Identifying and definitional attributes | |
Metadata item type: | Data Element |
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Short name: | Interpersonal relationship of carer to care recipient |
Synonymous names: | Carer relationship to care recipient |
METEOR identifier: | 680219 |
Registration status: | Disability, Standard 15/12/2017 |
Definition: | The relationship of the informal carer to the person for whom they care, as represented by a code. |
Context: | Ageing, carers and disability. |
Data Element Concept: | Informal carer—relationship to care recipient |
Value Domain: | Interpersonal carer relationship code N[N] |
Data element attributes | |
Collection and usage attributes | |
Comments: | Information about this relationship assists in the establishment of a profile of informal caring relationships and the assistance provided to maintain and support those relationships. As such, it increases knowledge about the dynamics of caring and provides an insight into the gender and inter-generational patterns of informal care giving in the community. |
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Source and reference attributes | |
Submitting organisation: | Australian Institute of Health and Welfare. |
Origin: | Australian Institute of Health and Welfare 2016. Disability Services National Minimum Data Set: data guide, July 2016. Cat. no. DAT 4. Canberra: AIHW. |
Relational attributes | |
Related metadata references: | Supersedes Informal carer—relationship to care recipient, interpersonal code N[N] Community Services (retired), Standard 10/04/2013 Disability, Superseded 15/12/2017 |
Implementation in Data Set Specifications: | Disability Services NMDS 2017–18 Disability, Superseded 05/07/2019 Implementation start date: 01/07/2017 Implementation end date: 30/06/2018 Conditional obligation: In the Disability Services National Minimum Data Set (DS NMDS), this data element should only be reported in relation to service users that have an informal carer (Person—informal carer existence indicator, code N, with a value of 1). DSS specific information: In the Disability Services National Minimum Data Set (DS NMDS), this data element refers to the service user’s main informal carer—the person who provides the most significant care and assistance related to the service user’s capacity to remain living in their current environment. It is recognised that two or more people may equally share the caring role (for example, mother and father) however, for the purposes of this collection, characteristics are only requested for one of these carers. If a person has more than one carer (for example, a spouse and a son), the coding response to carer relationship should relate to the carer who provides the most significant care and assistance related to the person’s capacity to remain living in their current environment (i.e. the main carer). The expressed views of the service user and/or their carer or significant other should be considered to be the primary or principal carer in this regard. Code 9 (other female relative), allows for the wide range of family members who may be involved in a caring role with the service user. This code therefore includes the female family members not listed in the codes elsewhere (for example, aunts, nieces, female cousins, grandmothers, step mother, step daughters and so on). Similarly, code 10 (other male relative) covers the range of male family members who may act as carers. This code includes the male family members not listed in the codes elsewhere (for example, uncles, nephews, male cousins, grandfathers, male grandchildren, step father, step sons and so on). Disability Services NMDS 2018–19 Disability, Standard 05/07/2019 Implementation start date: 01/07/2018 Implementation end date: 30/06/2019 Conditional obligation: In the Disability Services National Minimum Data Set (DS NMDS), this data element should only be reported in relation to service users that have an informal carer (Person—informal carer existence indicator, code N, with a value of 1). DSS specific information: In the Disability Services National Minimum Data Set (DS NMDS), this data element refers to the service user’s main informal carer—the person who provides the most significant care and assistance related to the service user’s capacity to remain living in their current environment. It is recognised that two or more people may equally share the caring role (for example, mother and father) however, for the purposes of this collection, characteristics are only requested for one of these carers. If a person has more than one carer (for example, a spouse and a son), the coding response to carer relationship should relate to the carer who provides the most significant care and assistance related to the person’s capacity to remain living in their current environment (i.e. the main carer). The expressed views of the service user and/or their carer or significant other should be considered to be the primary or principal carer in this regard. Code 9 (other female relative), allows for the wide range of family members who may be involved in a caring role with the service user. This code therefore includes the female family members not listed in the codes elsewhere (for example, aunts, nieces, female cousins, grandmothers, step mother, step daughters and so on). Similarly, code 10 (other male relative) covers the range of male family members who may act as carers. This code includes the male family members not listed in the codes elsewhere (for example, uncles, nephews, male cousins, grandfathers, male grandchildren, step father, step sons and so on). |