- | Activity and participation need for assistance cluster |
|
| |
- | Disability activity and participation life area | Number
[1]
| 1 | Self-care | 2 | Mobility | 3 | Communication | 4 | Interpersonal interactions and relationships | 5 | Learning and applying knowledge and general tasks and demands | 6 | Education | 7 | Community (civic) and economic life | 8 | Domestic life | 9 | Working |
| |
- | Need for assistance in disability life activity areas | Number
[1]
| 1 | Unable to do or always needs help/supervision in this life area | 2 | Sometimes needs help/supervision in this life area | 3 | Does not need help/supervision but uses aids or equipment | 4 | Does not need help/supervision and does not use aids or equipment | 5 | Not applicable |
| |
- | Dementia clinical diagnosis cluster |
|
| Conditional obligation: This cluster should only be completed by a clinician after a clinical diagnosis of dementia. |
- | Type of dementia | String
[2]
| 01 | Alzheimer's disease | 02 | Vascular dementia | 03 | Dementia with Lewy bodies | 04 | Mixed dementia | 05 | Fronto-temporal dementia - Behavioural variant | 06 | Fronto-temporal dementia - Primary progressive aphasia | 07 | Fronto-temporal dementia - Other/unspecified | 08 | Dementia in Creutzfeldt-Jakob disease | 09 | Dementia in Huntington's disease | 10 | Dementia in Parkinson's disease | 11 | Dementia in Human Immunodeficiency Virus | 12 | Delirium superimposed on dementia | 13 | Dementia due to use of alcohol | 14 | Dementia in other substance abuse | 15 | Dementia in other conditions | 16 | Unspecified dementia | 17 | Suspected dementia/diagnosis not confirmed | 18 | Not diagnosed with dementia after clinical assessment | 98 | Unknown | 99 | Not stated/inadequately described |
| DSS specific information: If more than one dementia type is diagnosed record all types for this item. |
- | Dementia diagnosing clinician | String
[2]
| 01 | General practitioner | 02 | Neurologist | 03 | Geriatrician | 04 | Old age psychiatrist | 05 | Neuropsychologist | 06 | Psychiatrist | 10 | Other | 99 | Not stated/inadequately described |
| |
- | Method of dementia diagnosis | String
[2]
| 01 | Physical examination | 02 | Neurological examination | 03 | Cognitive test | 04 | Function test | 05 | Blood screening | 06 | Structural neuroimaging (CT or MRI) | 07 | Functional neuroimaging including amyloid (PET or FDG) | 08 | X-ray | 09 | Lumbar puncture | 10 | Information from family and or carer | 20 | Other | 99 | Not stated/inadequately described |
| |
- | Date accuracy indicator | String
[3]
| AAA | Day, month and year are accurate | AAE | Day and month are accurate, year is estimated | AAU | Day and month are accurate, year is unknown | AEA | Day is accurate, month is estimated, year is accurate | AEE | Day is accurate, month and year are estimated | AEU | Day is accurate, month is estimated, year is unknown | AUA | Day is accurate, month is unknown, year is accurate | AUE | Day is accurate, month is unknown, year is estimated | AUU | Day is accurate, month and year are unknown | EAA | Day is estimated, month and year are accurate | EAE | Day is estimated, month is accurate, year is estimated | EAU | Day is estimated, month is accurate, year is unknown | EEA | Day and month are estimated, year is accurate | EEE | Day, month and year are estimated | EEU | Day and month are estimated, year is unknown | EUA | Day is estimated, month is unknown, year is accurate | EUE | Day is estimated, month is unknown, year is estimated | EUU | Day is estimated, month and year are unknown | UAA | Day is unknown, month and year are accurate | UAE | Day is unknown, month is accurate, year is estimated | UAU | Day is unknown, month is accurate, year is unknown | UEA | Day is unknown, month is estimated, year is accurate | UEE | Day is unknown, month and year are estimated | UEU | Day is unknown, month is estimated, year is unknown | UUA | Day and month are unknown, year is accurate | UUE | Day and month are unknown, year is estimated | UUU | Day, month and year are unknown |
| |
- | Veteran status | Number
[1]
| 1 | Has never served | 2 | Current regular service | 3 | Previous regular service | 4 | Current reserves service | 5 | Previous reserves service | 9 | Not stated/inadequately described |
| |
- | Area of usual residence (SA2) | String
[9]
| N(9)
A code set representing a medium-sized general purpose area aggregated from whole Statistical Area Level 1s (SA1s). | |
- | Country of birth | Number
[4]
| NNNN
The Standard Australian Classification of Countries (SACC 2016) code set representing a country. | |
- | Date of birth | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | |
- | Date of death | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | DSS specific information: Only to be answered if the person has died. This data element should be collected in conjunction with the Date—accuracy indicator, code AAA data element as an indicator of the accuracy of the components of a reported date. |
- | Dementia comorbidities | String
[6]
| ANN{.N[N]}
The ICD-10-AM (Twelfth edition) code set representing diagnoses. | DSS specific information: Any diseases or health conditions diagnosed (apart from dementia) should be recorded, using appropriate ICD-10-AM diagnosis codes assigned following the conventions of the ICD-10-AM. Exclude ICD-10-AM codes used to assign dementia types in Person—clinical type of dementia, code NN. |
- | Dementia diagnosis status | Number
[1]
