Identifying and definitional attributes
|Metadata item type:||Quality Statement|
|Indicators linked to this Quality statement:|
National Healthcare Agreement: PI 02–Incidence of selected cancers, 2016
|Quality statement summary:|
The National Cancer Statistics Clearing House (NCSCH), housed at the AIHW, is a collaborative partnership between the AIHW and the Australasian Association of Cancer Registries (AACR). Cancer incidence data are supplied to the AIHW by state and territory cancer registries. These data are compiled by AIHW to form the Australian Cancer Database (ACD). All jurisdictions have legislation requiring mandatory reporting of all cancer cases with the exception of basal cell carcinoma of the skin and squamous cell carcinoma of the skin.
The most recent data available for inclusion in this indicator are 2010 for NSW and the ACT and 2012 for the other jurisdictions.
Cancer publications and annually-updated data are freely available on the AIHW website http://www.aihw.gov.au/. More specialised data can be requested via the website by lodging a customised data request. These are charged for on a cost-recovery basis.
While numbers of new cancers are easy to interpret, calculation of age-standardised rates is more complex and the concept may be confusing to some readers. Information on how and why age-standardised rates have been calculated and how to interpret them is available in all AIHW cancer publications presenting data in this format, e.g. Cancer in Australia: an overview, 2014. Information about the Australian Cancer Database is available on the AIHW website.
The data used to calculate this indicator are accurate and of high quality. The mandatory reporting of cancers and the use of Estimated Resident Populations (ERPs) based on Census data for denominators provides the most comprehensive data coverage possible. The data are appropriate for this indicator.
The 2009 data for NSW and the ACT provided to the AIHW excluded provisional death-certificate-only (DCO) cases, as did the 2010 data for the ACT. The AIHW has estimated the number of provisional DCO cases for each cancer, sex and age group based on the numbers observed for 2004–2008. Overall for the five cancers covered in this indicator, about 1.2% of NSW cases and 1.4% of ACT cases are estimated DCO cases. The percentage varies by cancer type.
For Indigenous status, the numerator for ‘Indigenous’ is the number of people who self-reported that they were Indigenous at the time of diagnosis. ‘Other’ includes those who self-reported that they were not Indigenous at the time of diagnosis and those who chose not to identify as either Indigenous or non-Indigenous.
The completeness of Indigenous identification in cancer registry data varies between jurisdictions. Those with sufficiently complete identification to enable reliable reporting of cancer incidence rates are NSW, Vic, Qld, WA and NT. Indigenous data for the other jurisdictions are not published.
Socioeconomic status rankings (by Index of Relative Socio-Economic Disadvantage (IRSD) score) are calculated by SA2 using a population-based method at the Australia-wide level. That is, the quintiles are national quintiles, not state and territory quintiles.
An SA2-to-remoteness-area concordance and SA2-to-socioeconomic-status concordance were used to allocate remoteness area and socioeconomic status to each record on the ACD based on the person’s SA2 of residence at time of diagnosis.
Caution is required when examining differences across remoteness area and socioeconomic status categories. The SA2 of a person is determined by the cancer registry based on the address provided by the person. Some people may supply an address other than that where they normally reside or the details the person provides may not correspond to a valid address meaning that their cancer record cannot be allocated to a remoteness area or socioeconomic status category at all. Such records are excluded from the tables and this may affect some remoteness area and socioeconomic categories more than others. Also, remoteness areas are based on 2011 classifications. The accuracy of these classifications may decrease over time due to changes in infrastructure within SA2 boundaries since 2011.
Due to the very small number of diagnoses involved, disaggregation by Indigenous status, or remoteness area, or socioeconomic status, by state and territory is not necessarily robust.
This indicator only counts one year of incidence data. For jurisdictions that record relatively small numbers of cancers, rates may fluctuate widely from year to year; these changes should be interpreted with caution.
This indicator is calculated based on data that have been supplied to the AIHW and undergone extensive checks at both the source cancer registry and the AIHW. The state and territory cancer registries have checked the tables and given their approval for the AIHW to supply them to the Productivity Commission.
These data are published annually by the AIHW. While there are sometimes changes to coding for particular cancers, it is possible to map coding changes to make meaningful comparisons over time.
Not all state and territory cancer registries use the same ICD-10 code groupings to classify certain cancers, e.g. the AIHW defines bowel cancer as ICD-10 codes C18–C20 whereas some cancer registries also include C21. This may mean that data presented here are different to those reported by jurisdictional cancer registries, for certain cancers. The definitions used in this indicator are as follows.
The Cancer Institute NSW (CINSW) uses an imputation method to impute missing Indigenous status for reporting purposes. This may lead to differences between the Indigenous rates presented for NSW in this indicator and the Indigenous rates presented in CINSW incidence reports.
The incidence rate in Indigenous Australians may fluctuate considerably from year to year due to the behaviour of rare events in small populations.
Source and reference attributes
Australian Institute of Health and Welfare
|Related metadata references:|
Supersedes National Healthcare Agreement: PI 02-Incidence of selected cancers, 2015 QS
Has been superseded by National Healthcare Agreement: PI 02-Incidence of selected cancers, 2017 QS