from a disease screening program indicator, yes/no code N data element.

Conditional1
26Person—cancer screening test indicator, yes/no code NMandatory1
27Bowel cancer screening test cluster

Conditional obligation:

Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer screening test indicator, yes/no code N data element.

Conditional1
28Person—cancer diagnostic assessment indicator, yes/no code N

DSS specific information:

Participants with a positive faecal occult blood test (FOBT) result, indicating blood in their bowel motion, are advised to consult their primary health care practitioner to discuss further testing.

Mandatory1
29Bowel cancer diagnostic assessment cluster

Conditional obligation:

Reporting of the data elements in this cluster is conditional upon answering 'Yes' to the Person—cancer diagnostic assessment indicator, yes/no code N data element.

Conditional1
30Bowel cancer diagnosed cluster

Conditional obligation:

Reporting of the data elements in this cluster is conditional upon people who have or will be participating in Bowel cancer screening programs answering 'Yes' to the Patient—cancer status, code N data element.

Conditional1
31Person—date of death, DDMMYYYY

Conditional obligation:

Only to be answered if the person has died.

Conditional1
32Person—underlying cause of death, code (ICD-10 2016 version) ANN{.N}

Conditional obligation:

Only to be answered if the person has died.

Conditional1
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