| 1 | Diagnosed with dementia | 2 | Not diagnosed with dementia | 3 | Not assessed | 9 | Not stated/inadequately described |
| |
- | Dementia risk factors | String
[2]
| 01 | Alcohol use | 02 | Smoking | 03 | Obesity | 04 | Hypertension | 05 | Hearing impairment | 06 | Vision impairment | 07 | Physical inactivity | 08 | Low education attainment | 09 | Head injury | 10 | Genetic | 11 | Mental illness | 12 | Intellectual disability | 13 | Mild cognitive impairment | 14 | Diabetes | 80 | Other | 97 | Not applicable | 99 | Not stated/inadequately described |
| DSS specific information: Risk factors present or recorded at diagnosis of dementia should be recorded. |
- | Diagnosis date of dementia | Date/Time
[8]
| DDMMYYYY
The day of a particular month and year. | DSS specific information: This data element should be collected in conjunction with the Date—accuracy indicator, code AAA data element as an indicator of the accuracy of the components of a reported date. |
- | Gender of a person | String
[1]
| 1 | Man, or boy, or male | 2 | Woman, or girl, or female | 3 | Non-binary | 4 | Different term | 5 | Prefer not to answer | 9 | Not stated/inadequately described |
| Conditional obligation: This data element is collected on a Conditional basis with the element Person—sex, code X. Data must be reported for at least one of the two elements, either Sex or Gender. Data may be reported for both elements. |
- | Indigenous status | Number
[1]
| 1 | Aboriginal but not Torres Strait Islander origin | 2 | Torres Strait Islander but not Aboriginal origin | 3 | Both Aboriginal and Torres Strait Islander origin | 4 | Neither Aboriginal nor Torres Strait Islander origin | 9 | Not stated/inadequately described |
| |
- | Informal carer existence indicator | Boolean
[1]
| 1 | Yes | 2 | No | 9 | Not stated/inadequately described |
| |
- | Interpersonal relationship of carer to care recipient | Number
[2]
| 1 | Wife/female partner | 2 | Husband/male partner | 3 | Mother | 4 | Father | 5 | Daughter | 6 | Son | 7 | Daughter-in-law | 8 | Son-in-law | 9 | Other female relative | 10 | Other male relative | 11 | Female friend/neighbour | 12 | Male friend/neighbour | 97 | Not applicable | 98 | Unknown/unable to be determined | 99 | Not stated/inadequately described |
| Conditional obligation: This item should only be completed if CODE 1 Yes was selected for Person—informal carer existence indicator, yes/no/not stated/inadequately described code N. DSS specific information: For this collection CODE 3 Mother should also include step mothers and mothers-in-law. For this collection CODE 4 Father should also include step-fathers and fathers-in-law. |
- | Living arrangement of person with dementia | String
[2]
| 01 | Lives alone | 02 | Lives with family - partner only | 03 | Lives with family - other | 04 | Lives with others | 10 | Other | 99 | Not stated/inadequately described |
| |
- | Main language other than English spoken at home | Number
[4]
| N[NNN]
The Australian Standard Classification of Languages (ASCL) code set representing languages. | |
- | Marital status | Number
[1]
| 1 | Never married | 2 | Widowed | 3 | Divorced | 4 | Separated | 5 | Married (registered and de facto) | 6 | Not stated/inadequately described |
| |
- | Non-clinical dementia type | String
[2]
| 01 | Alzheimer’s disease | 02 | Vascular dementia | 03 | Dementia with Lewy bodies | 04 | Mixed dementia | 05 | Unspecified dementia | 06 | Other dementias | 07 | Unknown dementia | 99 | Not stated/inadequately described |
| Conditional obligation: This item should only be used if dementia has been clinically diagnosed but is also being reported by the person or their carer in a non-clinical setting. Non-clinical settings include survey responses, part of an ACAT assessment or a community based aged care service provider setting and other settings that are not clinically reported, i.e. completed as part of a survey response. |
- | Proficiency in spoken English | Number
[1]
| 1 | Very well | 2 | Well | 3 | Not well | 4 | Not at all | 7 | Not applicable | 9 | Not stated/inadequately described |
| |
- | Residential setting of person with dementia | String
[2]
| 01 | Private residence | 02 | Residential aged care facility | 03 | Independent living in a retirement village | 04 | Hospital | 05 | Supported accommodation facility (including hostels, supported residential services and group homes) | 06 | Other institutional care | 07 | None/homeless/public space | 10 | Other setting | 99 | Not stated/inadequately described |
| |
- | Sex of a person | String
[1]
| 1 | Male | 2 | Female | 3 | Another term | 9 | Not stated/inadequately described |
| Conditional obligation: This data element is collected on a Conditional basis with the element Person—gender, code X. Data must be reported for at least one of the two elements, either Sex or Gender. Data may be reported for both elements. DSS specific information: In the Dementia NBPDS a person’s sex is understood to be reported as at the time of data collection. |
- | Year of arrival in Australia | Date/Time
[4]
| YYYY
The calendar year, beginning on the 1st of January and ending on the 31st of December. | Conditional obligation: This item should only be completed if Australia was not selected for the data element Person—country of birth, code (SACC 2016) NNNN. DSS specific information: This data element should be collected in conjunction with the Date—accuracy indicator, code AAA data element as an indicator of the accuracy of the components of a reported date. |